A.M. asks from Black Diamond, WA on August 06, 2010
Autism Spectrum - Black Diamond,WA
hi
well my boy 3 y and 4 mo. , just got diagnostic with autism spectrum ......... is hard for me , but I guess I had to move on and keep going and help him as much as I can...so my questions for all of you that had any information,....
by the way I'm Spanish so my English is not the best , so sorry for my mistakes
I'm going to try to describe my boy , he is a sweet guy that I know love us very much , but at the same moment he had a hard time showing it, because he is really rough , not gentle at all he squeeze everything , hyper , and it seems for my that he had anxiety also, he is delay and speech, he doesn't play with toys , well sometimes but for short time and he is always going for one point to other, like looking for something to do , and I tried to play with him but he is not interesting , except when he want to do so, he likes to play under blankets ,or boxes,, when other kids are over he like it but he doesn't play with them , like he likes to see them over but he is doing he own thing and he cried when they lives but he cannot play with them, when he get frustrated he doesn't hurt himself , he does hit me and kick , scream and goes up to 20 or more minutes, it breaks my heart when I explained to him but he is so focus on what he want that he doesn't care ....then he calm down and is all good for awhile and then again something else happened ...hard really hard because between tantrums, crying , yelling and not knowing what does he what , and always have to check on him all the time so he doesn't get hurt or doing something he is not suppose to do..wow wowow is another thing God help me , because I also have another baby 11 mo. old
sorry if I'm venting I love them with all my heart , sure I do...anyway
here is the rest of the info
he is getting already speech t , and occupational once a week each of them and also he is going to star preschool 2 and half hrs from Monday to Thursday .....I ask the neurologist is there anything else for him, and she said that's all except for the drugs I mean medicine 2 kind one is paxil for the eye contact and anxiety , and risper / dal ...don't anything about that , checked on google and amazed for what i read ......to much God !!!
I read about this program ABA , can he go? she said is private you have to paid in cash ,
anyway here is my question
what else is there for him? more therapist ....to long the waiting list and not to many therapeutics , that's what they told me at the valley medical in renton...really good people there
are those drugs good ? or do they really need medicine?
what else is there for all the kids with autism....G
or just change neurologist
we have regence insurance threw boieng , my husband said is good insurance ..well see
tks for all your help you can give me and sorry for the long question/venting
God bless all the parents and kids that have to go through all this , without knowing what is cause it
Featured Answers
P.G. answers from Dallas on August 07, 2010
I don't really have anything to offer, but something that might help a little to understand how his brain works - there is a movie called Temple Grandin on HBO. She has also interviewed many times on National Public Radio. http://en.wikipedia.org/wiki/Temple_Grandin - she was born in 1947 - WAY before people knew much of anything about autism. She's very highly functioning - has multiple degrees, etc. Good luck and take care.
More Answers
L.B. answers from Boston on August 07, 2010
check with your local public school. Most have free preschool for children with special needs. He would get therapies and socialization there.
4 moms found this helpful
L.A. answers from Chicago on August 07, 2010
Inquire your local school district,they have free & very good program for kids who need little help.
3 moms found this helpful
A.S. answers from Boca Raton on August 07, 2010
I like the following book: "Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders" by Kenneth Bock, MD and Cameron Stauth.
Your mention of playing under blankets or boxes made me think of sensory issues too. You may want to look for a book called "The Out of Sync Child."
The good news is your child is still very young and you have time to help him. Continue to research and seek qualified professional advice.
Good luck.
3 moms found this helpful
M.R. answers from Columbus on August 07, 2010
There is much more therapy, and medication is helpful. Those two drugs are used freqently, the risperdol may help him with frustration and.aggression. paxil is an antidepresant it may help with anxiety too. We have always had better care from child psychiatrists than neurologists, so I would find one right away. If you do not have a.full evaluation from a Developmental Pediatrician, O would.get one, that kind.of.evaluation will be ten to twenty pages long and will identify many areas that he can work on in therapy. Play therapy and cognitive behavioral therapy may be helpful as.well. ABA is expensive because it.is very intensive, as many forty hours.a week. It is used.for.the most.severe artistic.disorders.
Write to your.school district and request an evaluation. They may serve him for speech and if they have a preschool program and he qualifies, this will be.better.for.him than private preschool, which may be difficult. start reading about advocacy at www.wrightslaw.com. because you will need some skills and information as he goes.to.school.
Once you make these other doctor contacts, many more therapeutic options will open up for.him. it sounds like you neurologist has limited.desire to.assist you, and they are not the most connected to therapies, so get the full developmental evaluation, and connect with a psychiatrist and you will find.that there is a lot of help outthere. School is going.to be helpful.to, but don't.depend on that evaluation to tell you everything he needs, and don't expect them to provide total care. They only have to make him functional in the classroom, and you should always provide private therapy too.
M.
1 mom found this helpful
T.C. answers from Albuquerque on August 07, 2010
Hi A.,
If you want playtime with your child, there's a method called "Floortime" that is getting extensive research, and is very satisfying for parents and kids in the spectrum.
I don't have the space (and would probably bore you with all the details), but here's the basics: First, always let your child direct the play activity. If the two of you are playing with some cars, and he switches to dinosaurs, don't try to keep him on cars: switch to dinosaurs the second he does and go with it.
Second, don't let play get "repetitive." If he just wants to line cars up, start driving a car up his arm to draw him into meaningful play.
If he's difficult to engage in play (to get his interest), organize his play area so you limit / control what the two of you will play with together.
Good luck, and HAVE FUN!
t
1 mom found this helpful
S.R. answers from McAllen on August 07, 2010
I know how you feel!!!, Well, what works for me is of course more therapy, I would suggest you look for another therapy place if you are not getting enough therapy for your children, I'm not sure if your insurance will cover it but I know of a couple of parents who go to two therapy places. School has been really helpful for my kids, and believe it or not, play dates, yes!!, I know they are not that interested in playing with other kids, I take my kid on play dates often, with other therapy moms and even though they don't play together all the time, sometimes they just seat close to each other, and after 2 years of doing this mine and another one are starting to follow each other, is not playing, but its something!!!, Also when the tantrums come, mine hits himself, and it is beyond scary!! but one of the moms in this site told me to get a blanket and hold him with it, and I tried it and it has really, really worked for me, that pressure, and rocking him for a little while really soothes him it takes a while, but it works wonders for mine. Also look for places for him to play besides the park, there is a place called bounce close to my home and its just inflatables for kids to jump and my son absolutely loves it!!!, I guess its just whatever one can find for their children around the area, Hope its helpful, Good Luck!!!
M.L. answers from Seattle on August 07, 2010
If you are not already receiving services through the state Department of Developmental Disability, get in touch with them. Also, in most area school districts, there is an early intervention program. That would be a great resource for him, and for your family. Have you talked with your pediatrician about that? If not, make an appointment and talk with them. Also, talk to one of the doctors (or many) about what to look for in your younger child. Blessings to you as you go through this journey.
L.G. answers from Eugene on August 07, 2010
A.
Por una mujer no nacerlo aqui tu escriba muy buen. Don't apologize you have learned well. You will continue to improve over time.
The University of Oregon has one of the best programs for Autistic children in the country. They take children from everywhere. You and his father should apply so that one or both of you go to learn what they can do to help.
My niece is autistic. She still has many problems making friends, she has none. She in not maturing emotionally. When her speech was delayed and other types of development too I gave her Baryta Carb. 10M and within six month she had the language skills of other children her age.
It is not the remedy for every child with autism. There are others that might work better for your son. Get a good homeopath and keep going so that he can develop social skills and learn the keys such as a smile means happy and a frown is anger.
Ask people to recommend a homeopath with at least ten years experience with autistic children. Seattle has a naturopathic college that trains homeopaths they might be able to recommend someone with TEN YEARS of experience in practice. It does take ten years to become a really good homeopath.
It is possible that Washington state has physician homeopaths which would definately be covered by your insurance.
I wish you well.
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