Low Liver Enzymes, Low Vitamin D, and an Out of Control Thyroid

Updated on August 28, 2010
R.D. asks from Haysville, KS
8 answers

Hey everyone,
I recently went to the dr. because I am so exhausted and run down all of the time. I have a genetic disorder that affects my b6 and b12, so I thought maybe my levels were off. The dr. did some blood work and called last night. She said my genetic disorder stuff is fine, but that my vitamin D was low (didn't seem too concerned about that). She also said my thryoid is outta whack, so I started Synthroid this morning. The thing that sounded most concerning to her (and I'm freaking out as well) was that my liver enzymes were extremely low. Something else that has to do with the liver was really low as well.
So I'm supposed to be getting a call from the lab people to set up a time and get more tests done, as well as an mri on my abdomen. I'm totally freaking out. I'm only 22, just started my first year teaching, and I have a 16 month old. I am adopted, but my birth mom recently sent me some medical info. She had thyroid cancer. So I just don't know what to think. I don't drink AT ALL so I know my liver isn't messed up due to that.
I guess I'm just wondering if anyone has had any of these problems? I'm just freaking out right now :)

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So What Happened?

Thank you all for the advice! I do want to point out that I am married :) It sounded like I was all on my own haha! To the lady who mentioned Hashimoto's Diease (I'm sorry, I can't remember who!) THANK YOU!!! I thought that sounded familiar and I dug out the little medical history I have from my bio. parents. Turns out, quite a few family members have it. Add that to the genetic mutation I have that affects by B6 and B12, no wonder I have felt so crappy! I am going in on Monday afternoon for an ultrasound and more bloodwork. I will for sure mention the Hashimoto's. I know even if it is cancer, it is not the worst kind to get. I also read that if your thyroid is messed up, it can affect a lot of other things. So hopefully that is all that is going on with my liver. It is scary, but no matter what is going on, I'll get through it :) We just have a lot of things going on right now, and I feel like it's just one more thing to add. Thanks for all the advice!

More Answers

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D.W.

answers from Indianapolis on

It's OK to be freaking out.

Call your doctor today and ask what she thinks may be going on. Stay off the internet. Believe me, you don't want to start researching without proper training to assess what is in line with what you're experiencing.

Thyroid cancer is not genetic, to my knowledge. And, if you do have thyroid cancer, it is the MOST treatable cancer followed by testicular, Hodgkins, lymphoma, some skin cancers. Over 92% of patients with thyroid cancer are cured with surgical removal of the thyroid and irradiated iodine + restricted diet.

Did your doctor mention seeing an Endocrinologist?

Call today. Be firm that you are freaking out and need to know what she suspects. I went through this 2 years ago right after the birth of my daughter. Unfortunately, I have a degree in Biology, so I could read clinical papers and had already diagnosed myself before the pathology report came back. I did have cancer (Hodgkins), went through 5 months of chemo and have been fortunate to be cancer free for the past 20+ months.

Good luck! Please keep us all updated on what you learn.

4 moms found this helpful
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M.M.

answers from Washington DC on

You are under a lot of stress right now too.
Try to relax and focus on your new job and you little one at home. Let the doctor's run their tests.
I take Synthroid. I still get tired, amd cranky at times, my skin is dry and my periods are awful. So the drugs won't fix everything, but they will help.
When my doctor first sent me in, they checked me for hepatitis C. I freaked at the time too, but the only thing wrong was my thyroid.
It will take about a month for that Synthroid to start really working and the doc may have to adjust the levels a couple times.

4 moms found this helpful

V.C.

answers from Dallas on

I second seeing the endocrinologist. If your doctor doesn't address your questions to your satisfaction, you may want to find another one to work with.
If after you get answers, you would want some info on nutrition and supplements, I would be happy to help you.
Victoria

2 moms found this helpful
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S.M.

answers from Asheville on

The very first thing is not to freak. It's so important to take a step at a time through these things. It's tough to do!!!! Staying calm and balanced will help you see things with greater clarity and sort through it all - not to mention the stress of fear and frustration only exacerbate the situation and will not help you physically.

I, too, had a whacked out thyroid that landed me flat on my back in bed. The fatigue was wretched. But I gradually got it turned around. One thing with thyroid is that it's not always easy to 'read.' Blood tests can come back normal, but something could still could be amiss. It's finding a balance within it all. Also, synthroid is a very common thyroid med, but it doesn't work the same for all people regardless of what docs say. It did not work for me, but I found one that did. It may be fine for you and I hope it is - just sharing that fyi.

The best thing I think you can do right now is work with your doc. Get the worry out. (If you need some help with that, let me know. It's what I do.) Also, don't assume the worst. I'm so glad you are getting checked thoroughly. Take care and hang in there. You'll get to the bottom of this. And feel free to call if you have any questions - I'll be glad to share anything I can with you about my situation with thyroid or help managing the stress. No need for that to add more weight to the situation.

2 moms found this helpful
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S.T.

answers from St. Louis on

R.,

First thing is to educate yourself before the docs start scaring you with big words that sound ominous. There are several places to start. stopthethyroidmadness.com is a wealth of information. Yahoo groups has a group called "thyroidless" with wonderful people who can steer you to the right information. Read and research.

Sounds to me like you have Hashimoto's, which is an autoimmune disorder that affects Vit D, B12, and thyroid. I had it and didn't know it until a lump on my thyroid got big and they couldn't decide by biopsy if it was cancerous or not. They scared me with "cancer" and ended up taking out my thyroid. I was only 31. Turned out not to be cancerous at all.

The thyroid is one of the most important glands in your body. It is involved with metabolism, body temperature, brain function and just about everything. DO NOT let them take it out. You can manage Hashi's by going gluten free, getting on the right supplements, and taking iodine. I didn't know I had Hashi until after the thyroidectomy because none of my doctors tested for it, but now I wish I had done my research.

Please arm yourself with information. The medical community is ready to cut first, ask questions later. Surgery and procedures get bigger payouts from insurance than proper management and cure. I was on Synthroid for 10 years and it didn't make me feel any better. There are things you can do. Go to those sites or email me. Good luck.

1 mom found this helpful
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G.W.

answers from Kansas City on

I had months of testing due to liver enzymes being WAY off. Turns out that the liver specialist said it was an allergic reaction to an antibiotic. Because every test and MRI and ultrasound I went for were normal. Good luck it is scary while figuring it out.

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S.H.

answers from St. Louis on

research, research, research.....& be very aware that your dr probably will NOT appreciate your efforts. BUT I strongly believe in patient advocacy & I also strongly believe that we are all responsible for our own lives & decisions. In order to make those life choices, we have to begin from a position of information.

& when you gather that info, please approach it with a level-head. It is very difficult to restrain your thoughts & imagination whenever medical issues are researched! Life can be very scary, & sometimes we make it even more so for ourselves...... Peace! .....oh, & yes, I'm also battling thyroid issues!

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S.B.

answers from Chicago on

I had thyroid cancer in 1999. It evidenced itself by a lump in my neck. Biopsy revealed cancer. It was removed. I did not need irradiated iodine or a restricted diet. I had a thyroid uptake scan about 4 months post-surgery....and lots of bloodwork. First every month (to get the med levels right) and then every year after that. All I do is take synthroid every day. They don't know what caused it but suspect a large amount of radiation in my youth (from dental? I don't remember anything) . I personally suspect soy - I was vegetarian for a few years and ate/drank a lot of soy - and it's an endocrine disrupter. Long story short? Don't worry about it! A lot of people suffer from low vit D - get some good quality vit d3 and start taking that. Don't take calcium with your thyroid meds - they work against each other. Call your doc and ask about what the low liver enzymes mean and if you should be talking to a specialist.

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