L.P. asks from Meriden, CT on December 06, 2007
Seeking Advice for My 2 Yr Old Diagnosed with Asthma
Hi Moms: I am hoping that there is a mom out there that can relate to what I am going through with my little boy. On his 2nd birthday (10/11) he started with a cough that wouldn't quit. He went to the drs and she diagnosed him with asthma. At that point we had to start with the nebulizer treatments again. At first it was the Albuterol. He was then put on a round of oral steroids to strengthen his lungs. That helped for a short time once he was done with the dosage. Here we are 2 mos later and he hasn't gotten any better. She then put him on Pulmicort Respules that he takes now twice a day through his nebulizer. As of two days ago, his cough got even worse and now he is on the oral steroids again, plus an antibiotic (sinus infection & bronchitis). His pediatrician says that he has uncontrollable asthma. I am starting to look into a pediatric pulmonologist. The worst part about this is her answer to everything is "I think". I really like his dr and so does he but for a mom that is not the answer that I want to here..... He had tubes put in in April and that improved his health tremendously and he only had two tiny colds after that up until his birthday and what that was triggered there wasn't anyone around him that was sick.
So, if anyone has gone through this with their children, I am asking for any advice. I haven't been sleeping, I have been laying awake listening to him breathe on his monitor and I constantly go in his room to check on him to make sure that he is ok. Last night it sounded as though he was gasping for air so I waited before I went running and then he rolled over and was fine.
I know that he is just a little one but it kills me when he tells me "no more medicine mommy!" I keep telling him that his medicine is going to make him better but he will fight me on it. He isn't the typical 2 yr old. He has the vocabulary of a 4 year old and shocks me with the words that come out of his mouth.
Please, any reassurance or advice will be greatly appreciated.
Featured Answers
H.P. answers from New York on December 07, 2007
hi L.- I am a lot like you- I am a 28 single mom of a 6 year old- my son has asthma and has since he was a tiny baby- i have gone through this with my son for years- I am running out now but if you need someone to talk to Id be gad to offer advice- ____@____.com
J.M. answers from New York on December 06, 2007
I would go for allergy testing. My husband almost died at 3 months of age because he had a SEVERE allergy to mold, and the house they lived in had a bad mold issue. Once they moved out of the house, he did much better. Once he was old enough he went for allergy shots, and now at 31 he has NO symptoms of asthma or allergies at all. Best of luck, I know it's hard! You know what's best, if you don't like what you are hearing keep searching until you find someone who hears you, understands you, and will give you an acceptable answer. I agree the words "I think" isn't very comforting.
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N.M. answers from New York on December 07, 2007
Been there, done that. I really am a bit concened that your Dr. would say he has "uncontrollable" asthma - uncontrolled right now yes, but uncontrollable?! PLEASE take your son to a specialist ASAP. I did with my son and it made a world of difference. If I was you I would switch pediatricians - you really need to have confidence in your Dr.
Good Luck.
L.S. answers from New York on December 07, 2007
hello, i don't have any of those experiences but i think that you definitely should get another opinion or even more, go to other at least two doctors, more heads knows more. Your doctor can "think" what she is making for dinner not about decisions for someones child health. It really doesn't sound so assuring, specially if he doesn't even get better. Good luck!
S.K. answers from Albany on December 07, 2007
L.,
My son has asthma as well. It started when he was a baby when he was 4 weeks old he got bronchilitis which triggered the on set of asthma. Things were quiet till 13 months when he got a cold. He ended up wheezing and on the nebulizer we went through this for 5 months straight of on and off the nebulizer. Thats when the pediatrician put him on singulair daily. He would chew the pill every morning and make it all gone. We to have used the pulmicort when it has been real bad. My son is now 6 1/2 he takes his singulair everyday ( we take it during the school year to help with colds) We only use the nebulizer once in a while. I know it is very frustrating to go through this. Talk to your dr about singulair and see if they will let you try it. I did not have to go to a pulmonologist but if it will help you maybe you should take your son. If my son needs the nebulizer now we use xopenex because the albuterol wired him and he couldn't sleep he was an emotional mess. I hope things get better for you please feel free to email me at ____@____.com .
Sherri mom of 3 a 6 yr old boy and 2 girls ages 4 and 1.
T.H. answers from New York on December 07, 2007
Hi L.,
First, I have a 5 yr old son who shares the same birthday as yours. Ironically, he's had the same problems since he was very young. When he was 3mths old he had a terrible cold that wouldn't quit. Took him to the doctor and he told us to do the shower (steam) thing and gave us some medicine. That night, he was breathing very irregular and I rushed him to the hospital that night (hubby thought I was exaggerating but my instincts kicked in). He was diagnosed with RSV and stayed a week in the hospital. From that experience on, I've always trusted my instincts and didn't always trust what the doctor said. Last year with yet another terrible cold at 4yrs old, his new doctor diagnosed him with asthma. I honestly didn't think he had asthma and that his shortness of breath came from coughing 24/7. I've had a nebulizer since he was 2y.o. using Pulmicort and there was another one I forgot. I started researching on the net for other things that could help rather than using the steroids. He was also suffering from terrible nosebleeds.
Have you tried any natural remedies and supplements? I urge you to go to your nearest health food store and speak with someone there. They are usually aware of what herbs are used to treat asthma. Humidifiers work too. I'm not sure if my son grew out of it or if the supplements I'm giving him are actually working, but I haven't used the nebulizer in a long time and he's actually fighting his colds now. Also, as the other moms mentioned - diet is important. He could be allergic to something and dairy is not good either. I hope that in sharing my experience, it can help you too. Good luck and I hope he feels better soon.
J.O. answers from New York on December 07, 2007
Hi L., This sounds exactly like what I went through with my daughter when she was 2. She would cough non-stop every single night. I know she had a nasal drip and then eventually would throw up. Finally, her pediatrician sent me to a pulmonologist. They ran tests and through x-rays he could clearly see how blocked her airways were, therefore, diagnosing her with asthma. He put her on an inhaler, flovent, through a chamber. She has to do this every day 2 times a day. I know it seems like a lot, but it has worked wonders! Flovent is a preventative asthma medicine, whereas albuterol is a rescue medicine, which we only have to use in extreme cases (which is now very rare). So I feel much better about using it because you don't get the jitters like you do with albuterol. You are pretty far from me to recommend our pulmonologist, he's out of Morristown hospital in NJ. But you should definitely find someone you are happy with and feel comfortable with, because ashthma isn't something you want to mess around with. I hope this helps and email me if you have any other questions. My daughter is now 3 1/2 and I can't even explain how much this has helped her.
Good luck, Jennifer
T.M. answers from New York on December 09, 2007
if your son has been taken all these meds by the pediatrician and it is still not getting better or worse....you need to now see a specialist and go above the pediatrician...he may be nice and a good general doctor for your son...but...its time to see a pecialist...good luck...
D.D. answers from New York on December 07, 2007
My son also has asthma. However, it is mild. He went through months of being sick with colds and ear infections when he was around your sons age. The drs would hear him wheezing when he had the colds. I took him off of cows milk which definately helped. He never had an ear infection again (now it is 4 1/5 years later) and his colds seemed to be much better which helps with the asthma being better.
I don't know how you feel about chiropractors, but my chiropractor has a 3 year old with asthma. He said that after only a few weeks of going to him, she is on half of the medication she was on.
Hope this helps.
B.L. answers from New York on December 07, 2007
Hi L.,
Your story sounds like mine word for word. I too am a single mom and I have a toddler (she is now four years old) who was diagnosed with asthma over two years ago. Of course, it took a horrible experience at the emergency (Hospital for Sick Children in Toronto) when she had pneumonia and endless rounds of antibiotics before I got the answer but now I monitor her quite closely with a children's pump, and her puffer (flovent). Whenever she remotely starts a cough or cold, always around seasonal changes, I give her the pump and we pretend it's a game - one puff, two puff - morning and night. So far it seems to work and she usually ends up sleeping (of course, i still don't out of worry...and just loving watching her sleep!) Like your little one, she fights me on any other oral medication (I try to give her an incentive and explain that Dora or Diego take this too when their mommies take care of them!) but the pump is fun for her and (knock wood) taken properly prevents her cough from developing into something worse. As to your doctor, from one mom to another, I don't think she knows what to think. But there are pediatric nurses / doctors who specialize in asthma - I know because my sister is one in Ottawa at the Children's hospital - and many websites. So, perhaps your doctor can recommend one or your local hospital must have a division or specialist on staff. Most of this info can be found online too. Hope this gives you some relief, at the very least know that someone up north empathizes with your situation! Take care, B.
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