Laryngomalacia - McKinney,TX

My DD had this as well and it did not cause any problems, other than she sounded like a freight train! It was difficult, because anytime someone new held her, they thought something was seriously wrong with her. I called the doc on a regular basis for reassurance, and he always said that if she was not in distress, she was ok.
To be honest, I was happy to read this post, because until now I never knew anyone else whose child has this and no one had really heard of it.
Good luck, My dd grew out of it around age 1

One of my twins was diagnosed with this and at first I was really concerned, but after talking to both her pedi and ENT they both said it is a condition that they will eventually outgrow. She had it pretty bad and had major stridor (the noisy, raspy, odd sound when they breathe), snoring, etc. from it. Our main issue was that if she got any germs it would immediately go to her throat and she'd get a little cold, even when her twin who does not have the condition would not get sick. We also got, and still get, croup pretty often. She is 2 1/2 now and has pretty much outgrown it but still has it just a bit. Again..doctors have assured me all kids outgrow it but that it takes some more time for some kids (she was a preemie).

I would just really try to keep hands clean and germ-free and avoid being around kids who have a cold as much as you can (easier said than done). Wipe down everything when you go out to eat, carry hand sanitizer, etc. to try to keep those germs at bay. It also helped my daughter to sleep with a cold-mist humidifier in her room to keep those airways as open as possible. That is really about all you can do, I think. Hang it there...it will get much better and from what I understand most kids outgrow it by age 1.

Any updates on your daughter? Not sure how I saw this today, since you posted in Nov.

My son is 6 mo. and we are dealing with this. It was such a strange name to me that I always forget what it is! My son's is not severe- at least we hope not. Going to ENT on Monday. I thought he was learning to 'talk', but doc said he was trying to clear out his throat. Thinks he is aspirating his food/milk and irritates him, causing him to growl all day long. Causes him to projectile vomit all day, too, at least 3 soaked out burp clothes and 4 bibs between every feeding.

I made a post tonight for advice on what to expect with a swallow study before reading your post.

Hang in there, and blessings to your little one,
L.

My son has laryngomalacia but hasn't had any problems with it. He does have a stridor and still does at 13 months (although not as bad).
I am surprised they didn't do the surgery on her. My niece and another friend had the surgery because it was causing them problems. Has the dr. talked to you about the surgery?