Fibromyalgia - Fort Dodge,IA

Updated on June 02, 2012
J.S. asks from Fort Dodge, IA
50 answers

Hello - I know this isnt a "mom" question, but I am at a loss and am wondering if anyone else has had any problems similar to mine.
First of all a little history - I was in a car accident when I was 18 (I am now 33) after seeing tons of doctors for the back pain, they diagnosed me with Fibromyalgia. I have tried about everything from muscle relaxers to pain pills. For the last 10 years I have been "dealing" with the pain prescription free (more so because I hated all the side effects that came with all the different pills).
Within the last 3 weeks I have had one major muscle spasm, and dozens of smaller ones. I have been in tons of pain, and am scared of doing too much because I know that I will end up in bed until my back decides to "settle down".
My question is - does anyone out there have this "syndrome" and have you had any success with any of the newest and latest drugs out there. I am desperate to try and better regulate my back issues. I have a Dr. aptointment today, but wanted some advice from anyone who has dealt with this.
Thank you in advance for all your help!!!

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A.H.

answers from Lincoln on

Hi J., I don't have these symtoms but just had a suggestion. I am so sorry that you have been in so much pain for so long. It sounds like you don't always care for the drugs you are given. I would suggest a chiropractor. It would be a great drug free alternative. I have had my concerns about chiropractic care but since seeing one i have been pain free (migraines). I can count on one hand how many migraines i have had since i started seeing my chiropractor. It has been awesome!!!! And i love not having to take a bunch of pain meds. Good Luck!

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L.D.

answers from Rapid City on

was diagnosed with this about 11 years ago, given 6 mo. to live and by aggressively dealing with my issues, am pretty symptom free today.
for me, it was a spiritual issue and although this site is not for everyone, there is a free online conference (www.beinhealth.com)with pastor henry wright that speaks on the roots of this particular issue. once there, go to conference section and then there is a watch online box on the lower right hand side if you are interested.
peace! L.

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L.R.

answers from Milwaukee on

I would suggest chiropractic care but you would need to find a chiropractor that will be gentle with you. Also I understand that Magnesium malate and Magnesium Glycinate are also helpful for fibromyalgia.

Good luck!

More Answers

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S.J.

answers from St. Cloud on

I have Fibro too. I have a weekly chiropractor appointment which helps a TON. I dont do medicines. I have found, sa have others, that reducing white flours and sugar intake dramatically helps the symptoms.

1 mom found this helpful
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B.A.

answers from Minneapolis on

Hi J., I work at a natural health clinic. I am a massage therapist and work with people with fibromyalgia. Many people have chronic inflammation in their body and don't even know it. My advice is to seek a natural medicine doctor. Go see a Kinesiologist/chiropractor/Acupuncturist. Someone that has all three degrees would be best. They can do wonders for your condition. Make sure to get a referral from a friend or try and find someone that's been doing this for over 10 years. Many insurance companies will cover this. In the meantime try taking a product called "CALM" or something like it. It is simply powdered magnesium.....you drink it with hot water(like a tea) 2 times a day. I take this for my heart erythmia and it helps instantly. Magnesium is a muscle relaxer and may help those spasms. These are my suggestions before you start pumping yourself with pills.
Really look into the inflammation angle......I hear it from the doctors all the time. B.

1 mom found this helpful
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C.M.

answers from Minneapolis on

Magnusium and exercise works for my best friend. Chinese medicine, herbs and acupuncture made my sister's life livable again. Good luck

1 mom found this helpful
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J.R.

answers from Minneapolis on

J.-
First of all, I am so sorry to hear that you are living in pain! I know that removing toxins from the body can really help with symptoms for Fibromyalgia and I work at a Chiropractic clinic where we offer an OUTSTANDING detoxification/nutritional cleansing program. We are holding a free community workshop tomorrow (2/9) and if you would like to join us, we would love to meet you. Our doctors also are certified in using and exremely gentle chiropractic technique called "The Activator Method". Please call us at ###-###-#### if you would like to join us for the free workshop tomorrow or if you would like to meet one of our doctors for a free examination and consultation. Hope to meet you soon! J.

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B.L.

answers from Grand Forks on

I was diagnosed with Fibro many years ago. For me, massage helps when I am hurting the most. Thankfully I don't get any headaches, but my back gets those nasty little spasms alot. Other things that help me relieve symptons are, hot showers, cold packs (for any inflammation), electrical stimulation and massage. I also try to rest when I am experiencing bad flare ups. I can go months with only minimal symptoms, so life is good and that is when I try to be more active, exercise, etc. During a flare up, I alternate Ibuprofen, tylenol & pain pills. I take alot more hot showers and dh will massage my sore areas and that helps me alot. I need a soft bed or my sides/hips are miserable--we bought a sleep number bed, which has helped, too. For the research I have done, everyone reacts so differently with the problems and treatments, so you just need to keep trying to find what works for you. Hang in there. you can email me privately if you want to. ____@____.com

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H.K.

answers from Green Bay on

Hi J. - I don't personally suffer from the condition, but heard from a good friend of mine who has it that water aerobics does wonders for it - You should join the Y and give it a try - It can't hurt, and will save you money and side effects of meds :-)

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D.M.

answers from Des Moines on

Have you tried Lyrica yet? My daughter like you has had severe back problems/ pain for 8-9 yrs. She also quit taking any kinds of meds due to the fact she felt drs where just medicating rather then treating. She did get trigger point injections with some relief until she was in a car accident that made her back MUCH MUCH worse with constant pain. 4 months after the accident the pain hit her hip and leg. After going to ER once and being accused of being a "naracotic addict looking for a fix" and sent home saying nothing was wrong with her she got much sicker to the point she actually lost 4-5 days. Finally a doctor hit on the complete syptoms and she was sent back to the ER with a very high white count. 3 surgeries, 5 days in ICU and 12 days in hosptital later the bacterial menigitis she had was cured. On the bad side she had to drop out of college for the semester and was in a lot of pain from the back and hip surgeries (she had a total of 5 abcesses drained on back and hip)On the bright side the pain is now LESS then before the car accident. So now for the most part unless the pain is real bad she takes nothing.

Lyrica is suppose to be the new Fibro drug. Although I also have the disease I too take nothing most of the time.

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J.L.

answers from Milwaukee on

J.,
One of my students was diagnosed with Fibromyalgia and she would have to get massages when it was really bad. I don't know if it was a specialist, or a regular massage therapist.
Good luck!
J.

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M.M.

answers from Omaha on

Hi, I also was dianosed with Fibrymyalgia. For about two years I was in denial about it. Then I went to a support group meeting for it, and after listening for a while.. I knew I actually had it. I left the meeting frustrated and never went back because it seemed to be more about whining about it, then actually coming up with problem solving. I have heard good things about the new drug for it.. starts with an L.. I have not taken it because when I read the side effects I just was not willing to try it. I could change my mind someday.. also its fairly expensive. It will really help you to go see a rheumatologist.. sp... What I take per the Drs. orders is flexuril... only I cut them up and take only a fourth of one pill.. else they will knock me out and make me feel super drugged the next day.. I take a lot of ibprofen when it is not horrible, but just icky. What I also know too is that the lllness strikes mostly intelligent women in their thirties. It also goes in waves of how bad it is.. sometimes I am nearly symptom free.. other times I have to stretch my legs in the morning in order to be able to bend them. I hope this is helpful. Its a hard thing to deal with mainly because they have not been able to conclusively find out what causes it... or how to treat it super successfully. By the way, in small small doses the flexuril will help your back too.

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M.G.

answers from Minneapolis on

OPC-3 is an antioxidant and has anti-inflammatory properties. I know people that have found relief from using it. If you want a brochure, send me a message. I can also connect you with others that have found relief for fibromyalgia with OPC-3.

Diet and exercise are also important. Do you eat wheat? You may want to go wheat free for a while and see if it helps.

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B.J.

answers from Minneapolis on

Hi J.
If you will take the time to email me, I will send you a letter from someone we know who sent it to us about her fibromyalsia success. A lot has to do with how your body processes-- or should I say, doesn't process proteins properly.
Like this gal-- I suffered from restless leg problems and didn't want to use "pharm. drugs" and consequently I'm now a wellness coach part time-- health trainer- and there are things that might help you too if you'll email me.
I can't apparently say more on this venue.
My email is ____@____.com
I'm home this week til Feb. 14th- then I have to leave town until March to help my father who is ill, but will be available via cell and computer remotely and occasionally.
If you do email-- write momsource so I identify who the email is from.
Have a great weekend and don't give up trying alternative things.

About me 48 yo perfusionist, coach, and mom to 7 yo twin girls.

B. J

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J.H.

answers from Minneapolis on

Hi J..

I would be happy to talk more about Fibromyalgia with you if you wanted to email me at ____@____.com.

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K.B.

answers from Minneapolis on

J. -

I am 36, and have been dealing with fibromyalgia for 20 years. My recommended med regimen used to include pain meds, anti-spasmodics, muscle relaxers, sleeping pills and anti-inflammatory meds. I felt so yucky from the drugs and some of them caused even more stomach problems, too, that out of desperation I went looking for other options. What finally worked for me was chiropractic care and acupuncture (acupressure or electronic needleless acupucnture are good alternatives if you don't like needles). Now, I go to the chiropractor every 2-4 weeks, depending on how I am doing (more often during flare ups) and on very few meds for the FM - I use the pain meds maybe one or two days a month, the muscle relaxers about the same, and do not use the others at all (I do take benadryl sometimes at night to help go to sleep). My doctor has been very supportive of all this, and I still go to her regularly too for monitoring and check ups and such. It is definitely not the only option out there, but it works for me, better than anything else ever did. Best of luck to you!

K.

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G.K.

answers from Milwaukee on

Hi J., I was in an accident when I was 19 years old. I had a skull fracture, bleeding in the brain and a messed up body. I am now 29 years old and 2 kids later and I have been is so much pain. I also have seen alot of doctors and they said that it may be Fibro. Anyways all they wanted to do is give me drugs and I refused to take them. Some of the things that I have been trying are removing all wheat and soy from my diet. It has really been helping but it is hard to do with all the temptations out there. I also go to a chiropractor. It does help. See if you have a maxamized living clinic in your area. I want to try message some time as well. Good luck to you. What ever you do try to stay away from the drugs... G.

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A.F.

answers from St. Cloud on

Hi J.! I just wanted to tell you that I have gotten rid of my fibro symptoms by going on a low glycemic diet. I am overjoyed! Like Sarah J, I cut out all white flour and refined sugar.
Beware of people peddling their wares of the natural miracle pills. They may be fine supplements to take but as far as taking away such severe pain, don't buy it. I took Xango, Noni, Melaleuca, etc.... and none of them took away my pain. I took Magnesium and that helped for a long time, now I don't need anything!
"The Low-glycemic Revolution" is a great book to read. It's so simple! You don't have to buy into a company, purchase special combinations of pills or anything. You just eat in the way that is healthiest for your body!
To your health!

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H.G.

answers from Minneapolis on

J.,
I have the same thing and have been dealing with it since I was in my late teens, too! I was hopeless and sick of pills and then I found something that works and is DRUG FREE! It's a bracelet that has magnets on the back - for me within minutes of putting it on my pain was better. It's been nearly a month now and there are still times I'm in pain, BUT I can actually exercise, work, cook, clean and other normal things without fear of severe pain!
The guy I got the bracelet from is from Jordan, MN. I don't have his info with me but I'll try to find it. He had a booth set up in the Burnsville mall last month - not sure it's still there but you could call and check it out.
BEST OF LUCK --- I know it's awful being in pain and the majority of people don't seem to understand!!

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S.W.

answers from Des Moines on

J.... Im going though the same thing I got n a car wreck in 04 and they just told me i have FM Im on gavapenton idk if thats the right spelling but it works wonders :-))

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T.L.

answers from Minneapolis on

Hi J.
Have you tried a chiropractor. They have done amazing things for my health issues. Good Luck I hope you feel better soon.

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M.W.

answers from Des Moines on

Wow! You've gotten alot of really good suggestions. This is just a thought. Arbonne has many wonderful products that I know would be a benefit to you. Their SeaSource Detox Spa line, Herbal Muscle Massage Gel, and PhytoProlief (an all natural balancing cream)are just a few that I would love to see you try. Be it from me or another consultant. I have many testimonials that I'd be happy to share with you on how Fibromialgia sufferers have benefited. My wesite is www.MartyWallace.myArbonne.com Feel free to contact me for more information. No pressure or hounding to buy anything! I hope and pray you find relief soon.
I'm a 50 yr. old mom of 3 great adults :)

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S.G.

answers from Minneapolis on

J. my mom has fibromyalgia. She has not had to take any medication except ibuprofen for it, but I do have a suggestion. I don't know if you eat or drink anything with aspartame in it but when my mom went off of aspartame her symptoms became much more managable.

GOOD LUCK

S.

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J.E.

answers from Minneapolis on

Hi J.,
If you are not familiar with Mona Vie, you might check it out as a way to help. My good friend who introduced it to me is a massage therapist who has many clients who suffered, as well as her husband had severe fibromyalgia. Mona Vie is an organic superfruit juice blend, primarily made of the Acai berry. There is no other food in the world that has more antioxidant properties to help manage inflammation. And, as a juice, your body absorbs 100% of the nutrition quickly.

If you'd like more information, feel free to call me at ###-###-####, or check out www.mymonavie.com/jesnough. We do weekly tasting parties to share more information about the juice, and I'm also happy to chat one on one!

It's made a WORLD of difference in our family, and might be a good help for you, too. I can also put you in touch with my girlfriend to hear first hand her husband's experience drinking it, or that of her clients.

Kind Regards-
Jen

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K.S.

answers from Minneapolis on

I'm so sorry you have this. I have been diagnosed with Chronic Fatigue Syndrome for almost 12 years now. There are many overlapping symptoms between the two diagnoses and in fact some experts believe they are just different subsets of the same illness. My pain is primarily located in my upper back and neck. Muscle spasms that are unbelievable. Like you want no one to dare touch them. The primary help I've gotten with the acute pain is going to Physical Therapy. Heating packs, electrical stimulation, and that sort of thing. Of course combining that with a muscle relaxer seems the best, but I get so looped on those meds. I know this sounds the reverse of what makes sense, but preventing the muscle spasms in the first place is key for me...and exercise has been the only real thing to help. I have to warn you that I've tried what feels like EVERYTHING. Special diets, supplements, and on and on. Chiropractors have helped sometimes initially, however my pain returns worse than ever. One great way to start the appropriate excercise is to go to a special clinic for Fibromyalgia. There is one at Abbott Norwestern. They have a healthcare team that really know their stuff. I have seen/heard of the results of people coming out of there. I actually go to our local YMCA and take Yoga. It's pretty intensive, so I just do it at a level that works for me. It has been one of the greatest things to help me. The other is water exercise. Some Y's even have special classes for Fibromyalgia. The key is a warm water pool! To help you live with this diagnosis, especially without meds, I highly recommend taking the time and money to take care of yourself. If you get on a plan or system that works for you, you feel like a new person and so better able to face the rest of life. Gentle hugs, and best wishes.

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L.W.

answers from La Crosse on

J.,

I am so sorry you are suffering from this. I have a friend that has battled it for years. I have a suggestion for temporary relief that you might try - get a lotion containing menthol or sperimint to help sooth the muscles. It's rather "homeopathic" but at least it is safe and something that can work until you find a perscription.

Lisa

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J.R.

answers from Minneapolis on

I also have Fibromyalgia and Lupus. Surprisingly, last Summer, I quit drinking diet soda with aspertame in it and a lot of my pain issues went away, especially in my neck and shoulders. I couldn't even believe it.
Stress is also a big no-no for me because all of the nodes in my body swell up a lot and pinch off nerves. I know it's hard to avoid stress sometimes but if you are ever under a lot of stress, be sure to stretch a lot.
Good luck to you,
J.
34, diagnosed with fibro at 15.

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K.B.

answers from Minneapolis on

I have sciatica and a bulging disc, and hypothyroid disease. My neighbor has fibromyalgia and we tend to have similar symtoms. I know my neighbors doctor told her to exercize at least 5x per week.

We have been doing Yoga together (with a dance theme) to make a little more fun. I am a trained dancer and always got bored with Yoga but we love Yoga Booty Ballet (can buy at Target).

This seems to address stretching out focusing from the inside out through relaxation since stress is major a trigger.

We are also using an inversion table which is when you hang upside down from your ankles in order to fully relieve pressure in your back. I wouldn't do this without talking to your doctor, but this and the yoga seems to be helping more than anything else we have tried. There are expensive inversion tables and cheaper one. I don't see any reason to get the more expensive one unless you plan on hanging for really long periods of time. I found mine on craigslist for about $100. My kids get a kick out of it too!

Also carrying extra weight is h*** o* your body and can also cause pain. 5 lbs of fat on your stomach= 15 lbs of pressure on your back.

I would love to start a support group for syndromes like this that doctors don't seem to know much about. If anyone if familiar with Yahoo groups or meetup.com and would be interested in such a group, please let me know and lets set something up.

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H.H.

answers from Milwaukee on

There is hope!! Just e:mail me at ____@____.com and I would be happy to introduce you to 2 ladies who had life changing results! They would love to share with you how they went from debilitated to great health! You have got to hear it from them. Just gather the information and make your own choice. I encourage you to not say no until you know!
H.

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R.S.

answers from Fargo on

J.,
I know of a gal around my age (40) who suffers from fibromyalgia. Her name is Barbara and if you're interested, I can lead you to her. She's got a website called "Gifts in the Rubble," which you can maybe Google. I hope you can find healing soon!

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H.B.

answers from Milwaukee on

Sorry if this has been mentioned (I didnt read through the previous posts) However, get your VIT D levels checked. Taking a supplement of Vit D3 (has to be D3 not just D) has amazing benefits not only for Fibromalgia but general heath.

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A.

answers from Minneapolis on

If you are in or near the Twin Cities, I HIGHLY recommend Physician's Neck and Back Clinics.

http://pnbconline.com

Their physicial therapy methods seem to far outperform those of traditional PT clinics. I went in there barely able to walk and was much improved in a week or two and back to normal in about a month.

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A.K.

answers from Minneapolis on

Hi J., I am 37 years old, a mother of 1 with 1 on the way. I have had 2 back surgeries and am now fused in my low back, following that lots of meds, phys therapy etc. which put me into the chiropractors office 5-6 times per year. When my daughter was about 1 I got severe excema on both hands, anyway I then took more of a natural aproach, mostly because alot of drugs don't work and cause more problems in the long run. I found something that I believe could be a huge benefit to you, I understand with the pain your in, your whole family will benefit as well. I do not have fibromyalgia but my girlfrien does and has gotten alot of relief. I have not had to get an adjustment in at least 3 years. Check out this website and contact me when you do, I rent and sell the equipment. www.chidvd.com my cell number is ###-###-####. thank you Jennifer, I hope that I can help and I look foreward to talking to you. A.

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J.M.

answers from Los Angeles on

Hi,
I am a second year medical student that just had the opportunity to coordinate a talk with Dr. Nancy Selfridge. She is a director of integrative medicine at an HMO in Madison, WI, as well an expert on fibromyalgia from both a physician and patient standpoint. There is an excerpt from her book, 'Freedom from Fibromyalgia' here http://www.booksthatteach.com/books/fibro.htm

I hope this might help. It doesn't work for everyone, but it works for many people.
Best wishes.

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J.S.

answers from Davenport on

J. S.
I have not found any drugs that work. I was diagnosed with fibro and lupus tendencies about 19 years ago. Tried drugs, didn't like the side effects. You might try chiropractic care. But you need to look for one who understands the disease. Attitude is the main thing though. You just have to live your life. If I ever woke up in the morning and didn't hurt...I would know I died. But as it is I get up every morning and decide that I am not going to let it win. Besides the pain, I have a low immune system so I get every cold and virus that comes around. I went to work for a chiropractor and she has helped me, and I have seen her work on others with Fibro. It really does help!!

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L.P.

answers from Minneapolis on

I know a couple postings have touched on this, but I would definatly look into chiropractic! I am 6 years into my 7.5 year schooling to become a chiropractor, and in that time I shaddowed a Dr. who was currently treating a woman with Fibromyalgia. She swore by chiropractic. She was to the point where after a treatment she would be pain free for a couple weeks and then when the pain started coming back she would go back in. (It may take a little while to get the pain managed to this point, but I have witnessed how chiropractic really has helped with this!)

Good Luck!

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D.G.

answers from Minneapolis on

J. - if you're open to anything different/complimentary to the medical world, I would highly recommend a couple of different chiropractors. Plus, I work with a nutritional supplement company that has helped many folks who suffer with fibromyalgia. Supplements can't cure anything but they provide nutrition to your body so it can do what it's supposed to do. check out Dr. Ray Strand's website http://www.drraystrand.com/. He's a leading medical doctor who works with nutrition. He became involved in nutrition due to his wife's chronic condition with fibromyalgia. I have his protocol for fibromyalgia I can send you if you are interested.

Best wishes,

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M.R.

answers from Minneapolis on

My husband has had fybromialgia for 15 years and has managed it for that time with very little medication. He does have occasional flair ups, but is able to control it for the most part. The key for him is exercise, exercise, exercise.He makes sure that he works out for at least 30 minutes 5 days a week. To moderate seratonin levels, it seems to be important to do as much outside as he can.

The other key is to make sure that he is able to sleep as well as he can. This is difficult for people with fybro. It involves a well established sleep routine, including lowering the lights during the evening, reserving the bedroom for sleep and ..., not for work, watching t.v., playing, etc. Making sure that the bedroom is very dark helps. A sleep routing like kids have...brush teeth, storytime, lights out. When he is having trouble...waking up in the night, the is medication to help sleep through the night, but that is the only thing he takes.

The hardest thing is to work out when he is having a flair up because it is uncomfortable to move when he is in pain. But if he makes himself do it, the results are worth it in only a day or two. He has recently taken up yoga to help with the back and tightness issues and this seems to be quite helpful.

Hopefully some of these suggestions will help. Good luck.

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K.M.

answers from La Crosse on

Oh J., I know exactly what you're going through. I was diagnosed with FM many years ago and I, too, have muscle spasms in my back, among other things. I have finally found a combination of prescriptions that help! I was reluctant to "pop pills", but I got to the point that I'd try anything. I now take Hydrocodone and Gabapentin (also known as Percocet and Neurontin.) I've been on exactly the same dosage for 3 years, so no worries about developing a tolerance and needing more. From what I can tell, that new Lyrica (I think it's called Lyrica) medication they're advertising for Fibromyalgia is a combination of the 2 drugs I mentioned above.

FM is sometimes referred to as a 'pychosomatic' illness, but don't let that hurt your feelings. It is true that stress can cause more pain, but from one FM sufferer to another, I know it's not in your head. Another thing that helps me is Relacore-as it really does reduce anxiety, and we both know that when the muscle spasms start, we get very stressed because Mommys can't afford to get sick!

Good luck, honey, I'll be praying for you!
Kim in Wisconsin

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L.L.

answers from Dubuque on

Hi,
I do not have Fibromyalgia but I just got this email today.

Please see testimony below:

I do not know where to begin on how Vivix has changed my life. I have been in constant pain for the last four years suffering with Fibromialgia and Lupus. I was on all sorts of pain meds and nothing seemed to work. I also tried several prescriptions to help with the Fibromialgia still a complete disappointment. I heard about the benefits of Vivix of course I am very reluctant to try anything when the Doctors couldn't even prescribe anything to help me. I figured why not if it doesn't work I just wont order it again. Deep down in my heart I thought this stuff isn't going to work - well I made my self a liar. Within five days of taking Vivix I stopped hurting. I would get massaged three times a week before I took this just to keep functioning. I am on my second bottle and I can honestly say I am pain free when I went to the Doctors my blood pressure had dropped to 106 over 60 compared to 170 over 90 wow what a difference. I would recommend this to anyone that I meet that is in pain.
Isabel Belliveau

The product can be found at http://www.shaklee.net/helpfromlinda/vivix

email me and I will show you how to save 25% on the product. I wish you well.

L. L
http://www.livegreeneveryday.com

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K.H.

answers from Minneapolis on

hi-my older sis has this issue also...she went thru pure hell...for almost 2 yrs.now shes on great mix of meds.shes a school teacher,volly ball coach,travels alot....took a while but she finally found the right dr.for this.if you want i cant get her info.and send it to you.let me know,K.

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T.B.

answers from Eau Claire on

My mother and my husband both have Fibro. My mother has gotten much relief from eating a different diet containing lots of beans (not like green, but the legume ones.)

My hubby has been on many of the meds that are out there. Most work for him for awhile then stop working. He did try the Lyrica and seemed to get relief with it, but his body got used to it quickly and he started having more flare-ups again. We are trying to find the right combination for him.

L.O.

answers from Minneapolis on

Dear J.,
I have 3 very dear friends of mine that had life debilitating fibromyalgia. I can share with you how they are living almost symptom free. Email me or call me.
Blessings,
L.
###-###-####

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K.H.

answers from Sheboygan on

I too had an accident when I was in my teens and was diagnosed two years ago (I'm 31). Since then, I went through a Fibromaylgia Clinic at a hospital in Sheboygan. I had a physical therapist, occupational therapist, and a cognitive therapist. They helped me learn about diet, nutrition, stretching, exercise, medications, and relaxation. I think the thing that most helped was the physical therapy where my therapist taught me many stretches that were targeted to the pain that I had. I also incorporated some of the diet pointers in my life. It was an extensive three weeks, but my pain doctor calculated that my pain went down 55% from the 6 weeks of therapy! If you lived closer, I'd definately recommend St. Nich's program.

I'm on Trazadone which is an antidepressant with the side effect of drowsiness for a sleep aide and Cymbalta for depression and Fibromyalgia. Cymbalta works wonders for me, so I haven't tried Lyrica yet.

If you'd like more info, e-mail me.

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J.G.

answers from Milwaukee on

Hi J.,

I actually had the same thinghappen to me. Was in a car accident when I was 19 years old. A car rear ended my car as I was parked and I got nailed from behind. I have had problems ever since. I had major neck pain. and my muscles just "hurt".

I then, was diagnosed with a nerve disorder and went through 3 years of physical theraly. Was heading to an electotherapist to help me deal with my pain. They had me on so many drugs I developed 17 allergies and more health problems arose from those same drugs.

Started doing my own research and found that fibromyalgia is a build up of toxins in the muscles.

I have had my fibromyalgia in control for the last 7 years and live almost pain free- without! drugs!!!

You want to learn more, let me know.

It's a blancing act!

J.

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S.H.

answers from Green Bay on

Hi J.,
I don't know drugs but I do know Melaleuca and many folks with Fibromyalgia have been able to use there products and be close to symptom free from Fibromyalgia. I can have someone e-mail you about their experiences. I have heard of one person that was barely able to walk a few blocks but recently walk a 6 mile marathon. I can't promise anything but I have heard it helps. We also have a conference call you can listen to put on by a gal with Fibromyalgia that uses Melaleuca and other natural alternatives. Hope that this helps.
peace,
S.

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J.S.

answers from Milwaukee on

Hi there,
My Mom had Fibromyalgia and it took years for the docs to diagnose it. Once they did diagnose the disease it took even longer for her to find a doctor who believed in the disease and treated her like a human being who was actually in pain. I hope you have better luck and find someone who will listen and will help. I know they have a lot of new treatments now (she passed away 2 years ago from something unrelated), so hopefully you can get some relief. The only advice I have is to keep yourself as healthy as you can. My Mom was at her best when she was at a healthy weight and eating well. Have you tried Chiropractic? Yoga might be helpful to you as well. Good luck to you!

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S.

answers from Minneapolis on

I work for the courage center in twin cities- 4 locations. There are wonderful physical and occupational therapists that work with clients like yourself. 2 of the locations also have therapeutic warm water pools that therapist's use as well as special classes. It might be a good starting point.

Shelley

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M.K.

answers from Omaha on

I can´t understand from your letter if you have a physiological problem as a result from the car accident??? If so and you have tried absolutely all the doctors and they don´t know what to do ....well, the first place I would always go is to the most reputable chiropractor I could find. They can perform absolute miracles - it is truly a wonderful science.
Secondly, I was diagnosed with fibro. about 12 years ago - it is a constant struggle, as you know. After many doctors, etc.. I decided I was simply going to quiet down my life, get more sleep, regular exercise and do all the new age therapies I had time for. Read books that help you be in touch with yourself and you life. Forgive yourself first and anyone else that you feel has harmed you. Forget the past and enjoy each day. Positive, positive, positive. And make sure you do not have a raging case of candida in your mucous areas ie. intestine, throat (saliva), vagina, rectum. It can cause many problems.
Hugs and health, M.
Much good health

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L.M.

answers from Minneapolis on

Have you ever tried Chiropractic care?? I was so skeptical about it at first. I have had back pain and tension migranes for as long as I can remember, I tried everything from physical therapy to lot's of different drugs. As a desparate attempt I thought I'd give Chiropractic care a go and I could not have made a better choice. I have been going for about 9 months and it has made such a huge difference in my life. If your interested I could refer you to my chiropractor.

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