52 answers

Need Advice on Adhd/anxiety

I HAVE A WONDERFUL 11 YEAR OLD BOY WHO WAS DIAGNOSED ABOUT 5 YEARS AGO WITH ADHD. WE HAVE GONE THE FULL ROUND WITH ALL THE MED (CONCERTA, ADDERALL, STRATTERA, ETC, ETC....) CHANGING DOSES, DIFFERENT COMBINATIONS. HE HAS SHOWN SIGNS OF DEPRESSION AND IS TERRIBLY FRUSTRATED. HE IS VERY "COMPLEX" PER HIS PSYCIATRIST AND VERY CHALLENGING FOR HIS TEACHERS (HE'S LIKE A KID WITH ADHD WHO'S NOT ON MEDS). LAST SUMMER HE TOLD HIS DOCTOR HE WAS HEARING VOICES. THE DOCTOR SAID THAT IF IT WAS AUDITORY HALLUCINATIONS THAT HIS ADHD MED WOULD MAKE IT WORSE. SO WE STOPPED THEM ALL AND STARTED A VERY LOW DOSE ANTIPSYCOTIC (I CRIED ALL THE WAY HOME FROM THE PHARMACY). tHESE MEDS AFTER ONE DOSE COMPLETELY SEDATED HIM. WE THEN SPENT 2 WEEKS AT HAVENWICK IN THE OUTPATIENT TREATMENT PROGRAM. THAT DOCTOR SAID HE WAS NOT HAVING HALLUCINATIONS, THE VOICES WERE HIS "SELF TALK", THAT HE HAD A TERRIBLE NEGATIVE SELF IMAGE AND POOR SELF ESTEEM. MY GOD IS IT ANY WONDER. AS OF THE END OF JULY HE WAS ON 4 MED - ADDERALL, DEPAKOTE, SEROQUEL AND TENEX. STILL HE WAS HAVING GREAT DIFFICULTY. lAST TIME AT THE DOCOTRS HE WANTED TO INCREASE THE TENEX. I SAID LET'S JUST STOP. TAKE HIM OFF EVERYTHING AND GIVE HIS POOR LITTLE BODY A REST FOR 2 WEEKS AND START OVER. WEEK 1 IS DONE. IT IS VERY CLEAR THAT HE DOES NEED SOMETHING BUT NOTHING SEEMS TO HELP, EVEN THE DOCTOR SEEMS STUMPED. DOES ANYONE KNOW OF AN "ADHD SPECIALIST" OR HAVE ANY ADVICE. I HAVE ALSO TRIED ALL THE NON-MEDICINAL STUFF TOO. REWARDS, CHARTS, CONSISTENCY, FIRM LIMITS, ABUNDANT PRAISE - IT ALL WORKS FOR A VERY SHORT TIME BUT NEVER FOR LONG. I'M FEELING VERY FRUSTRATED. HE'S MUCH TOO WONDERFUL A KID FOR THIS TO CAUSE HIM SO MUCH STRIFE , HE'S TOO YOUNG FOR ALL OF THIS!!!!!!

3 moms found this helpful

What can I do next?

So What Happened?™

Not much has happened yet. We're still on our "Med holiday". I just wanted to say how overwhelmed I am with the amount of support and advice that I recieved. It was truely wonderful.. I really want to be able to sit down and respond to alot of my responses, but I just haven't been able to yet. I just knew, though, that I had to take a minute to say a huge "Thank you" to everyone trying to help!!!!

Featured Answers

N.,

Have you tried Children's Hospital in Ann Arbor? I hear they are wonderful...

Good luck--

1 mom found this helpful

Dont feel alone i have three kids with adhd and i know how you feel. We've been through all the meds, rewards, charts, med vacations, and to tell you the truth the only one i've really gotten help and understanding from is my oldest daughter's psyciatris. If you let me know where you are from i can help you find a place for more help. I know of a few places, and one of them comes to you and sees the real problem at home. E- mail me or post a message and i will get back with you asap. C.

My son has some issues too, he's 6 and has ADHD, sensory integration problems, and some "non-verbal learning disorders." He's doing well on meds, but I really like his doctor - Dr. Rick Solomon, who has an office on State Street and runs a Play Project for autistic kids. He was one of the few in the area that I found that knew anything about the sensory issues. Good luck!

More Answers

Hi N.-
I know what you are going through is not easy- I just started seeing a psychatrist with my oldest (8) and I know that in itself is not an esay thing to do. Someone already mentioned bi-polar disorder but I thought I would share with you what I know too. My husband is bi-polar and spent much of his childhood taking adhd medications- which did him no good- they in fact made most of his problems worse. He had alot of trouble in school and from a young age remembers being very anxious, depressed and even having sucicidal thoughts. All they did was keep upping his dose (his mother however wasn't near as concerned as you and I think just wanted to not be bothered) eventually he stopped taking the meds and just lived his life with severe ups and downs (including the first 4 years of our marriage) until he was finally diagnosed. It has taken about 3 years to get his "cocktail" right (including several bouts with the antipsychotics- I feel you there- its not a fun word to hear) but now he is stable and doing better than ever.
So anyway my point.... a little research into bi-polar may be very useful. I have read in more than one place that in children in particular it is often misdiagnosed as add/adhd and those meds only serve to make the problem worse. Besides meds exercise, regular sleeping and eating times effect bi-polar. There is alot of info available online. I think it maybe what I am dealing with too- we've yet to find out. But alot of what you described sounds all too familiar. - worth a try at least.
I'll stop soon I promise :) but another thing you might consider- although I realize working full time it may not be possible. If school is a huge problem there is a great cyber school here in ohio. Their site is www.go2boss.com . It is a homeschooling program but alot of it can be done online in a virtual classroom. So the child still has a teacher they are just not in a classroom setting. They are also done in about 3 hours instead of sitting all day. It has done wonders for my son who's anxiety made getting ready for school world war 3 every morning. Just an option. I know alot of parents who's childre with add, bi-polar, dyslexia etc have really benefited.
I hope my rambling was somewhat helpful. I hope it all works out for you. Good luck. ~~ K.

2 moms found this helpful

Hi N.,
Hang in there!! I have a wonderful doctor at Suburban Pediatrics whose name is Dr. Heyman - he is a behavioral specialist and is on CIncinnati's top 50 Pediatricians list. First and formost, he LISTENS to your concerns and works step by step with you to help dignose, develop a WORKING plan and adjust as necessary.

With your amount of frustratio nwith your doctors, I would start over with someone fresh as he may think of something the others may not be seeing because of your son's histroy. Sometimes history can be negative.

I agree with the person who wrote that it sounds more like bipolar disprder, and that with that type of diagnosis, the ADHD meds would definitely not work. Dr. Heyman is taking new patients ###-###-####) - he's terrific, dedicated, patient, and like I said - he is going to LISTEN to your concerns and strat from scratch; I would meet with him alone first and write down (rationally if you can) all your concerns and history. Give it a try - and I hope that things get better for you soon. I can relate to your frustration level - there is nothing worse than seeing your son have low self-esteem.

Best of luck - please keep us posted on how things turn out!!

mj

1 mom found this helpful

I don't have much to offer but have you considered working with his diet? A friend of my husband's had a son that sounds very similar to your son and they did some major dietary changes and he improved and was able to be off all medication. It had something to do with wheat and artificial preservatives and hormones. I'm not positive but maybe it would be worth checking out.

I feel for you going through all of this and also for your son. I hope you can find some relief and help with all of this.

1 mom found this helpful

I don't personally have experience with ADHD but a friend of mine at work does with her 7yr old daughter. She highly recommends the program at Beaumont Hospital in Royal Oak. They have a whole staff of doctors,nurses,psychiatrists and teachers that can maybe help you with your son. It's a complete program with meds and behavior management. I don't know the number but the main ph# for Beaumont is ###-###-#### and just ask for the behavior management center. I hope that this is helpful. If you need anymore info you can email me at ____@____.com
Good luck,
C.

1 mom found this helpful

N.,
My heart goes out to you and to your son. I expect you feel at the end of your rope (a rope with no knot) and are about ready to give up. A few years ago, no doubt I would have done many of the same things you have tried but after much study and learning what success others have had dealing with a child's nutrition that is where I would turn today. I would be thrilled to share with you what I have learned and see if we can't help that special little man overcome these very difficult challenges. Don't give up - there is hope.
S.

1 mom found this helpful

N., I read your e-mail this morning and my heart goes out to you. I can relate to many of your worries as I have two children both with special needs. My son, Kyle is 9 1/2 and has been diagnosed with ADD, ADHD, Depression, Anxiety, PTSD, Psycosis, Bi-Polar, Learning Disabled and more.... In addition he also underwent Open-Heart Surgery at the age of 7 1/2 weeks for repair of an AP-Window and an ASD murmor. I've truly been blessed and dealt a special hand. So much is going through my mind that I would like to share but don't know where to start! Good news is always an easy way to get started so ........I'll let you know Kyle's current diagnosis is Learning Disabled, he's appx. 2 years delayed, and Post Traumatic Stress Disorder. He is currently under the care of a Psychiatrist, Dr. Jeffrey London whom has two offices. One is out of Havenwyck Hospital (where your son was) and the other out of Birmingham Maple Clinic in Birmingham (15 mile & Woodward). Dr. London began seeing Kyle three years ago and I'm very pleased with his inutitive yet conservative means of medicating children. He always leans on the side of caution which avoids over medicating and if possible he tries to prescribe one medication change at a time so he and the parent can better decifer what medication is causing which changes in our children. I've found that in general Psychiatrists over prescribe medication and then have no idea what the real problem is. Kyle has taken many medications: Zyprexa, Zoloft, Catapress, Straterra, Adderall, Remerom, etc.... I'm told constantly by school staff that his attention span is awful and they would feel ADD medication should be tried again. However, Kyle is also in therapy with a terrific Psychologist, Dr. Thomas Mervak and between myself, Dr. London and Dr. Mervak we are quite sure (as much as we can be) that Kyle's inattentiveness stems from his Anxiety. Medications for the ADD/ADHD caused mood swings, manic behavior and even suicdial thoughts. He currently takes Zoloft and Remeron. This combination has stopped the nightmares for me and my son. But it hasn't been medicaiton alone. A lot of therapy, behavior modification, patience and time. I'd be glad to share more information with you. Please let me know if your interested before I keep going on.... If I can leave you with some advice it would be: Be certain the Physician prescribing the medication knows you and your son well, Find a Child Psychologist that is experienced in some of the areas your son needs help (Like Dr. Mervak for instance), take into consideration the separation you are going through and it's effect's on your son. I am divorced single mother and have two children with Post Traumatic Stress Disorder along with some other issues. I know how frustrating and hurtful it is to watch our children suffer. You are doing the right thing by reaching out for help. I hope I can help further.
M.

1 mom found this helpful

Hi,
My brother is 21 years old and he has adhd his entire life. My mother and father divorced when I was about two or three and my mom has taken care of us ever since. My brother was on ritalin for many years and it helped during school but it made him without an appetite at home, sleepy and not a very fun brother. I am the oldest of three, 21,22 and me 23, so I know this must make your other son wonder even worry about his brother even if he doesn't say anything. (My sister, 22, used to cry about my brother)
I have a home-based business and I have been doing a small amount of research on adhd because my brother has it. I've found that in my business we have a vitamin called Brainiums that help children with concentration. They are the child form of Omega-3 fatty acids. DHA, which is found in omega-3, helps support optimal memory, learning, and concentration. I've noticed that the main thing children with adhd have is a lack of concentration, they are smart individuals but they can't seem to focus like people without adhd.
I'm not saying that they are a cure but I do believe they may help him focus more. I know this may sound crazy but I can also talk to my brother and see if he would become sort of a mentor to your son. Some children don't need clinical studies or doctors, they need someone who can relate to them.

I will be praying for you and your boys.
A.

1 mom found this helpful

Hi N.,
Probably sounds far-fetched, but I'm a firm believer in the "healers", Chinese herbal medicine - no drugs! Not sure what area you're in, but your son may need to learn what it feels like to be calm & peaceful, but not with drugs. I see Dr. Cheung in Windsor, probably about 1 or 2 miles away from the bridge. Everything is natural & he can look at your son's eyes and tongue and tell you what his needs are. You can look him up on the ____@____.com can email him and ask him questions also. Also in www.phenomenews.com is a publication that does have adds where they have helped children with ADHD/Anxiety issues. I've had positive results. Good Luck.
K.

1 mom found this helpful

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