Febrile Seizures - Portland,OR

Updated on March 13, 2008
S.H. asks from Portland, OR
4 answers

DD had 3 febrile seizures a few days ago. Though I hear they are common but scary we are just starting to come down off of a huge adrinaline ride. My mind is immediatly on the risk that she now has of having another and becuase her fever was actually very low. I'm especially concerned about daycare. Has anyone writen up a set of instructions to daycare providers or babysitters about what to do or give the rights to give tylonal at ANY sign of fever? I don't think I will ever stop taking her tempature! I'm also curious if others have seen this more than one time, do you ever get calmer about it, does your mind tell you what to do the second time you see it? I need to feel like I can learn control and calm some fears and emotions - especially since she is at such a higher risk of this happening again.

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So What Happened?

Well it is always good to hear from others who have been through this. We had our first day back today and it turns out a Rotovirus was going around so she probably got rocked with that. I have a doctors note to give her tylonal/ibeprofen at the first sign of anything near 99 and a print out from the doctor on what to do during a seizure. I feel a little better and I think we are doing everything we can and that is all you can do. Thanks for the support and ideas.

More Answers

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D.S.

answers from Seattle on

My youngest son, almost 4, has had three febrile seizures. Almost one a year. The first time I ended up bringing him to the ER as I wanted to make sure that there was nothing seriously wrong. Basically, some kiddos just can't tolerate their internal temperature going up too fast. Thats when the seizure occurrs. My son's normal body temp is around 97, so if he spikes a 99 degrees or higher, that is a fever for him.

The best thing to do would be to give the appropriate Childrens dose of Tylenol and Ibuprofen/Motrin together. They both act differently to keep a fever down. Tyelnol is given every 4 hours, and the Ibuprofen/Motrin every 6-8 hours, depending on directions from your physician.

For me, when my son first shows signs of a fever, I automatically give him a dose of Tylenol and Ibuprofen. I have him lay down and take it easy. He has had three and even though that I know they are perfectly normal, and he should grow out of it by the age of 6, it still is heart breaking to watch! And scary for any parent!

Try to remember to breathe yourself through this process, I know its hard! But if you try to remain calm and remind yourself that this will pass, the better off you will be.

I have a wonderful daycare provider that I have written instructions for at the first sign of a fever. Also, in my son's daycare bag, I have a bottle of both Childrens Tylenol and Childrens Motrin with the proper dosing enclosed. I trust my daycare provider to call me with any sign of a fever, and then dose my child accordingly.

Good luck to you!

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E.M.

answers from Portland on

They never get any easier. My daughter has had a few and everytime..it's gut wrenching to watch.
I don't know about giving tylenol at daycare, maybe it depends upon the daycare?

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S.B.

answers from Seattle on

Every seizure is a scary one, the not knowing when it will happen again will drive you crazy. My son does not have Febrile seizures, but he has a seizure disorder so I don't know much about them. My best advise would be, "Knowledge is Power". There are a lot of great books out there(an interesting read is a book called: Seizures and Epilepsy in Childhood: A Guide by John M. Freeman). Just understanding makes things a little less stressful. I also made sure that not only the teacher in his class knew what to do, but everyone that I thought should know, counselor, specialist, Grandparents, aunts and uncles, etc. So write your instructions down.(Sometimes you can get those from your doctor) You would be surprised on how many people would not know what to do or have the wrong information. Also if you are looking for some extra support there are online support groups that very wonderful.

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A.M.

answers from Portland on

Last year my toddler had one. I was mortified, I had no idea what it was. I thought she was dying in my arms! I don't imagine it would get easier to watch, but I often think about how I will handle the next if there were to be. I am always on the look out for the slightest sign of fever. You're not alone in that. As for the daycare, I would guess they would have to give tylenol, as it would be considered somewhat of a medical condition. They are allowed to dispense other medications. Maybe with a doctors note?

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