Which Is the Correct Way to Test for a Gluten sensitivity/Celiac?

Updated on July 19, 2011
M.H. asks from Flower Mound, TX
7 answers

Hi Moms,

I was tested for a gluten sensitity/Celiac via bloodwork. Came back negative. I heard that if there are not enough antibodies in the blood, it can result in a false negative. If someone has Celiac, the bloodtest would probably come back positive, since there are enough antibodies present. However, a person can still have a gluten sensitivity, which is what I have. I found out via stool analysis. My Western Medicine doctor told me that stool testing for it is a scam, and that bloodwork is the most accurate way. I am so sick and tired of hearing different opinions! I have heard that stool testing is the most accurate and most sensitive way to test for a gluten sensitivity/Celiac, even more than doing an endoscopy, b/c the parts of the intestine that they test may not be affected. Does anyone have any knowledge on this matter? As usual, this boils down to Western Medicine vs. alternative medicine. Thank you!

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M.C.

answers from Washington DC on

Have no medical knowledge of this. Just feel like answering.

My neighbor has Celiacs. He became very sick. Developed hives, rashes and swelling. He lost about 30 lbs before a dermatologist spotted the possible cause and suggested Celiacs.

For me personally, I would think that a stool sample would be a better indicator than the blood. The blood is more of a 'right now' indicator. Whereas the stool shows what and how well something was processed.

Just my two, unlicensed cents.
M.

3 moms found this helpful
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J.B.

answers from Birmingham on

I work in a patient population where we routinely test for celiac disease. The most current blood test is a TTG and IGA. Some older GI or Endocrine docs check a reticulin, gliadin, and endomysial antibody. We refer patients to a GI doctor if these tests come back abnormal. Sometimes they will do a biopsy to confirm the diagnosis.
Hope this helps. Good luck and feel better soon!

3 moms found this helpful
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J.K.

answers from Phoenix on

My blood work and biopsy came back negative for gluten allergy/celiac's test BUT my chiropractor did muscle testing and it was a very high allergy. The highest possible number which meant I was highly allergic. He treated my allergy and my life hasn't been the same. My symptoms totally went away and I've never felt better. This was 2 years ago!! Good luck!!

This was also the exact same outcome for my oldest son. He's 17 now and the blood work came back negative. The muscle test was positive and the treatment worked and his symptoms went away. They didn't do the biopsy on my son...

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B..

answers from Dallas on

My sister and I both have celiac. She got so bad, they were doing tests for cancer and other terminal diseases. Her blood tests and stool tests came back negative. A gut biopsy, or endoscopy are the most accurate. Her test finally came back positive with that. Many doctors are not educated well on Celiac. In fact, many doctors think Celiac isn't even real. Blood testing is notoriously inaccurate.

3 moms found this helpful

M.H.

answers from Raleigh on

My gastroenterologist told me that the most accurate way (and only 100% fool proof way) of finding out whether you have Celiac's disease is with an upper endoscopy. Now, having a gluten intolerance and Celiac's disease are two completely different things. My mom has been tested for Celiac's and it has come back negative, however, if she eats any sort of gluten, her whole body aches. She has chosen to go gluten free because she knows that her body obviously has some sort of intolerance to gluten. I don't think that there really is any "test" for a gluten intolerance other than does cutting gluten out of your diet make you feel better? If the answer is yes, then keep the gluten out. If you think you may have Celiac's disease, then you really need to get an upper endoscopy done to 100% confirm this.

2 moms found this helpful

T.S.

answers from San Francisco on

If you know you are sensitive to gluten then why do you need a test to confirm? I don't think any test is perfect, there is always a margin of error (though my daughter's GI doc said they can actually see it with an endoscopy.)
Just cut all gluten from your diet for at least two weeks and see how you feel :)

1 mom found this helpful
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C.W.

answers from Santa Barbara on

Approximately 1 in 100 Americans have Celiac Disease (CD). Blood testing, like Jenny mentioned, tests for tTG;IgA. The blood test is >95% accurrate however, diagnosis is based on biopsy of the small intestine. Sounds very simple but the majority of the time (97%) it is misdiagnosed and often takes up to nine years to determine.

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