Anyone Dealing with a Child Who Has Tortacollis?

Hi, I have two girls who are 3 and 1 1/2. THey both have torticolis. The older one wasn't as bad as my younger. She pretty much corrected itself when she started walking and being more active. My younger one's is worse. We go to therapy every week for the muscles in her neck. She has a head tilt and her eyes are tilted inside her head which is another muscle problem. She has just been put in a brace for her neck to help strengthen the sideof her neck that is weak. It seams to be helping some. We are now mainly trying to focus on the eye muscles so she won't have to have surgery on them when she gets older. She is tolerating it all very well and nothing seems to bother her. All her motor skills are fine and she has good vision. I know there are more severe forms of torticolis out there and they are very painful so I am thankful that hers isn't the extreme. Some children have to wear helmets for it to round out their head among other things. I hope that everything goes well with your child and that he gets through it. If you need to talk or anything feel free to contact me!
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You sound like you are very blessed!!!! What a wonderful family! I have never heard of torticollis before, but I did some research and found a wonderful website and support group that you might be interested in
http://www.torticolliskids.org/
Hope it helps a little bit!

My 21 month old was also diagnosed with cognital torticollis when she was younger. We saw several specialist but ended up at Duke University. She luckily did not have to wear a helmet but she did do physical therapy for about 6 months which I believe made all the difference in the world and we had to push our doctor to refer us! I strongly recommend physical therapy -- they see this all the time and actually made the recommendation to go to Duke. She is totally normal now with no evidence of the issue. Good Luck to you!
M.

Hi C., my name is K. and I have a beautiful four and ahalf year old little girl who who also had tortacollis, she went to physical therapy for about a year or so i guess and then she even had to get a helmet to wear! But honestly i think it isn't as bad as it seems cause my daughter is now just as beautiful and normal as ever. She had to wear the helmet for about 6 months but she was fine after that. the only problem that we came across with the helmet was the fact that insurence does not cover it, they consider it cosmetic, but your baby will be fine, i think they make it out to be more than it is. Don't worry sweetie!!!

K.

Dear C.,
My son was born with Torticollis. At birth his arm was tucked very tightly across his body. Our pediatrician in CT said it could have been how he sat in the uterus. Our Dr. caught this very early on (I think it was around 3 or 4 months) and we went to physical therapry. We had a great experience and we did our excersizes everyday as apart of play time. We put on music and danced. My son is now 21 months and perfect. We went to PT for about 3-4 months, weekly then bi-weekly, then monthly. Good luck. Let me know if I can answer anymore questions.
D.

My son was diagnosed with this at 2 months old. The doctor showed me how to do the stretches and it worked itself out. It sounds like you have alot of help so I'm sure that it will work itself out eventually. It may just be one of those things that takes time to heal.

Hi C., my son was diagnosed with torticollis when he was around 6 months. We went to PT for maybe 2 -3 months bi-weekly (it would have been more but his was a mild case) and with the stretching and other things the therapist showed me we were able to correct it. He is doing well now. I am sure if you keep up with the stretching your little one will be ok soon!

My husband had this as a baby. He had corrective surgery at a young age and has had absolutely no problems since.