Endometriosis and the Pill

Hi. I also have a blood clotting disorder - APS (antiphospholipid antibody disorder) also known as Hughes Syndrome. I had to take Lovenox and baby aspirin during my pregnancies after having two miscarriages. I was told to never take the pill with my condition. Or anything with estrogen. The doctors think that I have endrometriosis. I don't know what I would take to manage it, but I would stay away from the pill due to the clotting risk. After having my children I was advised to continue taking 81mg aspirin daily for life.
For birth control I used the diaphram or my husband used condoms. When I had the twims I did have a tubal because I had HELLP and the doctors said my body couldn't take another difficult pregnancy.

I'm nowhere near an expert on this at all, but I think that you might want to talk to your OB about laproscopic surgery for the endometreosis. When I was having trouble conceiving my daughter they suspected endometreosis and I actually had surgery to remove it (turns out, wasn't there). I have a friend also who was having trouble conceiving, did have endometreosis, had the surgery and got pregnant very quickly two times thereafter. The surgery itself didn't require an overnight stay and, while it wasn't the best time of my life, I was pretty much back to my old self in two-three days.

I have a friend of mine who has an extremely rare blood clotting disease, she has now also developed a mild case of lupus. If you saw her you would think she was the picture of health, she swims 3000 yards a day and is beautiful. I would absolutely keep badgering your doctors about different tests and such to get to the bottom of it. My friend got one of her clots in one of her breasts, but in order to test it they had to biopsy it which made the situation even worse. Go to the doctors!!! Get to the bottom of it! My thoughts are with you!

H. Z. (SAHM 5, almost 4 and 15 month old boys)

I had laproscopic surgery to remove some of the areas of endometriosis that I had. My dr. actually says the best thing for it is to have a baby because while your pregnant your body gets to heal itself.My youngest is 18 months old and I am now slowly starting to get the pain back. I was pregnant with him 2 months after the surgery. Good luck to you.

I would start with seeing a GYN. There are things that they can do that help other than the pill. It depends on if you will be having more children or not. The easiest treatment is pregnancy. Another is an ablation. Sorry don't know if I spelt it right. There are also herbal things that you could look into. One is Black cohosh and there are more out there that have been use for years and years. My mother stuggled with it for years and years and the above are some of the things that helped her. The last was the ablation and since then she is extremely happy..