http://forums.stlmomsworld.com/viewtopic.php?p=461#461 - try copying this link. if it doesn't work - here is the ulogy i did at my son's funeral.My son had Freidrich's Ataxia. With that came Diabetes, Scoliosis, and Cardiomyopathy. He walked up until he was 10. His diagnosis came at age 6. He passed away in 1/06. Here is my Eulogy from a Dearest Mother. You have to start preparing yourself for their passing.
I have heard of parents who have lost a child and never recovered. Having now been through this most life-shattering of events, I can fully understand how this could happen. That is why I'm so grateful that my precious child, to whom I gave life, gave that same gift back to me. Casey was a typical tomboy, climbing trees and splashing in puddles. he always had such spirit - and his share of bumps, bruises and scrapes. Later in life, he was diagnosed with Freidrich's Ataxia. Our motto "We will fight this!" Looking into his eyes, I saw more determination than fear - and I felt calmer myself. Every day was a new storm and throught each storm we became stronger. I knew our relationship was a special gift from God to make me a stronger individual. Oh, there were times that we'd sob, "Why me?" Tell me what I did and I won't do it again! I would gather all my strength as I took him into my arms. And there were many times I wasn't so strong. As Casey grew weaker and sicker, I would ask, "Why now God?" Why didn't you take him sooner or why did you give us hope? But now I realize, he would not have been able to show his love of animals, gone to school, swin and touch so many peoples life. These happy years were a gift. One afternoon, I saw he was having trouble breathing. Suddenly, with an energy he hadn't had in weeks, he put his arms around me, I knew he was telling me it was time for us to say good-bye. And although I would never, ever be ready, I had to. "Let go, honey," I said, and started singing a lullaby I sant when he was a baby. "You are my sunshine, my only sunshine. . ." His eyes fluttered, and he was gone. For days, I know I will move around the house, starring at his room, his favorite stuffed animals, our dog and lizard will all be constant reminders and then I have to remember a note he told me (since he could not write) that went like this:
"Mom you cried with me and for me. I will be afraid to leave you. I wasn't always asleep when you thought I was. I heard your prayers. What a wonderful mother you have been. I'll always be with you - inside. I'll see you again and we will still stay close until then. Mom, being sick taught me how to live. So don't mourn me. BE HAPPY!"
So during my rough moments, I have to remember this note and look up in to the sky, full of puffy clouds and think, that one looks like a turtle, or a bird, dog, or cat, etc. and think how beautiful it is up there...and how much fun he will have now. This makes my tears evaporate and despite myself, I will smile. Love to you all. Joyce Pierce
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