Just Found Out I Have Lupus

I just posted this article to a friend of mine who has lupus. It might help. http://www.realfarmacy.com/eliminating-the-parasites-that...

I am truly sorry you have this disease.

My girlfriend has it. She keeps ACTIVE...yes...I know it can hurt. But she says that keeping active - she does YOGA - helps keep the joint problems manageable.

She searched and bought a new bed - I think it's a temperpedic mattress. easier on the joints as well.

She takes anti-inflammatory medications for joint pain and stiffness.

She doesn't get rashes that often, so she sees her doctor for steroid creams when she gets rashes.

She went to a nutritionist and also made dietary changes that help reduce the likelihood of triggering symptoms. Stress levels low...it doesn't help that her husband is deployed to Afghanistan. But they get to Skype daily, so that helps!

You might need to have screenings for osteoporosis, since steroids can thin your bones. Also consider immunizations and cardiac screenings.

She is contemplating acupuncture. I don't know if she has done it yet.
She has cut caffeine out of her diet - this includes milk chocolate...she does however, eat dark chocolate - yes it has caffeine - BUT it has less than coffee or tea AND it has flavonoids - which is an antioxidant...which helps in the oxidation of bad cholesterol or LDL...which is reduced when you eat dark chocolate IN MODERATION!!! Dark chocolate also increases Serotonin levels in the brain after eating....which may improve moods. Also dark chocolate contains the minerals calcium, magnesium and potassium.

I pray you are able to keep your symptoms at bay and lead a long and happy life!

I am so sorry you have to go through this. Please just be sure to make time to take care of yourself. Your body has to have what it needs. Take time to rest every day and do the things required to make this easier.

I have a friend who has MS. She can't handle heat very well but still takes her kids to water parks and stuff. When they get home she's totally washed out and in bed for days. That's not good for her body, good for her and the kids of course and that's why she does it, but in the long run it could rob her children of their mother much sooner.

Taking care of your body and making sure you don't let others talk you in to doing things you know will have a long term effect on your body is the most important thing you can do.

A good vitamin program can help with your energy level and did help my SIL. She takes meds that help as well and she is ok. Raised two wonderful children while working full-time. Struggles with fatigue mainly.

I think you are on track, reduce your stress, eat right, and get plenty of rest. My sister was diagnosed with Lupus and she divorced her husband and it went away. She had the butterfly patch on her face and it is gone. We are sure it was a misdiagnosis and it was just stress from her husband's poor choice in habits and women.

Anyway, I wish you the best and hope your symptoms all go away too.

I found out after 7 miscarriages however get on Lyme disease Facebook support groups. I believe my lupus has been Lyme disease all along. They have great diet and supplement suggestions and some of these LLMD, Lyme literate doctors have cured with diet and tons of special combo if antibiotics. Some do herbs and some do supplements. Get in Dan group and they will help u find a LLMD near u but they are usually out if pocket. We are trying one for my kids and myself since u can pass Lyme through the placenta. My son is doing great amazingly better and. Now my husband believes this is not a hoax. Our older daughter is Wiese but she is aspired and has tons if other batteries in her and problems. I'm still giving this man a chance with her it's only been 2 months and with his protocol my son who was neurologically damaged is starting to come back to us. All I can do is beg you to give it a chance. As for me I still have good days and bad on his protocol but I've had Lyme untreated since I was 12. The longer u Gi without treatment the more impossible to cure. Hence my lupus/connective tissue and well every problem in between. But three days ago I started doxycycline and for two weeks been slowly starting supplements they help build the immune system back up. And I had two amazing days where I felt 18 again! However now I'm having two bad days but if u read support groups u get worse before u get better because the antibiotics are waking up the dormant Lyme and other bacterias and are killing it hence the yucky feeling. This can last awhile up to three weeks. I will let you know how I feel in two weeks but after those two amazing days this is worth the shot! If u want to talk to my husband since he thinks I am nuts but now so happy my son is doing so well please MSG me. Also the diet is definitely gluten and dairy free. Many feel best on SCD diet and GAPS. Go to group files they have reports if the drs suggestions and protocols. Good luck and proud of you for doing your research and starting with diet !!! You will overcome this I know it!!
J.

Updated

I agree with the parasites too!!!

There's a page on FB called But You Don't Look Sick that has a lot of people with Lupus on it. I think the Fibromyalgia group/s I belong to have some Lupus diagnoses on them too.

As far as I'm aware I don't have Lupus, but I've read that there are similarities. I couldn't give you much advice regarding Lupus, I'm sorry. Do you have a rheumatologist yet?

I feel for you. A close friend has severe lupus and it runs in my family (along with a slew of other autoimmune diseases) so I have a good chance of developing it. As a result, I've educated myself about this disease a bit.
One of the best things to avoid flares is reducing your stress. Yoga will help, but you also should make changes to work and home routines to make them less stressful.
Diet can help, but what works for one patient often doesn't work for others. It impacts digestive systems differently My friend who has it is skeletally thin. However, I have a cousin who is very heavy despite lupus.
Inspire.com is a great site with plenty of advice from fellow patients.