McCune-Albright Syndrom? IDK.....

I'm gonna try to make this short but know going in, that's not a reality.

In March I took my 5.5 yr old to the doc for smelly pits and mild acne on forehead. Doc said sweat glands could be a bit over-active so she may be smelly. She recommended regular bathing (had been taking daily showers for a while) and to try a different soap for her forehead. Also to pull her bangs up in case the sweat can't get out. The doc really didn't see any acne but humored me anyway with a suggestion. While she did not eat a lot of candy (chocolate specifically) or drink a lot of pop (only every now & then at a restaurant), we cut it back even more.

Kindergarten starts in August and we need a Kindergarten screening! We go to the doc in July. My dd has always been a bit tall & heavy for her age. Always proportionate, but bigger than the other kids. Welp, she was in the 90th percentile for height and weight. No big surprise but a minor sign of early puberty. The doctor then noticed the acne, that had become much more prominent at that point. Another sign. So they are doing a complete physical and see her girly parts are irritated and have some discharge. Another sign. Then they check her breathing & look pull up her shirt to look at her skin. She has a bunch of café au lait spots. Like 11 or something. They're not big but all over her back. So the doc is starting to get more in depth asking me questions about family history on both sides etc to see if any of us anywhere started puberty extra early. Nope. After checking more, there was no pubic hair, underarm hair or breast development so the doc said we're "on watch." If we notice any changes, to call her for an appointment. Otherwise, we'll follow up in 6 months.

Insert changes here: We are almost 6, but still a few weeks out. We have darker, longer hair down there. It started off as one. We thought maybe he was a rogue soldier. Tonight, we noticed the rest of the army coming out. She's been extra sensitive lately. She cries at the drop of a hat. Not so much grumpy or defiant, just..... touchy. She has complained a couple times of a headache across her forehead (child migraine). She threw up the other night in the middle of the night. No warning signs. No upset tummy. Just, puke & sleep. No fever either. All signs of puberty. ...But she's only 5.

So, obviously I'm calling the doctor tomorrow for an appointment. I'm sure we'll end up doing blood work & all that good stuff and likely being referred to a pediatric endocrinologist. At first I was scared and really upset over the possibilities of early puberty. I mean, how do you explain to a sensitive 5 or 6 year old why she has blood coming from her hoo-ha? But we've been doing a lot of online research and I'm OK with whatever we have to face. Be it, seeing puberty through at age 6 or stopping it all together... And we're in constant communication with her teacher as well. Her behavior at school is still good and her grades are even better. Shew!

But..... here's where my question really is: The doctor told me to go home and google café au lait spots. I had never even heard of the term before. I always just thought she had a lot of birth marks. But it being in conjunction with the possibility of early puberty, I googled them separately and then together. Early puberty and café au lait spots often times go hand in hand and are common symptoms or side effects of McCune-Albright Syndrome. The third symptom/side effect is bone abnormalities. Typically in the femur. Then other leg bones. Pelvis. Ribs. Face/skull. She, at this point anyway, doesn't seem to have any abnormalities. Her face is beautifully symmetrical and not disfigured. Her head seems perfectly round to me. She is very tall but one leg isn't longer than the other causing a limp or anything. She's never had a broken or fractured bone. She complains of growing pains in her shins sometimes but I remember doing that as a kid myself. So, the question: If she does have McCune-Albright Syndrome, at what age would the bone abnormalities become noticeable? Would they already be? Are we still at risk for abnormalities to occur?

If you have a related story to help us as a guide, that would be great. Early puberty is nowhere in our families and she is our only child so it's not like we have a reference for any of this. I will say, she never drank much milk (until she started K). Now she does. But we did make sure she got calcium through yogurt, cheese etc. She does not eat any red meat. So I don't know if cow hormones are really much of a factor. I don't know though.

Please, if you have any info to share, do so. I have searched every way I know how to for a timeline for the bone disfigurements and I can't find a thing. Thank you so much!