J.E. asks from Sacramento, CA on January 09, 2008
Cyst on the Brain Diagnosis (Choroid Plexus)
After a routine ultra sound at 20 weeks to determine the sex, we were told they found a choroid plexus cyst on the baby's brain. My husband and I have done research on our own while waiting for our level II ultra sound. We are confident, after reading on the issue, that it will go away on its own by or around birth (it was the only marker they found of any genetic disorder; my AFP risk levels came back VERY low). Does anybody have experience with this? Even though we are trying to staying positive, some reassurance from other moms would be helpful! Thanks so much.
So What Happened?™
I first want to thank everybody for their kind words of encouragement and support. Even my husband found comfort in sitting down and reading everyone's experiences. So, thank you all for sharing your personal stories--they really helped reassure us and made the month between ultra sounds much more bearable.
So, the good news is, we had our level II ultrasound on Tuesday, and BOTH cysts are gone. They also witnessed opening and closing of hands, which I'm sure you all remember was a biggie as far as Trisomy 18 goes. She looks great, is super active in there, and her brain was perfect!
It really did make a difference to hear all your stories. We were confident this was going to be the outcome, but it's pretty crazy how powerful doubt and worry can be when it's concerning your children! We are thrilled to be expecting this perfect little bundle in about 3 more months! Thanks everyone!!!
J.P. answers from Sacramento on January 10, 2008
Both my second & third pregnancy ultrasounds showed these cysts. they are not on the brain, just in the skull cavity. with the first, i spoke to a genetic counselor & she reassured me that they are harmless & always go away by 24-26 weeks & that they don't do follow up ultrasounds because it's nothing to worry about. with my third baby the cyst showed up at 15 weeks with the amnio ultrasound & they 20 week regular ultrasound it was gone. no need to worry or stress.
R.S. answers from Sacramento on January 10, 2008
Like you, I had a routine ultrasound that showed a choroid plexus cyst on my son's brain at 20 weeks. Of course, I completely freaked out and was distraught. I did more research and found that 99.5% of the time, it's nothing to worry about. In fact, my OB said that it's something they're reluctant to tell parents about because it is almost always harmless but causes more worry than anything else. Suffice it to say, my son is now 2 1/2 y.o., and IMHO, none the worse for wear. He knows all his letters, letter sounds, numbers, colors, shapes (inclu. rhombus, pentagon, hexagon, etc.), days of the week, etc. He's starting to read CVC words. So, no... it did not cause any brain damage or other averse effects. So don't spend your days worrying (easier said than done!) because your AFP risk levels are low. Chances are incredibly high that it will simply go away on its own. Best wishes!
M.K. answers from San Francisco on January 11, 2008
I got the same diagnosis with my third child when I was pregnant. I was terrified even though I was reassured by my OBGYN that the condition would go away especially since everything else was found okay in my amniocentesis. All the worry was for nothing b/c my son came out healthy as ever. I think if your AFP results came back low then the baby will be okay. All the best to you and your baby.
N.Z. answers from Fresno on January 11, 2008
I would honestly tell you that doctors always like taking their precautions. Some thing are minimal but they like to tell their patience wort case scenario. It's like saying: If you get in your car you are at chance of a car accident or whatever it is. I think that everyone has a time in their life when you are put to the test. Trust me the only thing that works and helps is praying. Try to stay positive, and I know that it is hard especially when you are pregnant. But everything happens for a reason. Try not to think about that. Hopefully you will be blessed with a healthy beautiful baby. Be positive and try to keep your mind busy in other things.
T.C. answers from Sacramento on January 18, 2008
I had the same situation with my son. He was found to have a choroid cyst in his brain and I was concerned. Like you, I read up about it and was some what reassured that it was a "normal" thing. His pediatrician was great and reassured me that it is very common to find these on the first ultrasound. Since his blood work was normal she was not concerned at all. At my second ultrasound, everything was found to be normal. I have a healthy 8 month old son who is adored by his 3 yr old big sister. I hope this helps to reassure you and wish you a healthy and safe pregnancy and delivery.
All my best,
J.T. answers from San Francisco on January 14, 2008
I was in your same shoes with my daughter who is now 6. With her, they found multiple cysts on the brain, had us go through genetic counseling (where they tell you anything and everything that can be wrong) and then did an amniocyntesis. Everything turned out fine . . . and they did go away on their own. It is just a scary situation, but hang on and take support from those around you. Congratulations of your little blessing.
L.L. answers from San Francisco on January 11, 2008
Hi J., if its helpful, I have delivered over 5000 babies and have never seen this as an on-going problem! SO, just enjoy being pregnant and move on from here. You will probably have another follow-up ultrasound later when it has usually in my experience disappeared!
L.S. answers from San Francisco on January 10, 2008
I found useful information on a rare condition from NORD (National Organization for Rare Disorders) www.rarediseases.org. I hope this helps.
God bless you and your family!