Helmets to Re-shape Baby's Head...

Updated on February 22, 2011
R.. asks from Cleveland, TN
5 answers

So my DD has 'moderate' Brachycephaly (back of her head is flat, dome is high, and bumps over her ears) and needs a helmet to correct this. Our pedi. had us doing repositional therapy and massaging her head to try and correct it before resorting to the helmet... but it's not working. So we have started to look into getting a helmet. I don't have insurance... I'm working on getting on medicaid, but for now everything is out of pocket. I was laid off in October, and hubby was laid off his job a couple weeks ago, so we are trying to find the cheapest way to do this. We were told that it HAS to be fixed before she turns 2, becuase that is when her brain is still growing enough to re-shape. (she is 9 months now) I was hoping that the mothers who have been there could give me some info. about the cost of these things? I have seen them range from $###-###-####... not to mention the office visits. I know that the length of time the helmet is worn depends on the severity of the head shape, but what is 'average'? Also, how did baby handle wearing the helmet? I have a hard time getting my DD to keep a hat on, I hate to imagine what it will be like with a helmet on 23 hrs a day! Are there different 'brands' out there? I know that a lot of this info. will come to me from my doctor, and we are going to be having an appointment with one about her head as soon as we get our taxes back sometime this week (there goes that refund! lol) I just want to go in with a bit of knowledge beforehand... Thanks Mommas!

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J.S.

answers from Minneapolis on

I can't help you with cost, but a good friend of mine "helmeted" her son. He was less than a year (I'm guessing about 9 months) when they started, and it only took 3 months and his head is perfectly round now, and he no longer wears the helmet. She said he didn't care one lick about wearing it, so that wasn't an issue. She said in hindsight she was so glad they did it. His head was pretty flat in the back, and bulging a bit in the front. He looks totally normal now.

Good luck!
J.

1 mom found this helpful
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L.N.

answers from New York on

Our insurance didn't cover it at first. we asked for a case manager to be assigned to our case, who then approved the helmet for my daughter.
a few things: kids do not get bothered by it at all. it has to be worn 23 hrs a day (+1 hr taken off during bathtime and drying). you have to take it off pretty regularly (esp. during warm weather) to clean the inside with alcohol. but all in all my daughter did great with it, and her head was reshaped.
also, we were told the helmet helps if fitted and wearing it before 12 months. afterwards it does not help, or unlikely to help. so if you're going to do it, do it asap. when we were first told insurance wasn't going to cover it, we asked the institute to give us the estimate (+visits) and our payment was going to be 2500 for the entire thing. after insurance we paid like 500 only.
i don't know if there are different brands out there. it's just a white helmet that gets shaved on the inside every so often to allow the head to grow. my daughter wore it from december to june. hers was not a severe case but even as such we could tell prior to wearing the helmet how her facial features were misaligned (nose, cheeks, eyes etc). that thing did miracles.
again my daughter was 6 months old when she started wearing it and had no problems whatsoever. actually i still have the helmet. so i say if you can go for it and do not wait.

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K.A.

answers from Los Angeles on

I don't know anything personally, but a friend told me for her son the insurance didn't cover it anyway, and I think most don't. I don't know about Medicaid. I do know some kids have to go through several helmets, but like the other post I think my friend said her son just had one. Good luck!

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K.K.

answers from Stockton on

My nephew had to wear helmut and it was partially paid by their insurance. It did not completely helped him; his head is still flat but not too obvious. He was not bothered by wearing it everyday. I guess he got used to it.

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K.W.

answers from Asheville on

If you decide to have your son fitted with a band (helmet) you should contact Cranial Technologies. They are most professional and knowledgable in reshaping childrens heads. I took my son to their Charlotte NC clinic. My son didn't mind the band and the earlier you get your child fitted the better the results, so don't wait. Our cost was $3600 and I'm pretty sure that they have a payment plan.

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