Toddler with Seizures

HI J. I have a child who was diagnosed 3 years ago with Autism and who suffers from Speech Aprexia. If I can be of assistance please let me know.
B.

Depending on where you live you might find some good resources/programs/support groups through an agency called Oakland Family Services in Pontiac, MI. They deal with families with all types of conditions. One woman who works their that I communicate with is Jan Carpenter. You may want to check out Oakland Intermediate School District for resources and contacts. Good luck and God bless.

I have a 5 year old son that has had seizures since he was about 18 months old - and was finally recently diagnosed with Epilepsy. He is also Autistic. Get in touch with me, and I can off er up as much support and referrals that I can! I am also 28 years old, ahve been married for three years now, and have 2 other children

J.- I have a 12 year old step son who was diagnosed with epilepsy at 3 months old, and is mentally handicap. If you would like to share/support, feel free to contact me!

I have a four yr old son with delayed development because of seizures also. It has been and still is a long road but if ya ever need to talk im here.

My son does not have seizures, but he is a 2 yr old heart transplant recipient with developmental and speech delays. Please feel free to email me at: ____@____.com

i believe that there is a "diet" that is out there for children and adults with severe epileptic seizures that is not responding well to medicine. you may want to look at something like that and see if maybe that may help some. there are also procedures available now; like neurostimulators that are covered by insurances as a medical necessity now. Its senseless to make these poor children suffer and as a mother i can only imagine the heartbreak you have from your child haven to deal with something like this; good luck and you are in my thoughts and prayers.

I have a 8 yr old son that has seizures and is delayed developemently. He is currently on 500mg of deporate and 100 mg of Dilatin. They put his developement at anywhere from 6 months to 5 yrs. Depending on what he is doing. He currently doesnt not walk except in a walker, he also has CP and a brain truama. He is an SBS survivor. I am 36 and I also have 17 yr old daughter. I can hopefully offer some advice and guideness to you.
R. C.

Similar to TracyB- my stepdaughter had a grand mal seizure at 18 months old, she was put on tegretol and phenobarbital for 2 years... She never had another seizure either..

She is now 10 years old- is learning disabled- and developmentally also... Since the seizure and the medication (cant be sure what changed her or even if she would have been this way without the seizure) she has been behind... Cognitively (educationally), maturity, emotionally, and developmentally she functions as a 5-6 year old...

I dont know how much I can help, but I can sure listen! Good luck...

D.

hello i have a child with seizures, feeding tube, very developmentally delayed. i think the doctors said hes at a 3 to 5 month old level. hes diagnosed with menkes disease. what does your child have? im new to this group im not sure how any of this works actually so i dont know how to check my messages or anything but you can email me personally at ____@____.com ive been dealing with his seizures since he was 4 months old. hes had about 3 to 4 different types. and he has them daily.
the diet that is for seizures for children is called the ketogenic diet. my son was on that and we almost lost him because of it. it took the seizures away and caused kidney stones my poor little guy had close to 100 kidney stones. and it blocked the ureters both at the same time to where he couldnt go to the bathroom at all. for over 24 hours and we had to do emergency surgery to put in nephrostomy tubes. which he still has a year and a half later. so i would definitly not recomend the ketogenic diet to anyone then again all kids are different.
i look forward to talking to you soon
J.
mom to jordan 7 1/2 years old.
and jaidan 3 years old.

My girlfriend has a daughter who is now 7 and when Mekayla was 2 she had her first seizure. She had them over and over again and finally they got her on meds to control them but it did cause damage and now she is autistic. At first they thought she was just a slow learner but Brandi new it was more. She went through a dozen doctors before she found a doctor that agreed it was more than just slow developement. Has your child been checked for autism? I will talk to my friend to see what advice she can give and ask her to sign up so you can chat.

My first son had seizures until he was three. thank God he outgrew it, but it caused alot of delays in his developement. He is now 12 with the mentality of a, I would say 9 year old. His is mostly reading, comprehension, overall development really. He was on tegretol for two years and it made him sleepy but helped with the seizures. Good luck and feel freeto contact me with questions, it has been a while for me but I can help a little T.

Hi, I just joined this and saw you clip and then noticed the date your question was posted. How is your daughter doing? I have a 2 year old boy with developmental delays and has been seizure free for 6 months as of next week. Has your daughter had a MRI done? If so, what have the doctors said. My son has some underdeveloped areas on part of the brain. Maybe we can share stores.
Thanks!