Seeking Any Mom's That Have a Child with Aspergers Syndrome

Updated on April 01, 2008
E.S. asks from Warsaw, IN
11 answers

Hello I am just trying to find someone that has a child or children with AS..I am very new with it and I just wanted to know of any advice with dealing with it..

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M.M.

answers from Indianapolis on

I don't know if my response went through, computor burped. I have two of my three kids that have AS. Without rewriting my life history, you have to be a good listener, investigator and researcher as AS varies a great deal and how you find help will be in knowing what your child is doing. Both my kids are high functioning. My son who is 19 today said when he was young that if he had to get this, at least he got the 'good kind' as both he and his sister are pretty smart and doing well. But I've kept close tabs on how they did in school, if something upset them I had to find the source and investigate because they ofter processed things differently; I've made sure that I made all the meetings in school and gave my input for their IEPs. Once my daughter's class was blended with another class while they watched a movie. The kids got in trouble for talking, (my girl wasn't) but not for singing along with the movie. She was in a meltdown when she got home and I found out that the teacher wasn't informed that she had autism. She can't be group punished because she doesn't understand if she didn't do something, why is she being punished? The school was more informed that they had to make sure the person handling my daughter had to know she might take things differently than the group. You have to be clear, direct and not make jokes that can misinterpreted. That has lightened up over the years but it is a matter of keeping on top of what's going on and keeping a good repore with the school. I found they were open to my concerns as long as I presented them as concerns and not complaints. Don't know if I'm much help, you can email me if you have any questions. ____@____.com

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A.M.

answers from Huntington on

My little brother (he's 26 years old now) has Aspergers, it's HIGH FUNCTIONING AUTISM, which means he can function more in certain areas than children with full-blown autism (Rain Man). Our school system wanted to put him in open-door school, but my mom wouldn't let them. Seth went into the regular public school, was in LD classes for most of the time, but was main-streamed for the classes he did well in, such as history and science. He now holds a job, he's had stable relationships with girls, he has close friends, and functions well in society. One thing he has trouble with is managing money, that is why my mom is still in charge of all his finances: bill paying, depositing checks, etc. If not he would have his whole account spent before the 1st week of the month. He does get an SSI check every month, on top of what he gets paid at his job. If you have a local University, that is a good place to start, they usually have an autism services. Look up autism speaks, it's an organization dedicated to the education of individuals with autism. Also I am an education consultant with Discovery Toys and we have toys specialized for autism and have information on our website about the condition. www.discoverytoyslink.com/amandamannon anytime you need to talk, or would like any information please contact me anytime and I will help you as much as I can, if i can't I can always ask my mother. There are a lot more things out now than there were when my brother was littl. Your son's pediatrician should have some information from local organizations if there are any. I'm not going to lie, it will be hard, you will get frustrated, and you'll probably cry, but it's okay. Make sure you have a support system, and don't let him fall through the cracks in the educational system, constently check up on the school and how he's doing, that's what mom had to do. She went as far as making surprise visits to the school to make sure he was in class. Let me know if you need anymore information. A. ____@____.com I'm in the South Point, Ohio ; Huntington, West Virginia area

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L.E.

answers from Indianapolis on

Yours is an old posting but I would be glad to answer Q's if you still have some.

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C.M.

answers from Fort Wayne on

Yes we were told that is what one of our triplets has.
we have been able to handle everything but the temper, he is a good boy most of the time it is just when he gets mad, i cant handle, and at 4 years old he is stronger then i am. lol, that makes me sound alittle whimpish. dont it...
C.

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E.S.

answers from Indianapolis on

You must be my doppelganger :-) Same name, same state, same kid's diagnosis. My 7-year-old has AS, or AS tendencies with ADD, depending on whether you talk to the school psychologist or our private psychiatrist. What issues are you having with your child?

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K.F.

answers from South Bend on

I have a child with AS tendencies but not a classic AS child. He also has OCD, SI and ADD. I can chat with you if you would like :) ____@____.com Put something about mamasource in the subject line because I get so much spam that I get delete happy.

K.

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A.W.

answers from Indianapolis on

my brother has aspergers syndrome. he was diagnosed many years ago. my mom has done extensive research and knows a lot about it. i would be happy to give her your number or email if you private message it to me.

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T.M.

answers from Huntington on

Hi E.! I have a 3 year old son that has Autism but one of my dearest friends has a 3 year old son with Aspergers. We have figured out that they are wuite alike in more ways than they are not!
I would be glad to talk with you or send you links we have researched! Please private message me and I will give you my email addy!
And above all, remember that you are not alone...though at times you will feel like it! :)
HUGS!

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S.L.

answers from Huntington on

HI E.,
My 3 yr old daughter will be tested in Cincy for Asperger's syndrome at the end of this month. I have done tons of research and it is sooo overwhelming!! Is your child in preschool anywhere? is he getting special help or any kind of therapy?
I was wondering on a personal note whether or not your child is umm,, well, socially awkward. My lil one does not play with or even really speak to the kids in her school. She says her friends at school are her teachers! IF we goto a playground she goes out of her way to avoid other kids. and she's not shy!!! She did say one day that she really, really liked BOYS though! oh well, i was pretty boy-crazy in preschool myself! :)

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