Urachal Cyst

Updated on September 02, 2009
K.G. asks from Chicago, IL
4 answers

Has anyone had a newborn that had an urachal cyst? We have been told that our six week old daughter has one and will require surgery to remove it. We were also told that if we wait too long her chances of developing cancer from it will increase. The doctor still wanted us to wait another month before we decided anything though. We are working with the Urologists at Childrens and specifically will be having the surgery with Dr Haggerty. Has anyone had experience working with her? I guess I am just hoping to find another Mom who can share her experience with me. My husband and I are both just scared and want to make sure we know all the facts and are making the best decisions we can for our daughter. This is a rare condition so there aren't any resources on the web that I can find.

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L.B.

answers from Chicago on

Hi K.,

First of all I would like to congratulate you on your bundle of joy. Well I’m an employee at Children’s and I have heard wonderful things about Dr. Haggerty. I called a friend who works in urology and was told that if their child needed surgery they would full heartedly seek Dr. Haggerty. You are in wonderful care at Children’s. I am sure if you call and speak with Dr. Haggerty she can give you some names and numbers for references. It might take some time as she may need to get permission from the families to disclose their information. I wish you the best of luck!

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A.S.

answers from Chicago on

Hi K. - Congratulations on your baby girl! I have no info about the cyst or the Dr. Just wanted to be supportive. Chidlren's Hospital is an excellent hospital! Are you going to Chicago or Milwaukee? Thank goodness they caught it! : ) Hang in there!

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C.G.

answers from Chicago on

hi K.. i dont know about your condition but my daughter has urinary reflux and we have worked with dr. chiaviano at childrens. the urologist and everyone there are great. have you tried baby center? there are msg. boards/groups of moms who have children with urinary reflux who have been a big support for me i wonder if there is a group for moms with kids facing what you're going through. also check out the urologychannel.com (or .org) there is a lot of info. on there. good luck you are in good hands.

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J.R.

answers from Chicago on

I don't know anything about this condition, but Children's should be able to put you in touch with other parents who have went through this. Give them a call, and I'm sure you'll be able to find the resources that you're looking for.

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