My husband and I have three beautiful kids, but unfortunately one was diagnosed with Ehlers-Danlos Syndrome. Any chance anyone else is touched by this genetic disord...
I posted last week that we were headed to the Mayo for another round of tests. Just wanted to thank all of you for the supportive replies and positive thoughts and p...
My son is 29 and has Marfan Syndrome. He is on disability due to this. He is very intelligent (really I am not bragging). I know that what affects the body also af...
My son has been suffering a year and half with hip/leg pain only in his right leg. His pediatrician referred him to a couple different specialists and they all find n...
Anyone have a child who's finger joints hyperextend to the point of having trouble writing? My son has terrible writing because he has a hard time holding a pencil be...
My four, almost five year old daughter has veins on the side of her forehead that are very noticeable. I have asked my pediatrician on several occassions if it is an...
My 3 and 1/2 year old son has "loosy goosy" muscles. I am working with him on his legs but his elbow has popped out of joing about 6 times in the last 5 or 6 months. ...
This is not with the intention of prying, but I've noticed mention of kids with special needs. This is a huge relief for me, cause it seems that everyone I know in r...
