What are the blogs of moms who have children with an autism spectrum disorder?
Thanks!
Blog by a dad - Spectrum Force 5
http://spectrumforce5.tumblr.com/post/89372387647/on-the-...
There are a zillion of them. Are you looking for something specific? Several were suggested in posts to your last question but I don't know if you tried those and weren't satisfied, or if you were reluctant to check them out for some reason. Sometimes people on Mamapedia don't want to look into what's suggested by individual responders, fearful that they have an agenda. But anything you find in a blog is going to be that person's opinion whether you find the blog via a wide Google search or via a forum like Mamapedia. Every Mamapedia mailing starts with a blog by someone who is being featured that day, on a variety of topics. I'm not sure how those people are chosen. But I think the only way to get value out of blogs is to just follow a few of them for a while and see if you agree with what's being said or feel that there are helpful suggestions. Then stop subscribing to those that seem irrelevant to your situation, and start subscribing to new ones. Keep a list though because otherwise you will wind up back with the same ones! There are so so so many that you're going to have to invest some serious time in weeding through them, so try to be as methodical as you can.
My favorites -
adiaryofamom.wordpress.com - mom of an 11 year old autistic daughter and a 14 year old neurotypical daughter; AMAZING writing and super helpful. Lots of links to other parent blogs, and to autistic adult blogs, which are also fantastic and helpful
emmashopebook.com - written by a mom of an autistic tween, who is non-speaking (mostly), but who types and co-writes some of the posts. Her husband sometimes comments/contributes. Also links to other parents and also links to autistic bloggers.
Both have facebook pages as well.
Also visit AutismSpectrumExplained.com - written by sisters, one autistic, one "mostly typical". There is a lot of info on it, and input from the sibling experience. They also have links to ASEforKids.com, which is an autism site for kids to understand their autism. Majorly helpful resource, as of course it's helpful for us parents as well.
Also, Karla's ASD Page on Facebook, written by the autistic mom of autistic children. She has a TON of information, and discusses issues from the parent perspective AND the autistic perspective. She works at Intel, but also does IEP consulting (again, advocating for the autistic children). Her facebook page has TONS of great info, including really useful info-graphics in the photos/albums section.
I highly recommend finding autistic bloggers to read. It's great to have support from other parents. But the information you need primarily is what is it like to BE autistic. Non of us moms, unless we're also autistic, have that information. But autistic bloggers do, and they are sharing their life experiences, their sensory experiences, their meltdown experiences. It's out there and it's amazing.
Feel free to message me if you're looking for specific information. I'm working on putting a website together that's a link-hub of autistic/autism parent blogs, but it's not quite done yet. Feel free to visit the facebook page, Autistikids, to connect to blog links and other useful autism-related facebook pages.
I prefer the local groups. Here we have autism speaks, TASK, my poor brain won't produce the third. They have activities where you meet face to fact other parents, talk to them, if you find a bond you exchange information and hang out. The beauty of this is you have friends that understand and when you hang out the kids hang out.
I do not know where to start with the blogs. First of all we all look at it differently. To me this isn't about me, it is about my son. So many blogs are built around look at me, mom who is raising this child, aren't I amazing. Huge turn off for me. There are blogs that aren't like this but then the look at me moms come in and stir it up, I don't need extra drama, I would love to offload some.
If you are a look at me mom, just google, there are so many where you can go and get a pat on the back for all your hard work. If you are solution based join local groups.
