Have any of you ever heard of Angelman Syndrome?
There is a new calender at the AS website that you can order. www.angelman.org these are very nice!
There is a really good site on angelman syndrome. It is http://www.angelman.org/
I hope this helps you.
Hi T..
Yes, I have heard of Angelman Syndrome. Do you need help with information?
We have a young man at our church with angelman syndrome. I don't know much about it, but I do think it is a fairly new diagnosis and rather rare. He is now in a home, he is probably in his upper 20's or early 30's.
My son has Angelman Syndrome. He is 17 years old. What do you need to know.
T...Although my son does not have angelman(at one point his doctor thought he may have had it) I have heard of it. Does your son have it? I know it is very rare.~K.
We have friends who has a daughter with Angelman syndrome. They have started a foundation called 'Love an Angel'. They are actually holding a fundraiser next week. They are hoping to raise money for a residential center for children with this special need as well as providing awareness of Angelman Syndrome. I know they have contact with other Angel families. The picture for next week fundraiser show 9 kids. Thier contact information is
Love an Angel Foundation
2940 Vanderhoof Rd. Clinton, OH 44216
###-###-####
fax ###-###-####
http://ghr.nlm.nih.gov/condition=angelmansyndrome
http://www.ninds.nih.gov/disorders/angelman/angelman.htm
my daughter goes to riley next month to get tested for it, it's similar to williams disease. to me the scariest part of it is the seziures. feel free to email me at any time.
Hi, I am fairly familiar with this rather rare dosorder and I'd love to help answer your questions or offer sugestions, but I'm not where you were going with this question. I have a BS in Psychology and have worked as a QMRP forabout 12yrs. While people who have Angelman Syndrome can face some large challenges (and many also have additional struggles coupled with Angelman) they are blessed with wonderfull personality traits of joy, happiness and smiles for everyone. email me @ ____@____.com
Yes. What all do you want to know? It is chromosonal in nature, many times these children are not able to walk or talk (although the little girl I know has miraculously been able to walk), there are often severe cognitive deficits and an accompanying seziere disorder. That said, they are beautiful children with wonderful smiles. :) Google it. It is a rare disorder but there is information out there. Last year there was even an Angelman's walk in Nashville, TN.
