Seeking Advice with Pelvic Pain

A.,

I agree with Levon get a don't give up until you find out what is wrong. I experince pelvic pain also. Mine is do to two things 1. my uterus tilts towards my back and 2. I have a pinched nerve in my lower back. I have heard of something pelvic floor disorder, but I don't know what the syptom are ask question of you doctor and don't stop until they find the problem. Good Luck

A.,

Go see your doc again. Have him check for vaginal infections like gardinerella (not basic yeast)...that causes pretty severe abdominal pain and inflamation of the uterus. Also have them do bloodwork. This will rule out the chance of cancer of the stomach, uterus, bladder and cervix and you absolutely want to rule that out right away. Go see your GYN if you have been seeing a general practitioner too and vice versa...different docs are trained to look at things different ways. Good luck and let us know!

FIrst, bone up on Kegals. I had to have my doc check to see if I was doing it right, and it turns out I wasn't - so now I do those, instead of the pushing the 'helped' prolapse my uterus and bladder. Talk with the first doc again, and he feels you are a candidate have him hook you up with a surgeon who will implant a rubber ring that 'holds' it up for you to take the weight off untill your muscles can get stron genough.

A.,
I have the same issues and it is very frustrating. Right now, I use a Oxytrol patch. For a couple of days I don't have any issues, then have to put on a new patch. Dr. said it is ok to use for the rest of my life if I have to.
Have tried kegal therapy, multiple medications, no caffiene or alcohol, using summers eve wash, everything! My urologist even suggested I see a nurologist because he thinks it might be a pinched nerve! I go to a chiropractor twice a month just in case!
Anyway, if you find anything different than what has been suggested, please let us know.
Thanks and best of luck!

Push forward until you are satisfied with the diagnosis and treatment. You have to sometimes push the doctors to look deeper. They rule out all the common things & then they have to take a deeper look. Make them look.

I know. They spent 3 weeks telling me I had migrains when I had a bleeding brain anyurism & was DYING. I was working, walking & talking and shouldn't have been so they misdiagnosed me.

Push them to look for what isn't obvious.

A.,

Please, please, please fine a urologist who knows how to diagnose interstitial cystitis. It is a chronic inflamation of the bladder, and it feels a lot like a urinary tract infection. One of the symptoms is pelvic pain that feels like an electricity shooting up from under your pubis.

I went three years with what you are describing before I found an article on IC, quite by accident. If I hadn't found that article, I doubt I ever would have been diagnosed.

Please check out this website:

http://www.ichelp.org/

It is the official web page for the interstitial cystitis association.

Currently, I take 250 mg of hydroxyzine (which is an antihistamine musch like benadryl), and it is the ONLY think that helps my vulvar pain, as well as the constant urge to pee.

Please know that there are very successful treatments, even though IC is a chronic condition. You don't have to feel awful all the time!!!!!

Best of luck!
-C.

I have been having that kind of pain and I was told it's ovarian cysts. The dr put me on a high hormone birth control pill to shrink the cysts, I only just started the other day so I don't know if it will help yet or not :)

Hi A., Do you notice your pain after having any citric fruits or drinks? Do you have alot of bladder problems that seem like a UTI? I think you could probably have IC. You may want to talk to your Urologist or Gyn. I am a Medical Assistant with Women's Health Associates in Round Rock. Pelvic Pain can be misdiagnosed only because there is such a wide arrange of female problems we go through. Hope this could help. Look up IC online and see if you have most of the symptoms.

Well, I don'r know if you are having the same thing as I am, but it sounds like it. I did not go to a regular doctaor though. I had severe pain, but it seemed to be my pubic bone. It hurt so bad I couldn't lift my legs to walk. Kinda like the feeling you get right before you have childbirth. My alternative doc. said it was from childbirth. Having my kids the wrong way, putting so much pressure on my body. You are really going to have to get plenty of opinions from a variety of doctors.

I don't have advice for you. But, I have the same sensation. I first noticed it during my entire 3rd pregnancy. I complained often in the 1st trimester that something was wrong. It was a tremendous pressure on my pelvis. The doctor could not find anything wrong with me. It continued, of course, throughout the pregnancy. Now, 2 years after my son's birth, I still have the pressure. Most of the time, it's bearable, but uncomfortable. I've always assumed it is just the affects of having children. I hope you find an answer that satisfies your concern.

My daughter has a condition called interstititial cystitis. I am not sure that I have spelled it correctly, however, she is 25 years old and has had this since she was 19. It started with a bladder infection that she did not address and turned into this condition that has been difficult to deal with. It is a condition which involves the thinning and ulceration of the bladder lining (I think). She had urgency and frequency problems and bladder pain. The literature describes the pain as being like broken glass in the bladder, but her problems have eased up considerably. She took elmeron for about 2 years and also Detrol-LA until a few months ago. She did some exercises for the strengthening of the pelvic floor which might be helpful to you. Other ,natural things that have helped her are aloe vera pills-not the liquid, vitamin c, vitamin E, quercitin. What has your doctor recommended for you to try? Does he want to do surgery? Has he recommended any medications? More info would be helpful in giving you more suggestions.Are you happy with your urologist? My daughter goes to Dr. Singh.Also, acupuncture can help. Dr. Guoen Wong is the best acupunturist in Austin. I do want to help since I have been dealing with a similar problem with my daughter for some time. Let me know how you are doing. J. K.

Hi A. , sorry that you are going through this , I have the same problem , and I always thought it was kidney stone passing through my ureter the tube like tubes that run from your kidney's to the bladder and down to the uretha, and since ,I do suffer from kidney stones ,and I have passes some in the pass. Thats why I thought that my problem was kidney stone passing, Any how I found this wonderful urologist, after seeing like a hundred or so I also saw Gynecologist , you name it ,and no one could find out what was causing my pain . I have seen a lot of urologist in the pass until I found her , her name is Dr. Cercconie she is with the San Antonio Urology group . She suspected it to be something called Interstitial Cystitis ,IC for short, another way to name it is Painful Bladder Syndrome or Painful Pelvic Syndrome as well. While the exact cause is unknown, many experts believe that IC occurs when the mucous layer that lines and protects the bladder wall is damaged . This allows irritating substances in the urine to aggravate and inflame the bladder wall. , She will have to run a test first to determine if indeed that is what is causing your pain. The test is a little embarrassing , and a little uncomfortable but its not too bad , I had postpone the test at my first apt . for the test because I had heard of the test being really weird , but I am glad that now ,I finally know what my problem is , the bad thing about it is that there are no cures for this condition , and they really don't know what causes it , but there is some treatments to help you cope with the pain .My doctor is really good I am so impressed with her, after suffering for years and no one had found my problem until now . There also is a diet that you have to follow , in order to help you with your pain . You should try and see if this is your problem . Take care of yourself and God Bless , if you want to know what exactly does the test involve , you can email me private and I will be more than glad to give you detail by detail .Good luck and I hope you get better. I think you could contact me through Mama source.A. one more thing my urologist also suggested for me to put one teaspoon of baking soda in a small glass of water and drink this everyday . It is not to pleasant to drink but I do it everyday and it has helped me ..... If you want to email me here is my address ____@____.com thanks for reading my response to your question....