Pituitary Issues Need Help

Updated on April 20, 2010
L.O. asks from Terre Haute, IN
6 answers

OK first of all I have been seeing doctors/specialist since the first week in Jan. I started having issues on Jan 4th with sever dizziness and vomiting and had no sense of balance. I seen a doctor the next day and had a CT scan done and they found something on my brain so it was time to get a MRI got that and my PCP sent me to see a neurologist due to finding something on my pituitary gland the specialist said he said he thought it was nothing so I had another MRI well come to find out I have pituitary lesions and a enlarged pituitary gland which I am not sure what this all means. I have more appointments coming up with a endocrine doctor and a ENT doctor ( for the dizziness still ) I have had a ABR which came back normal so they are at a loss as to why I am still having dizzy spells. I also have to get another MRI done on my pituitary glad again for a better look. I also have had a headache since Jan 4th as well and the doctors have me scared to death. Has anyone on here had issues with their pituitary gland being enlarged or lesions?? If so did you have headaches due to this or dizziness?? Any info or input would be great right now because I have not been getting to far with the doctors and just seem to keep moving on to the next doctor. Thanks in advance.

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B.P.

answers from Cincinnati on

i work in the medical field in a specialty that sees these things so by no means up front i am not giving you medical advise but wanted to provide some information. The pituitary lesion may be a pituitary tumor (aka pituitary adenoma) but the MRI they will get is typically dedicated to give better detail to the gland and tumor. The endocrinologist usually gets a bunch of lab values to determine if the tumor secretes prolactin, a hormone. If so, sometimes they can provide medicine that can shrink the tumor if they determine that it's a prolactinoma. These tumors typically can be monitored with yearly or however decided by the provider, followup MRIs to watch it. They typically don't pose a problem requiring removal unless they are of significant size and push on the optic chiasm, or the area where vision is involved. Sometimes patients are referred to the opthamologist to get formal visual field testing to determine if there are vision issues that may not be readily detected by you. Headaches and dizziness are not common findings of these types of tumors in my experience but it can be frustrating if no one can give you an answer. I hope this was a little helpful.

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J.O.

answers from Dayton on

my friend's wife did.She followed her doctor's directions and did wonderful BUT her dizziness was actually a problem with her eyes that just happened to happen the same time plus she had an inner ear infection.

so you might just want to rule those two out.

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T.S.

answers from San Francisco on

Just wondering if you have thought it could be something else at the same time like an inner ear problem or a sinus problem or even your back and neck are out, all can cause dizziness. So can diabetes, or low iron, lack of food and expecting a child. Also your diet, if poor can cause the symptoms too. So can smoking and drinking and of course drugs, prescription or nonprescription ones. Have you had your thyroid checked lately. How about high blood pressure too. The list goes on and on....You could also have allergies from dust to mold, even cigarette smoke. Milk allergies could do that too or another is gluten intolerance. Hope you get it figured out soon. Enjoy your day.

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E.W.

answers from Cleveland on

My daughter has been going something similar. She has the same symptoms. SHe was diagnosed with orthostatic intolerance. SHe also has a low normal immune antibodies. We also found she has poor sleep so they did a sleep study. Nothing came of that. They did see she a slightly narrowed airway. Her headaches may have been caused by TMJ. We have gotten her an appliance to wear. We also tested for mold and chemicals in our house. The ENT doctor said he could nothing for her but if she needed it he could do a coblation to open her sinuses. She does have allergies and was getting a lot of sinus infections. We now think it is due to the immune issues. Her allergies are being treated by sprays and allegra. We started with our main doctor. And saw an ENT, biofeedback doctor, gastroentereolgist, neurologist, immunologist, and a TMJ specialist. I take her to see an osteopath doctor who has been a GOD send. If you can find a doctor like this try it. SHe has helped me and my daughter. I have thyroid issues. The endocrinologist was not helpful to me. They don't help you avoid the problems. I want a dr that will help me prevent problems. Search for one in your area. They are great.

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C.C.

answers from South Bend on

As others have said, inner ear issues cause dizziness. So does a condition called Vertigo. Look into it, and ask your docs. I know you are going through alot right now, and my thoughts are with you!

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D.W.

answers from Indianapolis on

The Endocrinologists you have locally in Terre Haute are actually very good. Dr. Pittman, in particular, is a very good, respected Endocrinologist, and with IU being a few hours away as well as some of the Chicago area hospitals, I think you're in very good hands.

That being said, I'd certainly not settle until you feel comfortable with everything that's going on and have a definitive confirmation of diagnosis.

Best wishes! As a cancer survivor, the process of diagnosis can be the most excrutiating.

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