Hi there. This is my obession of research. My son was born with a rare form of midline cleft lip, so I have spent the last 4 years researching and meeting people.
With the bifid uvula - the worries are around a submucous cleft palate, which means the skin closed but the muscles underneath did not close.
Does your son have speech issues now? That is the biggest marker of a SCP.
Is this the end of the world? No. Will it require some work? Yes.
I belong to a great online community, www.cleftadvocate.org
that can answer just about any question you have.
Also, my son had his tonsils and adenoids out as well, and he did fine with them. They thought for ever he had a SCP as well with his cleft (due to the way it looks) but they can tell before they take out the adenoids.
You can email me privately if you like..
S., mommy to John IV.