Hormones Post Hyserectomy

Updated on November 30, 2012
K.K. asks from Aurora, CO
6 answers

I am a 39 year old, mostly health mom of 3. I had a total hysterectomy 2 weeks ago (preventative due to a genetic issue and past colon cancer) It was done robotically and I have really had no issues other then being tired all the time, some pain on the left side (Dr. said the pain was normal) and I am hot... all the time. No flashes, just crazy hot. The temp in the house was 64 and I swore it was 90. I have had my 1st post op appt. and everything is good. I have been off pain meds since 3 days after surgery, the make me ill.

My Dr. gave me a .625 does of Premarin to take daily. I have not started it yet! I have not had the mood swings, the downs or anything, just the hot hot hot and the being tired. I am a bit overweight, so I fear gaining more.

I am wondering what others experiences are and the thoughts on HRT. Does this sound like a hormone need or am I just running warmer then normal? I know that the premarin is from horse urine and the treatment of the horses is quite inhumane, so please, dont yell at me about that. I just want to know if there is younger people that have gone hormone free, or those that think it is necessary. What are the chances of osteo if I dont take them? I need y'alls awesome advice!!

Thanks a million ladies, you are all wonderful

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T.F.

answers from Dallas on

I had my complete hysterectomy, abdominal incision about 10 and 1/2 yrs ago. BEST thing I ever did.

I opted for my ovaries to go away as well and they put me on an HRT patch (Vivelle dot 0.75) at the hospital. Regular dosage is to change it twice a week and i did that as directed for a long time.

About 3 yrs ago, I started changing it once a week and my Dr. said as long as I didn't have effects, that was fine. I still change it once a week.

I have not had any negative side effects from my HRT. Normal blood counts, normal bone scane, normal mammos. Of course it is a personal decision. Some people will try to scare you to death which is unnecessary.

My experience has been positive. I went into surgery healthy, not overweight at all and I am still healthy and not overweight at all. Talk to your Dr. about all options.

Good luck.

2 moms found this helpful

C.O.

answers from Washington DC on

Hello! I had my hysterectomy like you did on Feb 2011 - BEST thing I EVER did!!! But I'm not a spring chicken!! LOL!!! I was 44 when I had it done.

I was like you - had the "hots" - not hot flashes - just HOT - off and on for about 2 weeks post surgery.

I have NOT taken ANY hormone replacement - ANY form of it. All my girl parts - ovaries, tubes, uterus are gone.

The tired will subside. Make sure you are taking iron and potassium. Even though you might not FEEL like it? WALK!! Get out of the house and get the fresh air - I cannot tell you how much that helped me. Even if you don't feel like it - or are "too tired" - get that blood moving and GO!!!

I thought for sure since I got rid of my ovaries, that I would lose weight. however, I've been pretty stable...darn it!! I need to exercise more - but over all - having the hysterectomy was the BEST thing i did!!!

I would talk to the pharmacist to see if there is anything you can take that is homeopathic vs chemical!! You would be surprised at what you learn from them!!

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M.F.

answers from Denver on

Hi K.!

I had to have a hysterectomy and partial ufterectomy(sp?) at the age of 32. I have not been on hormones ever and I am now 37. That is because I still have one ovary that is producing the hormones I need. I would talk to your Doctor to see if that is something to take into consideration. I feel normal, no hot flashes or mood swings. My Doctor told me not to take anything because I was so young and to let my body settle down and figure out what was supposed to happen. Most women put hormones into there body with birth control pills and this is a great oppurtunity to press the reset button if you will, or so my doctor told me anyway.

With the weight gain, that can be manage through diet and exercise and that may help with not taking hormones too.

I hope this helps you, I know that this can be a physically difficult and emotionally time. You will be in my thoughts and prayers.

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S.B.

answers from Redding on

I had my hysterectomy when I was fairly young. It was 15 months after my son was born. My endometriosis had come back with a vengeance.

For the first time in my life, I was pain free. It was amazing! However, the only downside was trying to get my hormone levels figured out. I felt like I was going to burst into flames and got terrible headaches. For some reason, I did better on higher doses than expected. Once we got that figured out, I was great.

I took Premarin for about a year and a half. I stopped taking it while going through a divorce and I literally couldn't afford it. The transition was surprisingly easy.

I'll be 50 in a couple of weeks and haven't taken hormones in all this time. I don't have hot flashes or mood swings. I did gain 20 pounds after my hysterectomy, but that was a good thing for me, because I didn't weigh enough. I actually attribute the weight gain to being healthy for a change.

I've heard that there are health benefits to taking HRT. But, I'm glad I quit when I did because I've also heard the opposite can be true if hormone replacement is taken long-term. My sister just recently weaned herself off the patch, but she was like a maniac a couple of days before the patch needed to be changed, so she really felt the affects of the changes in her hormone levels. Fortunately, I didn't go through that.

Everyone's bodies, levels, and systems work differently. It might be worth it for you to take the hormones, at least at first. I mean, think about it, your body went from producing a certain amount of hormones to producing zero instantaneously. On top of that, you've had some organs removed. I don't regret taking hormones to help my body get through the shock of all that.

Exercise is very important in the prevention of osteo. Talk to your doctor about what supplements you should be taking as far as calcium, vitamin D, and magnesium.

Best wishes!

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P.K.

answers from New York on

Had a complete at 40 and never took any replacements. Too many side effects and possible problems. I just dealt with it. Winters were great, I was always hot! Did not seem to have any real problems. My feeling is less you put in your body the better off you are.

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P.L.

answers from Dallas on

Hello K., I had a complete hysterectomy at age 30, after many years of Endometriosis pain and near constant bleeding. Immediately after surgery the surgeon injected me with a huge dose of hormones, then prescribed Premarin, at the highest dosage level. I found out that this is a normal course of action by the surgeon after hysterectomy. I am a small person, less than 120 lbs, so the large amount of hormones coursing through my body took over my life and I hated everyone and everything--including myself!!! After multiple arguments with my surgeon regarding the high dosage of hormones making me crazy, he ended up telling me that he was the doctor and my opinion was not requested or wanted. That moment is when I understood that he was a surgeon, not a doctor that truly cared about me or my quality of life. I began to ask questions, basically anyone that would listen to me, and was advised to see an Endocrinologist. The Endocrinologist explained exactly how the hormones work, how critical they are to our overall health and daily functions, and told me that dosage was relative to a person's specific needs and there was no "one size fits all." He started me on the lowest dose available, then checked me every two weeks to adjust the dosage until "we" had figured out the correct dosage for me based on how I felt. I did not have hot flashes, just crazy mood swings. I am now 59 yrs old and continue to use HRT. I now have a family doctor that uses "compound" prescriptions, each tailored to my specific needs, so the mixture of estridiol, progesterone and testosterone are compounded specifically for me and closely monitored and adjusted as needed to meet my changing needs based on my lifestyle, stress levels, health changes and any other contributing factors. The hormones I use are bio-identical, all natural, prepared in a transdermal cream that I rub on my inner thigh each day. My first thought for your situation is that they gave you too much hormones in your initial injection after surgery, which could be the reason you are hot all the time. I was told the hormone injection would last over a month, so do not start the oral hormones until your body settles down a bit. Additionally, a woman produces hormones in her fatty tissue, so if you are overweight, your body may be producing lots of hormones by itself and coupled with the injection, you are overloaded with hormones. The Premarin has a high estrogen value and I do not recommend it because of the increased cancer risk that creates and also because you need progesterone and testosterone to go with it. I would suggest you find an Endocrinologist, specifically one that uses compounded meds, to work with you to balance out your hormone levels. The hormones not only help prevent Osteoarthritis, they help keep your skin healthy, they help keep your vaginal walls elastic, they help prevent vaginal dryness, they help you sleep, they help your brain function--memory and clear thinking, and help maintain a more consistent mood and energy level. I know women that have opted out of HRT, their skin aged super quick and they look old, wrinkled, worn out and have no energy. Of course, there are other contributing factors to that equation, smoking is a big NO NO with HRT, and a healthy diet along with regular exercise will improve your life greatly and help with the hormone levels. Good luck, and always remember, you are your best informant for what is working for you and what is not. Never be afraid to voice your opinion and ask questions of any medical expert that you encounter. Also, the internet is full of good information, it is also a big bucket of bull, so do your research, but make sure the information provided is backed up with solid citations of where the info originated from and how credible it is. Hope you manage to "turn down the heat" soon and feel better fast!!!

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