Vitamin Therapy for down Syndrome

Updated on December 11, 2008
S.B. asks from Owasso, OK
5 answers

My newborn was diagnosed with Down syndrome. We have gotten some information on vitamin therapy for her. I would like to know how you go about getting the vitamin supplements and what is the best kind of supplement to use. We have heard of NuTriVene-D and one by Nutri-Chem I would appreciate any input on either of those.

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D.E.

answers from St. Joseph on

Hello my son is 18 months old, he has down syndrome and gets therapy weekly but i have never heard anything about vitamin SUPPLEMENTS. If u can pass me some info

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A.

answers from Oklahoma City on

S.,
You might check with Nana's Pawpaw Patch on South Douglas (between Reno and SE 15th). They carry a lot of vitamins and other things that might be helpful to you. The owner's name is Randy Lee. He will also be able to talk to you about what is best and if need be, he will do some research.

Good luck!

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D.M.

answers from Wichita on

Congratulations on your new baby!

I have 2 sons, our youngest has Down Syndrome & will be 2 on Labor Day. I did a lot of research on vitamin therapy and decided not to do it. I didn't feel there was enough solid research supporting it and it is very expensive. Instead, we are giving him nature's best vitamin: breastmilk. I have exclusively breastfed him and will continue to do so until he is no longer interested in it. Breastmilk provides so many benefits to all babies, but additional ones to our special angels. I may look into vitamin suppliments again when he weans.

I attend the Wichita Down Syndrome Society meetings & I think a couple families there give the vitamins. I also get a lot of support & information from the message boards at www.downsyn.com. Several families there use the NuTriVene-D program and really like it. Please feel free to check out the board, it's a wonderful resource. I'd love to talk with you, if you have other questions: [email protected]____.com all is going well with your baby girl!

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K.S.

answers from Kansas City on

We had our son on Ambrotose for about a year. He recently ran out and we decided to test the difference. So far, no "lapses" or regression. Actually, he's been on a learning spurt (totally unrelated, I'm sure).

We do add a daily teaspoon of cod liver oil to his morning fruit and yogurt smoothie. That's where we put his crushed up multi-vitamin, too. We just use a regular Flinstone vitamin (1/2 for his age). Make sure the vitamin says COMPLETE whatever brand you choose.

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S.E.

answers from Tulsa on

I'd check with a nutritionist/dietician - Shannon Gallagher, CCH ([email protected]____.com or ###-###-####) whom I met at a baby fair this past weekend could probably either help you or direct you to someone who can.

The staff at Wild Oats are usually very helpful, too. If you call, just ask for staff member who works in the nutritional supplements area of the store.

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