Questions for Folks Who Have or Love Someone Who Has OCD

Updated on November 30, 2011
L.C. asks from Dover, DE
8 answers

Hi Folks!

First of all let me be clear. I am talking about the real deal. Repetitive or ritualistic behaviors done to assuage an irrational fear that plays itself over and over in your mind. This is bigger than, "I like things just so."

If you have diagnosed OCD or live with and love someone who does, what are things, aside from the meds, that help ease or calm you or them down or help you or them to focus.

I don't want to enable, I just want to know what's going on and how I do or don't play a roll in making it better or worse.

So what makes it better or worse for you?

Thanks

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J.S.

answers from Hartford on

Cognitive Behavior Therapy can help the behaviors that are intrusive/disruptive to daily life. They might not be eliminated, but reduced. It's not really about "not enabling" the behavior or "not encouraging" the behavior. A lot of it is about insecurities, fears, anxiety, and right in the name of the disorder... Compulsion. Don't accommodate it and make it easier for the person to follow through with it, but if the person starts the behavior don't chastize them for it or criticize them for it.

I try to use my OCD and my middle daughter's OCD to an advantage. The behaviors that can be beneficial are "ignored" and the ones that are disruptive are approached with redirection and methods from CBT. It's not easy and CBT doesn't work for everyone. It's about rewiring the brain, habit, anxiety, reteaching, and so much more. It's very complex. You can't just "decide" to change something.

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G.B.

answers from Oklahoma City on

You can't enable a person with OCD, their compulsions have to be finished or they come back to it and do it even more. Sometimes it's just one of those things you have to let them do. If it an issue for you then you have to decide what your interaction limits are.

For example:

You pick them up to go to Walmart and by the end of the street they are frantic they have to go check the locks on the doors, you go back, they are, of course locked, you start again, same thing maybe different item needs to be checked, again you go back. By this point I am sorry I said I would take them anywhere.

I have one friend who was like this a bit and it drove me crazy. I got to the point I had a mental check list and before we got in the car I would say "Hey, did you check the washer to make sure it was off? Did you turn off the fan in your room? Did you push the doors on the fridge and freezer to make sure they were closed tight?" etc... it helped but as time went by there would be more things that would get added to that list.

The chemicals in their brain are not functioning right. It is not something that can be enabled or stopped by anyone. Medication and therapy work together. The med interferes with the chemical reaction in the brain and stops the thoughts if it is working right and then the person has to relearn how to react with their world. It is a long and hard process. They had some link in their thoughts as to why the process helped and since it did they can sometimes think that doom will follow if they don't. That's why the therapy is so important after meds have been started.

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S.S.

answers from Los Angeles on

My sister has severe OCD. I used to try to "work" with her but ended up enabling her which probably made her worse (one of my biggest regrets in life). I've now stopped interacting with her on a daily basis because she refuses to get help (CBT works best but she needs meds first to even benefit from CBT b/c she's that bad). She hasn't done laundry in ages and will starve herself before she makes a decision about what to buy at the grocery market. Decisions are her big thing - she has to make the perfect decision and really what is the "perfect" cereal to buy, right? It's really sad. If you know someone who has OCD, get them help BEFORE it gets really bad. She used to be completely functional, a big acheiver and then the OCD got really bad right as she graduated college and now she can't do anything. I hear reallly good things about CBT so if your loved one is up for it, find a good CBT specialist so h/she can be equipped with the tools to handle their OCD.

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E.B.

answers from Seattle on

I have OCD. It is from a fear of Germs. I refuse to share food/drink with people, I dump fists rather then shaking hands and if I have touch something or someone, I must wash my hands before eating. Or I will not use my hands to eat things (i.e. if i wanted to eat chips, i could not scoop them up in my hand I will either wait and wash them, or just not eat). I go as far as not being able to kiss y husband on the mouth most the time. we are cheek kissers here. AND it would be a cold day in hell before he put his tongue in my mouth(good thing he totally understands me and my issues:))

How do I cope, I honestly have been this was for so long, it is just a way of life now. when we are out I carry Sanitizer. Or make a break to the bathroom frequently to wash my hands.

If my kids want to share say a bag of chips or something you have to dip your hand into, I do it for them. Having their hands near the food freaks me out.

It is more of a thing where it is just my daily routine or practice, to avoid the things that freak me out with this OCD. It is when I do not stay within my comfort zone, that I start having anxiety attacks about it.

I also have this thing all my numbers have to be set to an even number. Like the heat in my van is on a dial that turns up or down,,,the number stays on the front of the air system. If it is on an ODD number I have to switch it. For whatever reason ODD numbers in my head are hard to look at. TV volume is another good example. If it is not on an even number, I will have to move it...Just knowing it is on an ODD number will make my mind race until it is fixed.

Again both are something Ihave dealt with most of my life....at least the 20 years I can remember. I have never had to take medication for them....I did work through them while in counseling. But also was encourage by my counselor with this motto..''If it is not broke, then do not feel you need to fix it'', meaning....If these are things I am ok with dealing through on a daily basis, just embrace them. Understand they are irrational and move through them. Best advice ever....Because I was always very down on myself that I was like this.

My youngest(who is three) also has severe OCD. He has many learning and behavior disorders..Sensory Processing Disorder(SPD), Oppositional Defiance disorder(ODD) and High Functioning autism(HFA).

It was not until this summer we realized how bad his OCD's we effecting his life.

They make mine look like a cake walk.

I have to do EVERYTHING for him. If someone else attempts to do so, he will flip off the deep end. And with the ODD, that can be very scary. I have had him come at me with all types of crazy stuff, like the day he had broken into the tool shed in the back yard, got out on of the sharper yard tools and then come at me with it. I have been given black eyes, bloody lips, you name it I have had him do it to me.

We can not take him anywhere, that a big crowd could freak him out. Like Church, or bigger family functions, or a play ground. The uncertainty, the stuff going on around him freaks him and and he fly's off the handle.

He has a compression suit that he wears most of the time to help ward the fits off. He also wears a pair of highly muted shot gun ear muff's. I had to go and buy them at a specialty store. We call them his magic ears and he was able to put stickers on them and make them very special.

He also has to have the house in a certain order. His stuff has to go back in the same places they always go. If they are moved, not put back or he is unable to find them, lord watch out.

He is a very delicate soul. I never know really when he will blow up, or when he is going to be mister amazing. When he starts freaking out, there is no stopping or calming him down. And just about anything can set him off.

To say we have to walk on egg shells to keep him happy, would be an understatement.

He is currently in the process of getting into the IEP PREK program offered through our school district.

His conditions are so strong, that he is qualifying for the FULL day program.

On top of this he sees a Speech Therapist, Occupational Therapist and Autism Specialist.

Once school starts he will not only still get those services outside of school, but will receive them during the school day as well.

I am hoping the structure the school day can bring him, will help calm the OCD issues we have at home. I am hoping that it will give me enough time during the day to make sure that the house is in order for him getting home.

We are still to try the Elimination diet with foods to see if that helps him with some of his issues. We have yet to start that process though. Waiting on a nutritionist and food allergen person for the Professional assistance with it.

OCD are not that horrible. At least the ones that I have dealt with through out my life and the life of my son. I think Personally, they are harder to watch people deal with, then they actually are to deal with them. Your brain sets up buffer's around them. I know when one of mine has been triggered and I know what to do to ward off or control the anxiety I can get going through them.

It is all about educating yourself and allowing your brain these functions. I think if you try and fight it, it only makes things worse. Owning it and finding way to just deal, has been the best thing for us.

I hope this helps:)

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T.J.

answers from Seattle on

I don't have the germ thing, just the rituals and doing things at certain times, a certain number of times, and having things look a certain way. It helps when people remember that and consciously think about the way they are putting things back, or just not laughing at me or helping me remember that I did turn that off/lock that door, etc.

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D.S.

answers from Norfolk on

Hi, L.:

Ask a Narrative Therapist or
check out a book on Narrative Therapy.
Just a thought.
Good luck.
D.

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J.W.

answers from Lexington on

CBT (Cognitive Behavior Therapy) can help. DBT (Dialectical Behavior Therapy) which teaches mindfulness helps relieve the stress a person feels, and thus may help keep symptoms lower.

Don't try to force or pester a person to stop the ritual, as that seems to just add more stress and then they not only may have to start over, but it may be longer than before. Add the time into the schedule for what they have to do. Again, CBT may really help keep that down.

Some medications (like some used for anxiety and depression) may actually be making it worse.

Some physical issues may be adding to the stress a person feels - it is not all emotional stress! Check out: http://itsnotmental.blogspot.com/2008/02/stress-immune-re...
Getting the person as healthy as possible can really help! There are books you may be interested in - Mark Hyman's "Ultramind Solution" and J. Wolfson's "It's Not Mental" and even Stauth & Bock's "Healing the New Childhood Epidemics"... Don't dismiss the books aimed at helping children just because the person you are trying to help is an adult! They are often the most leading edge ones!

Some OCD may actually be a reaction (autoimmune?) to streptococcus. Check out the book "Saving Sammy."

Oh, and disposable plastic gloves can really help with the person who can't stand "yuck" whether it is handling food or touching whatever!

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S.F.

answers from Utica on

I suffer from OCD and I think the one thing that has helped me in the past is to be as honest as possible - I will admit that its very embarrassing to have these thoughts that you have no control over in your head that make you feel insane but its not your fault and for anyone aroud you you need to inform them as much as possible so that they can at least attempt to better understand what the person with OCD is going through. I also did Cognative Behaviour Therapy for a while but I found it stressed me out even more. But one thing I did learn while doing that was that there is no way better way to help to keep yourself from getting better than to have others do things for you. Meaning if the person has OCD and is asking you to check the door or the stove or whatever for them then you are enabling them and they are not working through their anxiety in a way that will help them
Its a real crappy thing to have but it is managable (Unfortunately you have to find what works for each individual though)
Best of luck

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