C.M. asks from Spanish Fork, UT on December 04, 2008
Just Found Out I Have "Celiac"
I just found out I have celiac and it feels a little overwhelming. I now have to completely change my eating habits and a lot of things are now off limits. I was wondering if any one else out there has it and/or knows of good resources to get myself educated on the topic and books of recipes that are gluten-free and just anything that would be helpful. I have 7 children and it is going to be challenging to try and create food for me that is seperate from the family so any tips along with the ideas would be great. Thanks!!!
2 moms found this helpful
So What Happened?™
Thanks so much for the responses. Lots of good advice and I wrote down every site mentioned and every book and resource. I think it will be okay as I learn how to eat and cook. The hardest part, I learned last night at my women's church activity, is to not be able to eat what everyone else is eating. Especially the desserts!!! I appreciate all the advice and I don't feel so alone and scared anymore. Thank you.
C.S. answers from Denver on December 08, 2008
Thank you for posting this!!!
I just found out myself (the same afternoon this was posted) and I was devastated. My little brother has had this for years, and I always thought it was a fate worse than death, as much as I love my carbs! But, as important as it is, we're changing for the whole family. We're all going gluten-free! Thank you to everyone who added advice and suggestions. It's feeling a LOT less daunting with so many suggestions.
M.A. answers from Denver on December 05, 2008
E.H. answers from Provo on December 05, 2008
My husband and daughter have gluten intolerance. It's amazing how many gluten free items there are out there. It's daunting at first, but it becomes second nature over time.
Here are some of my favorite websites with gluten free recipes and info:
Here are two recipes my family loves.
Chicken Stir-Fry with Orange Scented Rice (by Rachael Ray on the food network)
Make whatever kind you like. Grate the rind of two oranges into it while it cooks.
2 tsp. oil
2 lb. chicken breast cut into bite-sized pieces
3 cloves garlic
1 c. snow peas
Cook chicken, onions, and garlic in oil. Add carrots, then pepper, then snow peas. When all done, add sauce (below), and serve with rice. We make this with whatever veggies we have on hand. Frozen green beans work really well too.
1/4 c. gluten free chunky peanut butter (we like Adam's brand, but others are gluten free too)
3 T. soy sauce (If you didn't already know, soy sauce has gluten. We buy it at our local health food store, but I'm learning there are other gluten free soy sauces out there)
3 T. honey
1 inch gingerroot, peeled and minced
1 clove garlic, minced
1/2 tsp. crushed red pepper flakes
Juice of half an orange
Heat all in saucepan over low heat until combined. Pour over stir-fry veggies.
Minestrone with Rice
1 T. olive oil
3 large stalks celery, thinly sliced
1 onion, finely chopped
3 carrots, finely chopped
2 cloves garlic, crushed
1 (28 ounce) can diced tomatoes
1 quart chicken broth (some chicken broth has gluten--check labels and go on-line if the labels don't tell you. Swansons natural goodness broth is gluten free, so I stock up whenever it goes on sale)
2/3 cup rice
salt and pepper to taste
1 (15 ounce) can white beans, drained
1/4 cup chopped fresh parsley
In a large pot over medium heat, cook celery (reserve the leaves), onion and carrot until vegetables are tender, 5 minutes. Stir in garlic and cook 1 minute more.
Stir in tomatoes, broth, rice, salt and pepper. Bring to a boil, then reduce heat, cover and simmer 20 minutes, or until vegetables are soft and rice is nearly tender.
Stir in beans and heat through. Stir in parsley. Enjoy.
Variation: add ham or chicken or bacon for more protein.
I hope you start to feel much better as you get used to eating gluten free. My husband and daughter sure did.
1 mom found this helpful
K.G. answers from Denver on December 05, 2008
Hi C. -
While I do not have celiac disease - I do have MS and up until October of this year have been struggling -fatigued, achy,no energy, in pain and miserable.
In October, my husband and I went to a great seminar in Boulder put on by the Northern CO MS society - the speaker was Dr. Loren Cordain, Ph.D. Professor of Diet and Nutrition at CSU. He has been developing and studying the effects of dairy and grains (processed) on various illnesses - and wow was it an eye-opener for me and my husband. With respect to me and my MS - I started the program the next day - I have lost 13 lbs in 45 days and FEEL GREAT. Specifically I have cut all grains (other than quinoa - a good source of protein and super for breakfast with fresh fruit -it is an ancient unprocessed grain -something to check out maybe?), all dairy, all processed meats (bacon, sausage, processed meats, and specific to MS issues - tomato products, peanut products and beans (kidney, etc). My husband has lost 15 lbs. We have a 3.5 yr old daughter and she is not limited by this but she loves the food we fix - lots of fish, lean meats, fresh veggies, salads, seeds, nuts, fruits. We are eating healthier and have no angst about the decision. As my husband said "my wife is back!" Praise Be. We have hope in our house again - ironic to think it has to do with food.
The website for Dr. Cordain's study is www.thepaleodiet.com -and while I don't know much about the specifics of Celiac disease - one of my co-workers MUST eat gluten free - she has really been excited to see my health improve and has found the basics of this study helpful to her too.
Your kids will adapt as they see you feeling better. Best of luck.
H.W. answers from Colorado Springs on December 05, 2008
My son (3) has the disease. Meals are easy...add potatoes, cornbread (homemade) or extra veggies...it is healthier for the whole family, anyhow. It is snacking and eating out that is the hardest. There are great websites and our doctor (Yazdi in Colorado Springs) gave us tons of books and handouts.
C.B. answers from Denver on December 04, 2008
You might find out if any of your kids have it too. It is a good chance that some of them do. I don't have any resources for you but I know a lot of mom on this site do. If you are in the Denver area, Vitamine Cottage has a lot of gutten free products and has a free Nutritionist on staff by appoinment only and can help you meal plan. They are a great place!
J.L. answers from Denver on December 05, 2008
First off Celiac is genetic so you may want to have your children tested. I will say gluten free stuff is so much more readily available now then it was a few years ago. Lots of regular grocery stores carry Gluten free products. One thing that has helped me is going to large food company web sites like Kraft and printing their list of gluten free products. Their are a lot out there. It will change the way you cook and eating out is very difficult, but with a little research it is possible. Their is even a company that publishes and sells a menu guide to eating out. A yahoo search should help you find it. It has popular restaurants and what from the menu is gluten free. Good luck.
J.M. answers from Denver on December 05, 2008
HI! I have in-law family members that are gluten intolerant and some with celiac too. My sister in law was severely effected - she has bone and kidney problems now as a result but since she found out, she's been doing a lot better - she even runs marathons! So here are some things I copied from the BoulderRocknMoms Yahoo group...(Also, I found a bunch of yahoo groups that are about celiac and gluten free stuff also. Recipe exchanges etc. If you create a yahoo account you can join groups - search for celiac or gluten free and you'll see a bunch). THough I don't have symptoms, I'm going to get tested also, since I learned that it can effect people who don't even show the "signs". My question will soon be: When can I test our new baby??!!!
German Bakery (I think it's in arvada) also does gluten free and dairy free items. One of the owners is Celiac.
Pasta: Tinkyada brand-All
Bread: Kinnicknik (you'll still need to toast it)- Vitamin Cottage Or Whole Foods Bakery has some in their freezer
Pancakes/Waffles: Bob's Redmill-All
Flour mixes: Bob's Redmill-All
Cakes, Muffins, etc: Namaste- All (the chocolate cake is fabulous. I've put both cool whip or a cream cheese frosting on it)
Pizza crust: Nature's Best Brown Rice-All
Cereal: EnvironKids makes good cereal if you like them somewhat sweet. The Gorilla munch looks like Kix, tastes like Captain Crunch. The Koala Krisp is like chocolate rice crispies. The frosted flakes are, well, frosted flakes. (All)
Waffles: Any really, they are all about the same...I go with what's cheapest
Crackers: Blue Diamond Nut thins (all) or Mary's Gone Crackers- VC or WO These have little seeds in them that
Beer: Old Bard's Beer (I only know where to get this in Westminster...I'm sure it exists in Boulder too though), Red Bridge-Liquor Mart or the liquor store in the parking lot of VC and WF that faces 30th
Veggie burgers: Amy's has a new Bistro Burger that isn't bad. By far the best gluten free one I've had.
Beau Jo's has GF pizza and the Red Bridge beer. I believe Boulder is getting a Beau Jo's soon.
Vitamin Cottage has some dehydrated soups made by Hearthland Foods, which is a company from Parker. The potato soup and the corn chowder are good. The wild rice/veggie one is yuck. I'm trying the potato one w/ some ham and kale I added tonight, in fact.
http://www.debysglutenfree.com/ I know they have a
distributer in Erie, which may be who Kim was referring to. Cupcakes
will run you ~$1.00 a piece, maybe less with a bulk discount.
S.H. answers from Denver on December 05, 2008
My coworker has celiac, and has found that Vitamin Cottage is a great resource. Good luck!
J.B. answers from Salt Lake City on December 05, 2008
C., I feel your pain. I was diagnosed with celiac almost 4 years ago after having my first baby (who also has celiac). The best place to go for gluten free food is Against the Grain in Taylorsville (it's in the phone book). The people working there are very knowledgable (the owner, Diane, and her daughter have celiac as well). My advice to you is to NOT cook seperate dinners. There are tons of receipes online that naturally don't require gluten to be added (google gluten free receipes and you'll find so much you won't know where to start). The thing is, when you cook separate meals you run the risk of cross-contaminating your food with gluten from their food. Now that I've been on the diet for 4 years I have become extremely sensitive to it and get terribly sick if I ingest it. Stick to the basics like rice, potatoes, corn, beans, etc and add meat and veggies to it for a meal that everyone can eat. As for breakfast, since gluten free food is more expensive, cook your pancakes, etc either in separate pans or cook yours first then everyone elses. Some cereals you can eat that can be bought at regular grocery stores are Rice Chex, Cocoa Pebbles and Fruity Pebbles (Flintstones). There is also a website called bakeryonmain.com that sells gluten free granola cereal and granols bars; it's actually cheaper to buy it online than from Against the Grain. All of their six flavors are really good. The granola bars are ok. Anyway, for me luches and snacks are the hardest. There are two kinds of pretzels, a red or blue bag (Glutino) or an orange bag (Energy)...don't buy the orange bag, yuck! Charlotte's plain rice bread is good for pbj, but it might take awhile to like it, especially after eating wheat bread! Charlotte's orange/raisin bread is really good as french toast. The best sandwich bread I have found is Kinnikinick plain bagels. Toast them in a toaster oven till their soft then make meat sandwiches. (If you don't already have a toaster oven, you might want to get one for your foods; don't share the regular toaster since you use it for wheat bread.) Against the Grain has lots of foods and sauces to choose from; it's just trail and error with what you might like. Speaking of sauces, and also canned or boxed food, a lot of them have modified food starch; if mfs is corn based it's fine, if it's wheat based then no...you have to call the company to find out. (I know it's a huge pain.) I believe the Kroger brand at Smiths lists all their food with wheat if the mfs is wheat based. Needless to say, going out to eat is going to be a pain too. Some restaurants I know of that you can eat at are Z'Tejas, Biaggi's, Spaghetti Factory, Chili's, Asian Star, Outback Steakhouse (these all have gluten free menus). A place called Dragon Diner (13 E 39 S) has ham fried rice that doesn't have wheat in the sauce. French fries at McD's and Wendy's are ok (they aren't cooked in the same vat as their fried foods) and if you order a sandwich, of course no bun and nothing fried. The ranch dressing at both places are gf and the parfait at McD's is gf too. Go to gfutah.org and there's good info for the GIG (gluten intolerance group) in your area along with stores, articles, etc. I know this is an overwhelming diet and I still get frustrated (especially at social events where there is always food I can't eat) but in the long run, it's worth it to feel normal and healthy again. If you have any questions or need someone to vent to, I'm happy to help. You can email me at ____@____.com anytime. I'm the only one in my little world that has celiac, besides my son, so I feel "different" and "lonely" sometimes and would love a friend to talk to about it! Good luck and best wishes for you and your health. P.S. KEEP ALL YOUR RECEIPTS FOR GLUTEN FREE FOOD - IT IS TAX DEDUCTIBLE BECAUSE IT'S A MEDICAL EXPENSE!!!