Milk Protein Allergy - Copiague, NY

Updated on May 31, 2008
M.H. asks from Copiague, NY
6 answers

Hi Mommies -- I wrote to you all over a month ago about my 3-month-old son having issues with bowel movements. His pediatrician did not know what more to do for him so she sent us to a pediatric gastroenterologist. The gastro doctor tested my son's stool and found trace amounts of blood in it, indicating a milk protein allergy. He said that babies move their bowels with the abdominal muscles and if his tummy is bothering him from the milk-based formula, then it may hurt even more when he poops, so therefore he doesn't go. So my son was on Nutramigen, but the doctor says that even hypoallergenic formulas have some milk protein in them that may not agree with a baby with the allergy. So he prescribed Elecare, an amino-acid based "medical food" for infants who cannot tolerate any over the counter formulas (Elecare needs to be ordered through a pharmacy). My son has been on it now for over 24 hours and his symptoms still show no sign of improvement. In fact, he seems even more uncomfortable. I asked the doctor if we could try soy formula, and he said that in his experience babies with this allergy do not react well to soy, but I could try it if I wanted to.

Elecare costs A FORTUNE (we are appealing to our insurance company to cover at least partial payment of it) so far does not seem to be helping my son. Has anyone out there every heard of it or had any experience with it? If so, what was your experience and how long did it take before your child showed signs of improvement on it? Also, I know usually when an infant has a milk protein allergy, they are put on soy formula, so I found it a little strange when the gastro doctor discouraged using it. Does this sound right? Should I go for a second opinion? My poor son has been suffering with this for all of his short little life and I want him to feel better.

Oh, another thing that seems to be tied in with this allergy is his feeding habits. He will take no more than 4 oz. at a time, but then will be hungry 1-2 hours after eating. I wonder if the formula bothers his stomach and then he stops eating, but is still hungry. Poor little guy! Any thoughts on this?

Any suggestions and/or advice would be greatly appreciated!

Thanks,
M.

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C.R.

answers from Syracuse on

lots of people who are allergic to milk are also allergic to soy...and a lot of soy isn't good for baby boys...there are studies out there that the estrogen levels in soy are to high for devolping little boys thus the "no soy for boy" rule....of course I put 2 of my little boys on soy when they were younger in the transition to milk and they seem to be fine(of course the darn study came out after they were babies)...and in relation to the whole length between feedings...everyone is different....my second son was a "snacker"....he nursed every 20 minutes for 6months(when he started solids) I tried to hold him off several times and he would eat longer and then 20minutes later scream for more food...he's now 7 and still eats all the time and is a rail... none of my other 4 boys are like this some went 2 hours some 3...but not my second...he lives to eat and he eats healthy and is thin... good luck!

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R.R.

answers from Rochester on

It was about that age when we learned by son was allergic to milk, we put him on allimentum and then we moved to soy-We were told that milk allergies often go hand in hand with soy allergies that's why we started with allimentum. I would suggest going to an allergist. Our allergist has been wonderful- and I feel like he has been our primary dr.

I know that it is scarey and frustrating- Good luck-

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J.T.

answers from New York on

hello M.,
sounds alot like the same thing i went through with my daughter, she was in so much pain and would barely eat and was just so uncomfortable. My pedatrician switched her to good start soy which worked good for the first week and then she got so constipated. We were constantly inserting stool softeners and even the tip of a thermomiter into her rectum to try to get her to poop. Her stool was very hard and there was blood in it from her pushing so much, so i definately do not recommend you try soy. then we tried the enfamil gentlease and that didnt work either. She is now on nutramigen, and she is perfect. Did u actaully try the nutramigen?? It is the only forumla that her little belly could tolerate and they say you will see a difference within 48hrs and that was absolutely true. So if you havent tried the nutramigen i wouldnt definatley recommend it~!

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E.M.

answers from Albany on

I am so sorry to hear you are going through so much pain with your child. It is so hard to see a ababy in pain. My daughter started off her life crying and at 2 weeks old i stopped all milk products from my diet b/c i thought she had a milk protien allergy. It has turned out that she does and it took a long time for her intestinal tract to heal. She stared to cry less at 10 weeks old. If your child was on milk products for so long with an allergy it may take a while before he starts to feel better. Could he have reflux too? My daughter has reflux also. She is 8 months now and has breast milk and ailmentum. She is doing well and hardly ever crys unless i try to introduce new foods. Introducing solids has been very hard for her. I have only found about 7 foods she can eat. good luck

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J.C.

answers from New York on

Just a thought - my daughter had a milk preotein allergy and could not tolerate Nutramigen. The only thing that worked for her was Alimentum. Maybe try that. It is different from Nutramigen. Also, buy the prepared formula, not the powder. Whatever you decide, you would need to give it 4 days to notice a difference. Soy would probably not be a good idea at this point. My daughter went on a soy formula when she was 8 months old and did very well.
My friend's son was allergic to everything and drank Elecare. He drank it for two years and did very well on it. I tried it with my son who had acid refulx and he couldn't tolerate it at all. So..... I think it is very individual. Also, my friend's other son had a problem with Nutramigen as well.

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R.R.

answers from Rochester on

If I were in your shoes, I would pick up a copy of the cookbook "Nourishing Traditions" and make my own formula from the recipes in the "Feeding Babies" section. You'd be hard pressed to find support from your doctor going that route, but I know healthy babies who have been raised on it and that's what I would do if I was unable to breastfeed. And it's probably cheaper than a pharmacy formula.

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