Looking to make connections with other parents for several reasons.
Trading notes (on just about anything you can imagine)
Empowering each other,ultimately benefitting our kiddos
Alternative treatments/therapies--love to hear if you have tried anything different, and the out come
Thank you! We are in Austin , TX, but will travel just about anywhere we need to : )
S. P
Stephany:
I do not have a child with CP, but there is a support group in Autin where you can start your search.
Texas:
1) UCP of Texas
900 Congress Ave., Suite 220
Austin, TX 78701
Ph. ###-###-#### or (800) 798-1492 (Texas only)
E-mail: ____@____.com
2) Cerebral Palsy Meetup Group in Austing, TX
I wish you the best and enjoy the special journey you will have with your kid through life.
I worked with a child who had CP and her father (who is the BEST) I am sure that you can contact him on facebook his name is David Bello (Los Angeles). Please tell him that Penny told you to contact him. He is the most wonderful person and father to his precious 6 y/o daughter, he might be able to help you a lot. Let me know
I have just returned home with my 11 month old who has been seeing OT and PT for most of his life for Hypertonia and I finally saw a doctor who gave us a term or diagnosis. The doctor began the diagnosis conversation by asking if I had ever heard of Cerebral Palsy, which, of course, I had, then he went on to say that my son has spastic diplegia. My son has worked past so much of what the hypertone could have stopped him from doing and he hasn't really missed any major milestones, and we are so thankful for that! But it still isn't easy to sit here and read all of this stuff about "permanent" "brain damage", etc... The doctor does not see any concern for his cognitive capability but we're not sure what will come as he is now reaching the age where he should be starting to walk and the hypertone in his feet and ankles stops him from stablizing himself in a standing position. He has pushed through so much already I hope he does the same with walking. They have prescribed "bunny" orthodics/braces that don't go too far up the calf of his leg so he can still move around on the floor. My biggest frustration at this point; which I know is useless to worry about, but I haven't gotten past it yet; is why? I had a completely healthy pregnancy and a perfect textbook delivery without any induction or pain meds. He was 5 days past his due date and was a healthy 9lb newborn. Why has he ended up with permanent brain damage?!
We are adopting a 3yr old little girl from Ukraine that has CP. We know it affects her right side and her right foot is turned in and her right hand is tight, she also has strabsimus which affects her right eye. We have alot of work ahead of us when she comes home, hopefully by August, but we are so looking forward to being home with her and giving her everything she needs and deserves. So while I don't know much now other than the basics (and trying ot learn more every day), it a few weeks I will be thrown into a hands on crash course! LOL!
Hi I am a mom of a son (Keith) who has CP, he is a left hemiplegic. He will be turning 30 years old in a couple of weeks. He has been married for two years and is a member of the US Men's Paralympic soccer team as the goal keeper. You can do a search on the team and look for Keith Johnson. Would love to chat with you, encourage you etc. Having been down that road while Keith was growing up I can at tell you that it has been a joy to see what Keith has accomplished. I am located in North Houston, (Keith lives in this area also). Please contact me at ____@____.com.
My youngest son has spastic diplegia CP. He is 18 months old, and such a miracle. He wasn't supposed to survive past birth (emergency c-section 2 weeks early). The cord was wrapped tightly around his neck, resulting in the CP. Fast forward to now, he is rolling across the floor and sits up in a tripod position (I have to get him in sitting position). He has leg braces called AFO's, and they straighten his legs so he can maintain his balance and walk without crossing his legs one over another. He stands along furniture and will walk towards me when I support his underarms. Every doctor told me he wouldn't survive past birth, would be in a wheelchair, would be blind and have no quality of life. He DID survive, he is MOBILE with assistance, he is NO LONGER BLIND (had corrective surgery when he was one in both eyes) and is a survivor! Recent mri's show he has full intellectual function, just damage to the brain controlling his coordination. I am so proud of my little man!! Send me a message and we'll talk more!
