Needing Advice. - Tacoma,WA

Updated on December 12, 2011
K.P. asks from Tacoma, WA
10 answers

I have questions for the Mom's out there with Fibromyalgia.

I have had it for 13+ years. I have a son that will be 2 in march, who is amazing, sweet, funny, but very very active and full of energy. I on the other hand do not have energy. I am constantly feeling fatigued, tired, and as many of you know in pain. I have chronic pain, every single day of my life, every minute. I am always in pain. Not exaggerating. It varies from mild to excruciating and can change from one minute to the next.

I feel badly because most days I dont have energy to play with my son. I dont feel well enough to, and I am feeling horribly guilty about it. He doesnt mind playing by himself, but I do. I want to play with him and I do get chances where I can and do but I want to do it more. I know he must get bored a lot, and like today I really WANT to take him to the park but today I just feel so badly physically that I cant.

I go to a specialist for all of this, but currently nothing is working. I am in a trial and error type of thing with medications etc. Again, currently the medication prescribed doesnt work for me.

What do you Mom's do to get through the day? What kind of exercises do you do? What kind of games do you play?

I need some help, and some guidance here. I am feeling guilty because I want to be able to feel well enough to play and do more things.

Any advice or anything would be appreciated, thank you.

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So What Happened?

I've been seeing a Rhemotologist

Featured Answers

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S.L.

answers from Portland on

http://doctor-wallace.com/
This doctor is pretty amazing with chronic conditions like Fibromyalgia. She's big on dietary changes. I used her for my (considerably milder) pain and fatigue and it helped me a lot, I got rid of pain that I didn't even notice I had I was just so used to it. She's in Vancouver, WA, but she does long-distance consulting.

1 mom found this helpful

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M.M.

answers from Eugene on

Have you ever had allergy testing done? If not, please do so. My mother had so many health issues, arthritis, headaches, etc....once she had testing done and found out she was allergic to wheat - she instantly adjusted her diet. Within days she felt a world of difference. When your body is trying to cope with something you are allergic to it can cause so many problems. I'm not saying it's a magic cure all, but it doesn't hurt to get checked.

1 mom found this helpful
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B.K.

answers from Boston on

Fibro is very real and it's more than, "making yourself do something." I have something different but in the same family. I also have friends taht have Fibro. Mainly vitamins, really treat yourself to relaxation and keep drama to a minimal. One friend I have gets up an hour early to take her meds and just sit and read something happy - NOT THE NEWS! Exercise is important to -- such as a simple walk. Maybe take your son for a walk with you and just talk about what you see. Teach him a card or board game. Are you looking into holistic meds? And, detoxes?

1 mom found this helpful
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E.B.

answers from Beaumont on

K., I am so sorry you have to go through this. I don't know anything about 'Fibromyalgia but are there ways to do a clinical trial? Sometimes they do experimental drugs and if I was experiencing pain like that I'd be glad to try anything that might help.
My Mom was ill for alot of my younger years. We played cards (I was about 8 when this started), talked, fixed each others hair etc. Real bonding time while she laid, sat up in a bed. Yes, there were things that I'd have preferred doing with her but...you get what you get and have to adjust. Now I realize your son is much younger than that but maybe you could sit outside in the backyard and hit a balloon back and forth, watch him kick a ball and chase it down, clap as he rides a tricycle. Remember he just wants you, not your athletic abilities.
Please don't beat yourself up about this. I can't imagine how difficult it is but please remember that you are doing the best you can and the love you have for him is tremendous. What more can you ask of yourself???
I wish you all good things....

1 mom found this helpful
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L.F.

answers from San Francisco on

Hi K.,

I completely empathize with you and understand. I too have chronic pain. The only way that works for me is to figure out the things I CAN do with my kids. What kinds of activities can you do that cause the least amount of pain? When your really having a hard day and you need to be laying down, you can turn that into a game too--hide and seek, peekaboo with mama, make silly faces at each other, draw in bed, watercolor, get paints for the bathtub and let your son go to town on the bathtub etc. Focus on what you can do for today or in the hour etc and let the rest go. Your son will remember you for the way you treat him, spend time with him and love him. He won't be focused on tallying all the times you weren't able to do exactly what you wanted/he wanted to do. Hang in there!!! GL

M

1 mom found this helpful
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M.G.

answers from Seattle on

I currently am in the process of getting a diagnosis. I've suffered with chronic pain for only 8+ years. What I have done with a very active 8 year old who does understand and autistic 5 year old who cannot understand is do what I can when/if I can. I've also found that movement, though always painful, helps to make my muscles not so stiff, and allows me to do things.

I grin and bear it most of the time. I have insomnia and am on a trial and error basis with medications(none of them work for me either.) I often find myself having my daughter(8) help out and also my husband who can do everything do the things I can't with my kids. I do push myself to the limit daily because like you I feel guilty, so in the end I do my physical self more harm. I am not recommending you do that. Talk with your specialist and see what suggestions they offer. They are supposed to be trained in how to properly treat all areas of firbo, or so I would believe.

Wish you the best!

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P.K.

answers from New York on

I think you might need to push yourself to get out. Getting out and about
will take your mind off yourself and you will be able to focus on your son.
I really does work trust me. You cannot sit for the rest of your life in the
house, because one day you will realize that you missed the most important
years of your sons life. You may not find it easy at first, but it will get easier.

L.G.

answers from Eugene on

K.- There are things no medical doctor can help us with. I was asthmatic for 29 years. I knew of a great homeopath in Zug, Switzerland near where I work.
I met him and the next year I decided to see him for asthma. Five years now I have none. No medication, no inhaler. I'm saving myself all that money and I can do anything physical now. I have stamina.
You live near Seattle where there is a large training center for homeopaths. Begin making inquiries. Meet the person to see if you trust her/him.
Make certain they have an active thriving practice for 10 years.
You have nothing to lose going to a homeopath. You might regain your life, your stamina and everything else.

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J.S.

answers from Dallas on

First what kind of specialist then I can answer you better

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G.B.

answers from Oklahoma City on

Ice is my friend. I have used this answer in many posts about fibro and pain. I do some stretches to keep the muscles from getting so very stiff and I use relaxation tapes to help me feel the tenseness and mentally relax the area.

My friend swears by Lyrica but I saw a great change in her personality after she started taking it. It effected her depression and she just.....changed. I don't do meds like that, I have so many allergies and odd reactions to drugs that I fear for my life by just taking Tylenol.

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