J.R. asks from Bark River, MI on May 13, 2007
Someone to Talk to Who Understands How ADHD Affects the Family.
I have a 9 year old son with ADHD, ODD, and mood disorder. I also have a 5 year old son with a speech delay, and an 18 month old daughter. It is so hard to find people to talk to that understand the difficulties of a needy child.
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So What Happened?™
I was glad to hear from so many others who are going through the same difficulties as I am. It helps when you are not alone. The most common thing I heard though was parents who decided to go off meds, I am not comfortable with that, if my son goes even one day without his I lose my mind. He doesn't like himself much either without his meds. Thank you for all the support.
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J.O. answers from Minneapolis on May 14, 2007
My daughter was diagnosed with ADD and anxiety last summer and it has been a struggle. Her school work bounces all over the place and some of her mood swings! I am very apprecitive of the support of the school especially the IEP teacher who has been a wonderful help to us. I also went through a year long battle with her father to put her on medication. I have tried other things before resorting to meds but therapy doesn't seem to be enough. There is a great website called www.chadd.org I believe its .org and not .com. I would be very grateful to talk with other parents who have children with ADD/ADHD.
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J.B. answers from Minneapolis on May 13, 2007
my son is 5 and currently diagnosed ASD - however, he has behavioral issues beyond autism spectrum so a number of other things are being looked at including ODD, bi-polar.
He is VERY difficult to live with at present as he can be violent. He can be a sweet loving little boy but he flips VERY quickly and unpredictably.
my email is ____@____.com
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S.B. answers from Wausau on May 14, 2007
Hello I have an 8 yr old son who was diagnosed with ADHD 2 months ago. He (was) very hyper. He also has been in speech therapy for 4 yrs now and hopefully this is his last year. I have 5 children (I'm 29 and now a stay at home mom) and he is my middle child. My email is ____@____.com if you want to email me.
S.
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L.R. answers from Duluth on May 13, 2007
Hello,
I understand how you feel. I have a daughter who is bypolar and all of those things you spoke of. She had speech therapy as well and my son now is in speech therapy but not exibiting any other signs. My email is ____@____.com if you need to talk.
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M.P. answers from Minneapolis on May 21, 2007
My daughter was diagnosed with ADD (attention deficit disorder) without the hyperactivity. She was also diagnosed with depression and ODD (oppositional defiance disorder). That is, put in words we can understand, doesn't like taking direction from an adult. We had her on meds for awhile. Most made her sick or just not herself. She went through alot trying to find the right meds. Concerta seemed to work for the ADD. It helped her focus her attention, instead of being "scatter-brained". That was 3 years ago. She has since been off the meds for about 2 years. She was only on them for 1 year. We went to counseling, helped understand what ADD & ADHD means to someone who has it. It's like a radio and someone talking and everything going on at once. And the person can't concentrate because too much is happening inside their head. We eventually weaned her off the meds. She was concerned about taking them too long, and so were we. We now work with behavioral issues. Trying to keep her focused. We have to remind her to do something at least twice, if not 3 times. She has gotten better as she gets older, but it's still hard. We are now at the lying stage. I think this is part of her "diagnosis", but who's to say.
As for how disorders effect the family, it's really stressful for everyone. Being in therapy or counseling has helped tremendously. We are no longer attending, but it has helped. You have to re-learn how to act around each other and not walk on egg shells. You have to re-learn how to speak to these children. In words and ways they can relate to and understand.
it's not an easy road, and sometimes, I want to run away and have "peace of mind" all alone. But I know that will do no good. We have this thing I say at our home, if the kids are calling for me and it has been a hard day, I just want it to end, I respons with "Mommy ran away to join the circus". They say, "No you didn't, your right here". But that's a cue that I have had enough and they calm down a bit. They come by me and sit and cuddle, so what every they wanted has now melted away from their minds. If you every need to talk, my email is ____@____.com
-M.
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C.B. answers from Janesville-Beloit on May 14, 2007
I know how you feel! I have a 6 year old son who has ADHD, ODD as well as a yet to be determinded mood disorder. I am a stay at home mom. I also have a 7 1/2 year old son and aa 4 year old son who also has speach delays due to hearing problems. Not many people out there understand what's going on when your child breaks down in the middle of wal-mart and there's nothing you can do. If you ever want to talk my email is ____@____.com
Keep your chin up!
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E.G. answers from Milwaukee on May 14, 2007
I have a three year old who had a mild cleft palate when he was born and has delayed speech. He had the surgery to fix his cleft palate when he was 1 1/2. He has been diagnosed with XYY Syndrome which they found accidentally when they were checking for other issues that he has had. I guess this may make him unusually tall and he may have some learning disabilities and he may affect his speech also. We will see. He has asthma and has been in and out of hospitals since he was born with various illnesses. I had to stay home because he was so sick all of the time. I have a thirteen year old stepson who has BiPolar, mild to moderate ADD. It's amazing how many people will give you advice about your parenting skills when they see how your children act though. I love the non-asked for or wanted advice from people you don't even know and decide that they know what is best for you and your children. It has been quite a struggle dealing with all of the "issues". I wouldn't trade it for the world, but I still would love to talk to people who understand more. Anyway, if you ever want to email ____@____.com is my email address and you are welcome to send one anytime. Take care and per all of the responses, there are a lot of people who will understand what you are going through and what your children are going through.
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T.S. answers from Madison on May 14, 2007
Hi,
I have a son that was diagnosed with ADHD at the age of 4. We have been through the rollercoaster of med changes kindergarten, 1st and 2nd grade were the worst! He was later also diagnosed with ODD, Anxiety and depression and medicated for all of that. He is now twelve and off all meds with exception of the ADHD med Concerta. In the past two years he suffered severe side effects from the meds the doctor described for the ODD, depression and anxiety. The last reaction being a tick that caused his head to jerk violently to one side every few seconds witch he had to be medicated for also! I have had it and told the doctor NO MORE !
Just an FYI
I now take him to an acupuncturist every other week and we took a meditation class together. He is a different kid! He no longer struggles with cognitive issues and is an A/B student, is able to express his thoughts without a struggle and is all in all a much happier child with only normal tween defiance! Some meds that are given for the ODD behaviors can cause cognitive dulling. I encourage everyone to do a web search on meds given to your child for side effects. They are not all listed on the drug information that is given to you.
T.
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T.L. answers from Rochester on May 14, 2007
Hi, J..
My 15 year old daughter was diagnosed with ADHD last summer - finally! It took moving mountains to have her teachers' cooperation. The school was unhelpful at all.
We also have an almost 5 year old and she is also effected by her sister's daily behavior. Though we don't have issues with ODD our eldest is being monitored for potential signs of mood disorder - though probably unlikely, but hard to tell since she is a teenager!
Let me know if you want to talk.
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