Looking for Other Parents of Children W/ PDD-NOS

My 16 year old has Asperger's..... which could be the same thing as PDD NOS.... there seem to be new names all the time for the same thing.

Anyway, being a toddler wasn't too bad for us. He would play by himself and with others, but that usually didn't go well because they didn't want to play like he wanted and he'd get frustrated. But we did have lots of play dates.

He was over-focused on the computer when he got into that at age 5. He'd forget or choose not to go to the bathroom and wet his pants while he played computer games. You couldn't pull him off. It was like a drug.

In general, it was easy to handle him, though he would forget instructions (he still can't handle more than 3 directions at a time "go to your room, get your shoes, put them on"). When he was younger 1 direction was often too much and we'd have to repeat it over and over. But it got better.

He didn't like loud noises and would freak out sometimes. He still doesn't like them but he's learn to tolerate church music etc.

Hi J.,

I am a speech-language pathologist, and I have a parent-child therapy program called S.T.A.R. Music (Speech Therapy And Recreational Music). Many of the families in my program face similar challenges to the ones you described in your post.

One of the many benefits of a small group program is that families have the opportunity to meet other families with similar concerns -- and can arrange play dates with those families. To find out more information, please visit www.startherapyprograms.com, or feel free to call me ###-###-####.

S.T.A.R. Music also sponsors a free social group called Play Pals. We have several outings a year, which also provide families an opportunity to meet other families, and enjoy a fun activity together. You can enroll in Play Pals by visiting www.startherapyprograms.com, and clicking on the Play Pals icon (the orange dancing children).

Please let me know if I might be of service to you and your child.

Warm Regards,
S.

Hi J.! I'm not sure how much research you've done...but there have been several news articles about the toxins/chemicals in our homes and how they are contributing to the issues of Autism, forms of ADD, etc. I can help you get the toxins/chemicals out of your home and hopefully help your son, if just a little bit! I have a good friend in NJ whose son was diagnosed with a small form of Autism and she's switched her products and has noticed a difference in him.

If you'd like to hear more, I'd love to speak with you!

Good luck to you, your son and your family!

T.
____@____.com

There is a researcher in Garland named Susan Owens who has a low-oxalate diet that has helped a lot of autistic children. We saw the severe asthma, eczema and food allergies disappear permanently after 6 months on this diet, and the diet isn't really that hard. If your child is at a point where he eats plenty of foods, you might look into this. Her Yahoo group is called trying_low_oxalates and there are oxalate food lists on the internet.

Also look up Amy Sosa on yahoo groups - She just went to due process with Coppell ISD and now has her son in a private school in Carrollton. She knows the area very well and is a great resource.