Photo by: Jose Luis Mieza

For the Kids: Dealing with a Serious Illness in the Family

Photo by: Jose Luis Mieza

If I had a nickle for every time I’ve heard how well I’m keeping things together lately, I’d be able to afford that vacation I so desperately need.

But the truth is, I don’t feel held together at all. I feel like my world has crumbled at my feet and the day to day life I’m living is actually some weird Twilight Zone episode. The reality of living day to day knowing that someone whom you love is very close to you is dying is very surreal.

Some days I am so busy carrying on the regular activities of my kids and our household that I barely feel like I’ve stopped to absorb the realness of what is undoubtedly coming. Some days I feel like I am the only one holding it together and that I have to be the strong one. Some days I feel like the only one who’s knees are going weak at the mere thought of it all.

But mostly, I think I keep it all together day in and day out, at least until the sun goes down, because of my kids. I have in no way of completely sheltering them from the reality of what is going on.

When my mom began treatment 2 years ago (her third go around with cancer) we told the boys that Gramma is sick and she’s taking some strong medicine to help her get better. We talked about how the medicine made her sick sometimes and made her very tired. They knew that the reason they began to see her much less was because she was so tired.

Then when it was decided recently that she would try no further treatment, I consulted some people, got some books and sat down to talk to them. I was sick to my stomach that whole day knowing that I would be talking to them that night at bed time. But I was amazed at how easy it was to talk to them. I was surprised at how much they seemed to have gathered long before I came out and told them. And while they recognize that they will miss her and that she is far too young to be taken from us, they handled it better than I could have even asked.

They’ve been down a similar path when MY Gramma passed away from Brain Cancer, but they were much younger. But even at their young age then (2 and 3) their wisdom was amazing. One day while we were driving in the car I began to cry a little as we reminisced about my grandmother. My then 3 year old, looked at me and simply asked me why I was crying, and reminded me I would see her again.

So maybe, it’s NOT that I am holding things together FOR my kids, maybe its BECAUSE of them. If you’re dealing with a serious illness in your family, the reality is, the children probably know and understand far more than we’re even capable of trying to explain to them. Tell them what you’re able and be sure to let them know they can come to you with any questions, but then be prepared to be surprised by how well they cope!

Lisa Noel, Office Manager and mom to boys, a first grader, kindergarten and one and a half year old. A self described “Jack of all trades, master of none,” Lisa enjoys spending time with her boys, watching them play sports, watching movies, listening to music, writing and taking photos.

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34 Comments

Another resource is a place called Corstone. It's located in Sausalito and they deal with all sorts of emotional resilience. They offer a group that involves families dealing with a serious illness, bereavment or divorce. It's been very helpful with the sudden passing of my husband for me and my kids. It maybe for your family as well.

I just heard of an organization (in Austin, not sure if its nationwide) called Wonders & Worries, a support organization for kids with parents going through serious illnesses. www.wondersandworries.org. It might be helpful for anyone going through this type of thing.

I just wanted to say I am so sorry about your mom. I will pray for you and your family. I too lost someone I Loved verry much it was my daughter. I do agree kids pick up on things faster than we think. Have the grandmother when she fiils like it to tape some stories from her life to share with the kids once she is gone and it will help them remember her.I wish I had done that with my grandparents as my son never got a chance to know them

I read the first part of this post as part of my mamasource email and just HAD to read the full entry.

It's funny (strange) when people go on and on about how well you are doing with wacky life situations... My mom is dying of small cell carcinoma and hit the point where any further treatment would be palliative during my pregnancy with her first grand child. My best description of my 'feelings' during this time was 'hamburger meat'...

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"So maybe, it’s NOT that I am holding things together FOR my kids, maybe its BECAUSE of them."

That says it all. Thank you for sharing.
Lots of love, Linda

www.RivieraPlaySchool.com

First of all, I am so sorry that this is happening in your family and I hope that the time your mom has left will be that of which memories are made from. I cannot fathom what it is like to watch what is happening in your family.

My father was diagnosed with stage 4 Esophagial cancer on 7/21/08 and pretty much went right into the hospital for treatment. I was running around in a fog the entire time...

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I never click on the top articles on Mamasource but todays REALLY struck a cord with me.
I am fighting for the life of one of my children. The part that stopped me is when you said, people said ,they can't believe how well you are holding it together. The Twighlight Zone was a great comparison.
Thank you for this post. I needed it, end enjoyed it. With 3 children you hope you have said and done all that is important...

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Hi Lisa,

I think it's important not to ignore, push down, or minimize what you feel; it's perfectly normal, you know, to feel sad, angry, resentful, devastated, and then happy, joyful, excited, all in waves. Since your mother died of cancer, this is probably triggering your feelings, so that you're mourning your mother again and your mother-in-law.

Talk to other adults about your feelings--much preferably in person...

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Lisa, reading your post really kinda hit home to me. My mom has been ill for the last 4 yrs. Her illness is still un-diagnosed but she is progressively getting worse. She can't walk, can barely speak and can't write let alone hold any of her grandchildren. It's been really hard watching her go from such a vibrant, active young grandma to someone who just has to sit or laydown all day and have everything done for her. Her mind is clear and she so wants to get better and live life...

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Children are amazing and it is so wonderful how they keep is grounded. Two years ago my family and I were in Germany. Well, my husband was deployed. My oldest sister was dying from cancer. My family wanted me to come home to see her before it was too late. The Army said I needed a special power of attorney just to fly my kids home from my husband. It was hard cause where my huband was deployed it was months at a time before I would hear from him...

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Hi Lisa,
I'd like to pray for you & your family during these trying times. I'd also like to extend prayer to all those who posted before me as we are all going through some hard times. I am the mother who tried to hold the family together while battling cancer. What these mothers are saying is correct. These kids somehow have inate wisdom to the point where we don't have to worry about how they'll process all that's going on. However, do keep them in the loop as to what's going on...

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I go through the realization every day that one of my parents will soon die, as they are very elderly. When the phone rings, and I see it is from a family member, I freeze, as I actually think something has happened to one of them. I go to visit them as much as I can and call to talk but don't want to overdo it and be a pest. None of my friends still have both their parents and I am so greatful to God that I do...

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I would like to thank you for this article. I can certainly feel your pain- I lost my dad almost 3 years ago from a form of frontotemporal dementia. He was only 66, and my children (at the time 3, 1 1/2, and in utero!) never really got to know him. Although my 3 year old (now 6 years old) still talks about her grandpa, but she only ever knew him as sick, and that was (and is) very hard for me.
Know that my thoughts and prayers are with you...
Becki

Hi,
my father has had cancer for many years. He never received traditional treatment until recently. The "knowing" each holiday and birthday was his 'last' has been really hard.

Now, my husband has cancer. My girls have known that some day Papa would die because he has cancer all over his body. But now Daddy has it too. My heart goes out to them during this time.

Hugs!

Honey,

I know you are going through the hardest thing you have ever had to deal with in your life. I'm not even going to pretend that I know what you're feeling because I don't. I watch you on a daily basis get up and go through your day to day activities and wonder how you are able to do it...

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