Endometriosis

Hi,

Ok i have endometreosis, polycystic ovaries, cervical cancer and i have a beautiful 5yr old girl. Endometriosis is very common in women and not as bad as most think. Pls tell her not to lose faith and pls seek a second or even third opinion if she's told she cant conceive. I have alot of experience w/this as it struck me at a very young age. My daughter is perfectly healthy and my pregnancy and birth were a breeze. I wish them both the best of luck and i hope that they will soon be blessed w/their own little bundle of joy.

1 mom found this helpful

HI A.,

I had terrible problems with fertility, though with Poly Cystic Ovarian Syndrome not endometriosis, but wanted to respond as so many people are saying you have to stay positive. While this is good it is important that your sister in law also knows it is perfectly normal to be sad/angry whatever she feels really. There is always hope and after 5 years and different surgeries and treatments I had a son who was followed 13 months later by a daughter. It can be a long road but having people like you by her side it will make a huge difference.

1 mom found this helpful

Please tell your friend that I know of two women in my circle of friends who have been through the same surgery your friend is about to undergo and both of them were able to conceive afterwards. One of them, almost immediately afterwards.

Hi! I have also suffered for many years with endometriosis and infertility. I have had four laparoscopies at this point-- 3/99, 11/01, 12/04, and 2/06. After 3/99, I was just put on Lupron therapy, which I do not reccommend. After 11/01, it was discovered that I had severe endometriosis (the worst my doc had ever seen) and it was all lasered. We discovered that my husband also had infertility issues, and did an IVF procedure in May of 2002. As a result, we have a beautiful 3 1/2 year old girl, it worked on the very 1st try. We tried to get pregnant on our own again 2 years ago with no luck, I started severe abdominal pain and then had my next lapo in 12/04, which did nothing to relieve the pain. After a series of things working against us, we had the last lapo in Feb of this year, and have thus far been unsuccessful in getting pregnant again. We have tried one IUI (which I don't reccommend if you have female and male issues!, but we thought we'd give it a try). We have tried now for 4 months to get through a whole IVF cycle with no luck, either I have cysts, my bloodwork is wrong, or I haven't responded to the meds. We will try just one more time, then on to adoption for us. That might be more info than you need, but do know that even with severe endometriosis, once it was lasered, I was able to successfully get pregnant. Good luck to your brother and sister-in-law!
:)C.

Hello

I also have endometriosis. We tried for 2 years to get pregnant. I underwent lots of test and went to a fertility specialist. They diagnosed me with Polycystic Ovarian Syndrome (PCOS) and determined that my overies were covered in endo. They recomended laproscopic surgery and then if that did not work fertility treatments. I did 3 months on clomid to help me ovulate. Other than that I did not feel comfortable with fertily treatments. We decided to adopt. We went through the whole year long and expensive process, We were just waiting on a child to become avalible. And out of the blue I had a weird feeling. After years of negative pregnancy test I thought what the heck let me do it just to be sure. And to my udder shock and disbelief I WAS PREGNANT!!!! This was after almost 3 years of being of birth control and 1 year after we had stoped really tring. We now have a perfectly healthy and beautiful baby girl! We are so blest!! I hope this is encouraging. Tell her don't give up hope!

Hi A.,

There IS Hope! Endometriosis is a disease that is NOT too hard for God to heal. My friend had endometriosis and was scheduled for surgery, when suddenly the surgeon was called away for an "emergency" and she was rescheduled. In the meantime, she came to visit me and at my church she heard that Jesus Christ is the same yesterday, today, and forever. He healed in Bible days, and He still heals today! She believed what God said in I Peter 2:24 that 'by His stripes we were healed', and that even though she 'felt' the pain, by faith, she was receiving her healing. She called herself 'healed' even though she still had pain. Was she 'lying' or 'denying' that she had this disease? No! Faith is the substance of things hoped for; the evidence of things not seen. Jesus told people "YOUR faith has made you whole"! My friend pictured herself healthy, and having a healthy pregnancy, and a delivering a healthy baby! She went home and went back to her doctor for the scheduled surgery, not because she thought she needed the surgery, but because she wanted her doctor to confirm the miracle that she already believed had taken place inside her womb. What he discovered that day was just what she had believed - she had no evidence of ever having endometriosis! In fact, he told her something she was not yet aware of . . . she was expecting!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
That was one shocked doc !!!! Especially when she told him what she had done between the last scheduled surgery, and this one! :o) Praise the Lord!
God is no respector of persons. What He did for my friend, He can do for your friend!
BTW, I also read and practiced the teachings of "Supernatural Childbirth by Jackie Mize" for the last 3 of my 5 pregnancies.
My first pregnancy went how I had expected it to go from the movies and other women's horror stories. I had every bad symptom, and a long, difficult labor and delivery.
My second pregnancy was a miscarriage - something I feared had come to pass. But then a friend told me about this book!
It changed my life !! God's BEST to you and your friend.

I had a friend my Junior year of college who suffered from Ednometriosis, and she was told she would never have kids. After they cleaned up her fallopian tubes and acupuncture therapy, she became pregnant asap. It is something treatable, if caught soon enough...notice how everything turned out in the end with most of these stories? You see there is hope. Praying really does help. W/o prayer, my husband and I prolly wouldn't be pregnant w/ our baby girl.

Hi,
Unfortunately I see that you got quite a few responses (good!) but bad, that there are so many people w/ this affliction. I was found to have endo because I was fortunate enough to have a Dr. who wanted to do exploratory surgery, as I wasn't getting p/g either. I am asymptomatic, so I would probably be still childless w/o this Dr.. I have 2 beautiful girls. I had to have the laparoscopy both times. In each instance, it only took 1-3 cycles max for me to conceive and go on to have successful pregnancies. I wanted to share a book and a website for your SIL, Taking Charge of Your Fertility. The website, ovusoft.com, has a message board, and there are all kinds of categories for people who are trying to concieve, it is a good place for your SIL to chat w/ others in the same boat. She needs to find a good doctor who is proactive about treating the endo. So yes, there is definitely hope, I'm sure she will have a beautiful family one day. She is lucky to have such a caring SIL such as yourself. My best of luck to you all!

Hi! I was diagnosed with endometriosis in 1995, had my first laparoscpy where they lasered some areas. Had a beatiful girl in 1998. Was told that should take care of things! Wrong! Had a repeat laparoscpy in 2000 where the Dr said that the "type" I had was one that would "regrow", also had areas on other organs that could not be removed for safety's sake. Was put on BC full-time to stop the growth/spread and ease symptoms. Fast forward to 2005 -> had ANOTHER beautiful baby girl! Point is that if she does have the surgery, there is always still hope! :-)

I had endometriosis about 5 years ago, I had surgery to have it removed. I had no problems getting pregnant. I have 2 girls and I am an egg donor and soon to be a surrogate, the surgery will do wonders. Just do not let them overmedicate you, I had that before I had surgery and all it did was make me sick and bleed for about 11 months straight. Also, do not stress about it, I was told it makes it worse. I will pray for your brother and his wife.

A.,
My sister was diagnosed with endometriosis after having her first son about 15 years ago. She had surgery and later had 4 more children without any problems. Hope this helps!

A.

Dear A.,

I'd highly recommend trying acupuncture & herbs. I don't know if your brother and his wife live in Houston, but we are blessed here with an acupuncture college clinic. The treatments are top-notch, under professor supervision - and it's only $35 per visit (plus every 4th or 5th treatment is free). Acupuncture is effective for SO many things - and it really is not painful. I hope she finds the help she needs!

ACAOM - ###-###-####) - 9100 Park West Dr., Houston, TX 77063
http://www.acaom.edu

Sincerely,
R.

My sister had endometroisis and had to have two different surgeries where she had to have stuff removed with lasers... it was pretty intense... after that she's had three beautiful girls... so don't sweat it! :) Just keep the faith

My son is living proof that there is hope! I had horrible endo, 10 days after surgery we conceived - after 1.25 yrs of treatments and 4 artificals insem's - I also combined mine with acupuncture. If she has ANY questions, please feel free to have her contact me by email: ____@____.com or phone: ###-###-####. Think positive!

I'm not sure where your sister-in-law lives, but there is an awesome dr here in Dallas, Dr. James Douglas. My best friend had stage 3 endo. She had to have major surgery to have it all removed. She also has an issue where her tubes don't align with her ovaries. She had IVF performed 2 weeks ago and found out yesterday that she is probably pregnant with twins.

There is hope. I myself have miscarried 6 times. We are currently seeing Dr. Douglas for my fertility issues also.

Good luck dear!

http://www.endometriosisassn.org is a non profit support group for women with endometriosis.

Hello my name is S. we are from LV NV and I to have endometriosis and I am pregnant with my second baby. It is hard to hear and read about all the problems concieving after having endometriosis but I to had that Laborscopy or what ever that surgery was called done, by the best dr. in LV and he never made me feel that it wasn't possible to have babys. I was always in tears but It was already such a bad case of it I was in so much pain, and I was not tring to get pregnant at the time. But I did get pregnant pretty quick without even trying. So please keep your head up and you will be fine. I am sure after surgery you will get pregnant in no time. Feel free to contact me if you would like to talk. Good luck and Don't worry you'll be fine.
S.

A.,
I have endometriosis. My husband also had fertility issues, so we ended up going straight to adoption. If your sister in-law would be comfortable going to a church, Stonebriar Community Church in Frisco has an infertility support group. This is a great way to meet other women, share experiences, find out good recommendations for doctors, and just receive support. It is not easy to go-- everyone has a sad story to share--but it is exciting to see these waiting women become Mommies either biologically or through adoption. It is a great place to find hope. Here is the website for the church:
www.stonebriar.org
or for the group:
http://www.stonebriar.org/fellowship/womens-ministries/ca...

My heart goes out to her, but let her know there is hope!
A.

When I was 32 I found out the same thing - but I did the laporoscopy surgery.... then -- one year later took clomid (a pill you take for five days - one in twenty have multiples with this drug) one time and got pregnant with boy/girl twins. The cramps stop for alittle while -- but I can tell now that it is back. They say that the most prime time to get pregnant is right after the surgery. Good luck and my twins are now 2 1/2 and one must be careful for what they wish for :) Twins are alot of work. -- Kind Regards

I was diagnosed with endometriosis over seven years ago, among other fertility issues. Fertility issues are tough, and they're expensive. After lots of attempts, we now have a beautiful three-year-old daughter. She was worth every penny and every single procedure. Make sure your sister-in-law is in some sort of counseling. It really helps to deal with the "why me" issues.

Hi. I can tell you that I know of many people that have had endometriosis and then were able to still have children. I think a lot of it is mental. If they worry and worry about it, they will have more trouble getting pregnant. It always seems that when you try that hard it actually seems to be a tougher process. If she will be a great mother, then I'm sure God will bless her with a child. A lot of praying helps too. I will pray for her.

M.

Wow, what devastating news, but yes, there IS HOPE!!! A friend of mine in Connecticut had found out 6 years ago that she had endometriosis. She had a hard time with it and even fell into a deep depression. She just gave birth to her second child...a girl, in March. She's had four pregnancies since her procedures in 1999, she's had TWO successful ones. It's a long hard road and a tedious one at that. I pray for your brother and his wife. It's hard.

Your sis-in-law's story sounds a lot like mine. My husband and I tried for months and was unsuccessful. I had a feeling there was a problem with me so I switched doctors and had a LAP done w/in the month. I ended up w/ endo, my right tube blocked and cysts on both ovaries. After surgery my doc told me to give it 4 months and if we weren't pregnant we would start on clomid. Well, the month we were about to start on clomid we got pregnant and now I have a beautiful 10 month baby girl.

Tell her not to give up. It is so hard to go through; one of the toughest things I went through in my life. I hope it works out for her!

I had a lap done to remove my Stage 3 endo and got pregnant 2 months later.
I hope she can get help soon!