Son Having Seizures

J.,

I was on Dilatin and than Keppra for my siezures. I actually just got weaned off. I had a seizure when I was 22 and only had a second one when I stopped taking my medication on my own (my mistake). Now 7 yrs later I am off my meds and keeping my fingers crossed everything is ok....

As far as the doseage, that seems like ALOT to me. I think when I was on Dilantin I was taking 2 - 400mg twice a day (but don't quote me on that as it was over 2yrs ago). I than went on Keppra and I was taking 500mg of that twice a day. Keppra is more more partial seizures so that is why my dosage was higher (as is neurontin - I think). Every test I had, and each year after came back normal, but I was still on the medication (through 2 pregnancies).

I had my blood level checked 1x a year to see what the medication level was in my body. Make sure to ask your doctor if they check the Neurontin level in is blood before upping his dose. They may not need to up his medication that high if the lower dose works.

Hi J.,

Start asking yourself lots of questions.

Now is the time to start asking what could it be?
Keep an open mind?
Did you change anything in your home?
Cleaning products? foods? drinks? move from a different home?
Did this happen when he started going to daycare? school? while visiting a certain friend? neighbor?
Have you recently got a pet? new toy?
Is it worse in summer or winter? Seasonal?

Then start gathering your information.

I can tell you that there are many children out there that are more suseptable to chemiclas and their surrounding environments.

I know so many parents that have changed their families lives simply by switching there homes over to safer products.

Think about it.

God Bless!

J.

I would recommend getting a second opinion. You could tell your doctor that you want him to recommend someone for a second opinion, but sometimes it seems that docs in the same practice tend to back each other up all the time, so you could do your own research and find a specialist. Remember that they are 'practicing' medicine' and another doc may know more or have a different treatment. At the very least you would have piece of mind knowing you are doing everything you can do to get your son the correct treatment.

Hi J.
I do not know how you feel about natrual medicine but my suggestion is to not start him on his medicine and take him to a homeopath. I was sick for all my childhood and most of my adulthood until I tried a homeopath. Even if you do not believe in natural medicine I would talk to the dr to see if he can be on something else if you are seeing law suite on the medicine there must be something wrong with it. :)T.

J. -
I would seek a second opinion about which meds to strt your son on. I frequently work on the pediatric epilepsy unit and cannot remember too many children on neurontin. The most common seizure medications are Keppra, Dilantin, topamax, felbamate,lamictal, trileptal, valproic acid, zonegran. Neurontin can be used as an anti-epileptic medication though I think it is usually used in addition to other medication. My advice would be to bring him to a Neurologist. Be prepared to give specific details of his seizure like events (his behavior, body movements, length of event etc.) Tey will likely have your son hooked up to an EEG, wires on his scalp that will measure brain activity. Your Pediatrician might have some experience with seizure activity a Neurologist deals with patients with seizure activity every day. Good luck! Please keep us posted as to how your son does.

J., my heart goes out to you, I know how scarey this can be because my son had simple partial idiopathic epilepsy when he was 5. We thought he was having a stroke due to the fact it only involved the left side of his body. He was able to understand what we were asking him and shake his head yes or no to questions asked. We wound up taking him to a neurologist, which was the best thing we ever did. They finally, finally did all the correct tests to pin point what the problem was. They did a C.T scan a regular e.e.g and then a 24 hour sleep deprivation e.e.g . Thankfully it was caught in time and with 2 years of being on tegretol he was weaned off. He is now a very normal very mouthy 12 year old and has not had a problem since then. Keep going back to the Dr. until you find out whats going on, be a royal pain in his fanny if thats what you have to do to get your answers!God Bless you and yours and good luck.