Enteral Feeding Supplies No Longer Covered Under Insurance

Updated on June 01, 2008
E.C. asks from Florissant, MO
5 answers

Hi moms, I need some help. I have 10 month old twins and one of them has a feeding tube (g button). Our insurance has paid out the maximum allowed per year for medical equipment(feeding bags, extension sets, replacement buttons) as well as the rental fee for the feeding pump and iv pole. We are a one income family ( 2 adults, 3 kids) and cannot afford the cost on our own per month. Does anyone know of any charities or other organizations that would help offset some of the costs? We are hoping to have the g button out by September if all goes as planned, but we already have substantial bills from our deductible and co-insurance and 4+ months of total financial responsibility has me worried sick . Any suggestions would be greatly appreciated!

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L.V.

answers from St. Louis on

A couple of suggestions: Is your child on disability? This would not be an immediate solution but could provide some income....check out www.ssa.gov for more info on this.

Do you go to a clinic associated with a children's hospital? A hospital social worker would probably have some excellent resources. If feedings are only going to be needed for a few more months, maybe they could even get things donated. The home health provider currently providing the feedings might have an "indigent" fund that could give you feedings for free or at least reduced.

If I think of anymore, I'll post back on here. :)
Good luck!

1 mom found this helpful
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E.W.

answers from St. Louis on

I don't know of any charities of the top of my head, but my husband and I have had great luck with getting supplies from online vendors at a pretty big discount. We were going through suppliers like Apria Healthcare and the were so outrageously expensive. We thought with the medical industry as it was we were just stuck paying that amount. After we researched a few sites we tried ordering that way and it's worked out great. Cheaper than out deductible/copay on much of it.

Good luck and my prayers are with you. September will be here before you know it.

1 mom found this helpful
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B.H.

answers from St. Louis on

Try Catholic Charities. Even if you are not Catholic, they will help. I've heard great things about them. Also, other local churches usually can help you to find resources.

1 mom found this helpful
Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

G.B.

answers from St. Louis on

If you are in MO is your child receiving any First Steps Services. If not, contact your local school Districts Parents as Teachers Program. You will need to get a Regional Case Manager. If your child was in the NICU as an infant your child will qualify for services. They pay for a lot of therapies, and for equipment. If you need more information email me "____@____.com. I would be happy to help you navigate the system. Sincerely, G.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

S.M.

answers from St. Louis on

I don't know if they can help but have you tried nurses for newborns. Not sure of the number but believe they have a website. They may know of some other charities if not.

S. M

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