Letting Go of Normal

Normal – it’s what we all strive for. It’s what we’re “supposed” to be. It’s all the people around us – or so we perceive.

Normal is what my kids said today’s lunches were, because I included cheese puffs (never mind that they were wheat free, gluten free, contain no corn syrup or MSG) and trail mix. Normal – we all think it’s pretty important. Well, it’s what I’m needing to let go of. I chuckle at myself for even saying that because, really, when have I EVER been “normal”?

I’m the oldest of 9 children, I was a single, teen mom and have gone on to have a grand total of 9 children of my own. None of that fits society’s views of “normal”. But surely my kids are normal. They’re all good-looking, read just fine, present themselves in a “normal” fashion when out-and-about, play sports and go to private schools where, if anything, everyone is normal or above normal. Geesh! Normal is certainly what my kids are. Yeah right! As I’m being forced into clearer vision and thinking, I realize that my kids have always been slightly outside the societal norm.

My oldest son struggled mightily with what “normal” was supposed to be. He always had strong ideas on what was right and what was wrong and that you should always be choosing to do what was right. I look back, with a heavy heart when I think of a note he wrote in 6th grade, telling his father and I that he was grateful for the Catholic education he was receiving, but that he was really having a very hard time with not having any friends. We encouraged him and pushed him through. He struggled with grades because of poor handwriting and downward-spiraling self esteem. He became angry and aggressive. And then God stepped in and introduced us to the right environment and peer group for him and within a few months he became happy, full of life and by all means, “normal” once again. Hmmm, environment changed everything. Changing our perception of where he “should” be or what sports he “should” be playing and trusting that we couldn’t provide all the answers, changed his whole life.

I could go on down the line, describing each of my children and the ways in which I perceive them as “normal” and the ways in which they are so much more than that. But really, I now need to focus on my 7th child. My 8yr old son. I look back to bringing him home after his birth and how sensitive he was to all his environmental stimuli. He was coming to a home with 6 older siblings. Six boisterous, outspoken and noisy siblings and this didn’t work well for him. Every time someone yelled or ran through the house with happy screeches, he would shake and cry. He couldn’t sit in the baby swing. The movement seemed to terrify him. TERRIFY! He only slept if he was directly on me or swaddled in my blanket or clothing (I learned to cover him in things that smelled of me).

I asked questions of people I knew who worked in special education or had children with challenges of their own. But little by little we all seemed to develop coping mechanisms. I noticed that he started to become noisy if everything around him was noisy. I learned to tell him to look me in the eye when I was giving him directions and to have him repeat what I’d said. I learned to assign a number to each task and ask him to go through the numbers. I learned that riding a bike was frightening for him but that he could ride a scooter like nobody’s business. I learned that his fine-motor skills were low for his age and we stopped trying to buy shoes with laces. So, we learned to try to make it through each day with a minimum of challenge.

But not everyone is his mom and not everyone is so accommodating or patient (I use “patient” loosely when describing myself) and he started to have real challenges in the classroom last year. He couldn’t grasp the concept of getting things done in a certain time frame. His thoughts on any given subject were too big for the classroom discussions and he just can’t NOT say what’s going through his head. So he became frustrated at not completing things on time and with the fact that he has poor handwriting and he just decided to give up on doing the work all together. He started hiding his work or destroying it. This meant that his grades plummeted and he was put on academic probation. _sigh It was just a downward spiral.

Then he started 2nd grade. New teacher, new year. And she worked REALLY REALLY hard with him. We kept our communication open and discussed various ways to help him function within the classroom setting and finally we discussed getting him into counseling so that he could have better tools to draw from to perform successfully. His grades have been up. He’s not hiding work. Both the teacher and I, realized that he is more than capable with any of the work placed before him. All in all, it’s a better year. But through the open communication between teacher, parent and counselor, it was suggested (strongly) that he be tested for Asperger’s. While I wasn’t totally surprised, I was challenged. I cried for 3 days. Not for myself, but for my child who possibly needed something more, something different and had been pushed through with the hope that he would finally “get it”. I spoke with a couple people and then had the testing scheduled.

We don’t have a full report back yet, but I’ve been given a partial report and he seems to fall, quite solidly, in the spectrum for Asperger’s. Yesterday I was told that according to the tests, he has an IQ of 156 and that it’s suggested that he be placed in a more challenging school environment. This is where I have to fall back on what I learned with my older son (who was never tested for an “disorders” and has no diagnosis of any kind) about trusting that environment makes all the difference and where I have to let go of “normal”. I want what’s best for each of my kids. But I’m also having a tough time letting go. I will continue to read, research, talk and learn and I will continue to be human and fight my own ideas of “normal”.

I’m Mommy to five girls & four boys from preschool to college-age. I spent 19 years as a military spouse and have written articles for Military Spouse Magazine. I’ve blogged since 2007 & have over 60 free podcast episodes on iTunes. Mommy of Many has been a beautiful outlet for me and a great way to meet other moms, share experiences and gain knowledge. This busy life keeps me ‘doing the dance of the children’ each day.