Precocious Puberty or Non-classical Congenital Adrenal Hyperplasia

NCAH should be diagnosed by a specialist, not her PCP. Actually instead of "getting back to you after some reserach" your PCP should have referred you to a pediatric endocrinologist for a dignostic workup.
That is the route I would go, ask for a referral and get a correct diagnosis.

Endocrine factors (hormones) can have a major effect on brain development/behavioral issues. It is not entirely impossible that her other syndromes might get better once your daughter's endocrine condition is properly diagnosed and treated.
Good luck!

Unfortunately, I have no idea what you are talking about, but I can tell you this...........You are doing a great job of taking your daughters health care into YOUR hands.........every parent needs to do this.........you know your child the best and it's up to you to make sure that the medical field does what his right......even if you have to ORDER them to do it for the sake of your mind and your child's health.

If you don't get the results you want or need to put you and your daughter at ease, then get a second opinion..........although it does sound like your Dr. is willing to do what it takes in this case.

Good Luck and I hope everything turns out well for you and your're daughter.

Sorry, I did not see this until now. My daughter turned out to be VERY SENSITIVE to the chemicals in plastics (pthalates and BPA). It also took years before we found she had some other subtle endocrine problems. Quick thinking early on by the pediatrician, however actualley reversed some of the VERY EARLY pubertal changes when she told us to get rid of using any plastics in relation to foods. This was over 15 years ago!

So, the lesson I learned is that it is best to live as healthy a life as possible, and ALSO to get adequate testing (word of caution, insurance would not even pay for some of the testing the endocrinologist wanted to run and which we paid for ourselves).

And, sadly, some of the repercussions of these problems can get (mis)diagnosed as "mental illness" down the road.

I am very glad for your daughter that you are so on top of things this early on.

no experience, but relative had symptoms of precocious puberty.

if i were you, i would not be talking to the PCP about this. this is definately something a specialist will be more knowledgable. i would assume the growth scan is a good start but i would def want to see the blood tests as well.

dont waste time though, specialists usually have a bit of a wait(they waited a few months for an appt and we live in a very populated area where medical services are highly saturated). you want someone who already knows what they are looking for, as well as someone who is knowledgable of other issues without researching. lets say the tests come back looking like its not that, well then this doctor wont have a "runner up" to go and look at. a specialist will be familiar with other things possibly related that you or your PCP may never have considered.

aside from all this, concentrate first on precocious puberty. look at the more common first, and rule out as you go on. dont get yourself thinking something more troublesome right away when there is the possibility of other lesser possibilities. you know something is wrong, but just take it slow or you will be overwhelmed.

i wish you all the luck in finding an answer quickly. remember, you are your daughters advocate, so keep pushing until you feel you are getting the help you need. im sorry you have to be dealing with these concerns, its so hard with kids.

First, I want to say thank you on behalf of your daughter. She may not realize it now, but later in life she will be very grateful for your observations.
Second, get her to a pediatric endocrinologist as soon as possible. If the first one will not do anything, see another one. Keep going until you get answers.
I have 3-beta CAH. My symptoms started around age 7 with precocious puberty. By 19 I was overweight, had irregular menses, rages, and a beard. I was not diagnosed until 21 and not treated until 24. This allowed the disease to damage other parts of my body. My fertility is impaired and I have a more masculine body. Think female bigfoot. Mentally, I suffer from depression and rages. All of this could have been avoided if I had been diagnosed and treated as a child. I was lucky enough to have one daughter at age 35, after years of fertility treatments. So far she tests negative for CAH, but I see indications that she has it anyway. We are currently on a waiting list to see a pediatric endocrinologist.
Anyway, even if it is not a form of CAH, it could be something else. An endocrinologist can run the blood tests to diagnose. The earlier she gets treatment the less problems she will have in the future. Treatment is usually a corticosteriod taken daily. Look up the CARES foundation online for more information and doctor recommendations.