I have a friend who's 8 year old son has been diagnosed within the past 2 years I believe with Muscular Dystrophy. I don't know all the details but we were speaking yesterday and one of their biggest frustrations is not having anyone to connect with that is experiencing what they are. She is working with the MDA to find other families but they are not only looking for support for them as parents but for their son. He is starting to feel very isolated like he is the only one with this. She has shared there is no cure and times lines tell them wheel chair by 8 and life expectancy of 20. She could really use some support. If someone knows of where I could refer her to or other families that are experiencing or have experienced this before please contact me. They're hoping to find families local to connect with.