Lupron Depot Treatment for Endometriosis

Updated on December 04, 2008
J.S. asks from Miami, FL
12 answers

hi Moms,
I have posted here before about my endometriosis, and I am sad to say that it has come back! My son will be two in December, and as of lately I have been experiencing cramps everyday, even though I am not having my period. My doctor says he thinks my endo is back, and has recommended the Lupron Depot as a treatment. He wants me to have it for at least two months, and if my cramps go away, then he wants me to have a laproscopic surgery.
I have had Lupron before & experienced hot flashes & other fun side effects....dr. says he can give me hormones to help w/side effects, but I am 41 & I smoke (I know, I know...don't tell me it's bad, I am well aware if it!!), so I am concerned.

Have any other moms had this treatment before? What were your experiences with it? Did you have bad mood swings? Did the vaginal dryness affect your sex life?
I take vitamins every day (Multi-vitamin, calcium & magniesium, B-complex).
I will try accupunture, which has helped in the past, but that was when my insurance paid for it.
Now, my insurance is not covering any thing -the Lupron itself is almost $600.00 per shot!!!

What can I do next?

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L.C.

answers from Boca Raton on

I have also been asked to get on the treatment and decided not to go with it. I heard about some many side effects that I'm really scared. My original option was to get on birth control again so I think i'm going to do that instead. I hope things work out for you but it looks like no matter what is done for this illness it always comes back so why go thru the expense and side effects of the Lupron.

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R.A.

answers from Boca Raton on

I want to tell you that you can completely get rid of your pain and suffering with endometriosis through diet alone. I had it too, I had excruciating doubled over pain and now I am pain free. I know so few people have as much faith in diet as they do in the medical profession but I am living proof. If you eat a diet of whole fresh foods-grains, beans, veggies and completely eliminate processed foods, sugar and dairy within 3-4 months you will reap the rewards. If you go back to a typical American diet, you will again suffer. Sugar are dairy are killers to our body. Sugar weakens the immune system and dairy clogs us our bodies and causes tumors and cysts and all sorts of other ailments. www.notmilk.com
If you'd like more information, feel free to contact me.
Peace,
R.

2 moms found this helpful
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B.H.

answers from Miami on

Hi J. -

I've lived with endo issues for the last 25 years. My problem is it's usually not found where you normally find it. I had one cyst that was actually palpable, attached to an outer area of bone. SO not cool.

I'm not a huge advocate when it comes to prescription drugs, but not adverse either when natural products don't do the job. Over the years, I've tried to manage my symptoms with everything from diet to all natural yam based progesterone cremes. I've been given the Lupron alternative but never felt it was right for me. Symptoms lightened up for years after having my 2 kids, but 2 years ago a new cyst formed in an area that would be difficult to remove. When my monthly cycle would hit, I would be out of commission for at least a week with severe pain. It was suggested I try an antidepressant (basically prozac) since endo is so hormone based. Initially I took it daily, but, working with my dr, tailored the dosage to focus just around my cycle. OMGoodness - I'm a new woman. The difference is literally Jekyl & Hyde. One month I was off and my husband knew right away (and was sure to tell me) that I needed to take my medicine. OY!

I use a mail order pharmacy thru my insurance company and pay $5 for a 3 month supply.

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M.P.

answers from Ocala on

Hi J.

I have had this treatment in the past and it really did help although I did have some side effects. It's going to vary from person to person but I did have hot flashes, mood swings and vaginal dryness. The hot flashes were the toughest for me. My mood swings were really only bad one day after I received the shot, after that it really wasn't that bad. The vaginal dryness did affect my sex life but it was only temporary and like I said the treatment really did help me. I guess you just have to decide if the symptoms you're having right now are bad enough to go through this temporary discomfort.

Good Luck.
M.

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J.H.

answers from Pensacola on

J., I had that treatment and I began to grow hair on my chin, and on my chest. I will never do that again. I felt better sure, but, now I have the cost of weekly waxing and now, electrolysis. Consult with your doctor a little closer. Is this in conjunction with fibroids? or is this only scarring in the wall of the uterus? If fibroids are there they can add to the sx. Try embolization for them, many ladies I know say this has worked for them.

Jen

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L.B.

answers from Port St. Lucie on

Hi J., Yes, I had the Depo treatment. I had stage 3 endometriosis, I had been trying to conceive for almost 10 years, after those 10 years, I finally got pregnant, and then miscarried between 11 and 12 weeks. My dr noticed what he thought were cysts when I was pregnant, and figured they would go away as the pregnancy progressed - they did not, he ended up doing a laparoscopy - finding the end had completely surrounded my ovary and fallopian tube on the left side - there was no saving it, both were removed. That is when the stage 3 was found - my dr said it was an absolute miracle that I was able to conceive, because it was so bad. So I had the surgery, followed by six months of Depo treatments, yes, I had the hot flashes, something horrible, there was some stiffness at the injection site - (make sure they rotate sides, usually you get it on the top of your backside) and it will be a little sore, cause they go into the muscle - but besides the hot flashes, I really didn't have other side effects. Best part was, no period either for six months!!! And then, to my amazement, six months after my last injection, I became pregnant!!!! I am now a proud mom of 4 babies - well, ranging from ages 3 months to almost 8 years! I would DEFINITLY go through w/ the treatment - however, my dr also told me that once I was done having kids, as there is no cure for endo - that I would probably have to have a hysterectomy - but knock on wood, almost 9 years later, my period is okay, and very very little cramping. Keep us posted, and if you have any other questions, please feel free to email me at [email protected]____.com! GOOD LUCK!!!!

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E.D.

answers from Daytona Beach on

J.,
I feel for you. I have endometriosis also. I should say, I had it. I'm pregnant again for the second time, so I don't have it right now, but it did come back after my first child. I was on Lupron for 7 mos. I personally did not like it. It did make my pain go away and supress the Endometriosis, but I went into menopause and that was just as bad. Mood swings, hot flashes, sleeping problems, abdomen swelling. It sucked! I have also had laproscopic surgery twice. That sucked, but it was over quicker and gave me more longterm results. The Lupron is only a temporary result. I would recommend that. the recovery time is just a few days and they can go in and actually fix the problem with very little risk. Good luck. I wish you the best.

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M.H.

answers from Fort Walton Beach on

Hi J.,

Lupron Depot just mimicks menopause by LOWERING hormones. If your doctor GIVES you hormones to replace them then you are contradicting the benefits, if any, of the Lupron. You will have those symptoms again and I'm not sure if you know or not but it is also depleting your bone mass. This is terribly hard to regain, of course not impossible with discipline and hard work.

Your vitamins will help with nutrition but you need to make sure that they are absorbing AND if the minerals you are taking are isolated, then they are causing free radicals and doing more harm than good, maybe even causing your endometriosis. I only know of one multivitamin/mineral complex that does not cause free radicals unless you are on a whole food supplement and then you are not getting enough of the whole food crammed into the capsule for enough nutrition.

If you'd like to talk, I'd be glad to give you some direction to go in. It can be an inexpensive solution. Take a look at my website and see who I am and why I do what I do. I'd love to help!

God bless,
M.
www.squidoo.com/ifyourbabycouldtalk

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M.L.

answers from Miami on

I will keep it brief since everyone seems to say the same thing :) I had very severe endo and did the Lupron and laproscopy. It was hell and I am lucky my marriage survived. I had every side effect mentioned by the others including my hair falling out in huge clumps. I am happy that I was able to have two children. I nursed exclusively and my cycle didn't return until my second was 14 months old. It returned with a vengeance though. My gyn confirmed that my endo was coming back. I decided to treat it with b.c. pills. I had to change a few times and I finally went on Yaz. I have been on it 5 months nearly and I barely spot each month and no cramps or pain. I think I am more bloated than usual but it is sooo worth it. Feel free to email me privately. I am sorry that others have this problem too.

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L.M.

answers from Miami on

I was on Lupron for 3 months prior to surgery. I was unable to do it without hormone therapy. My hot flashes, mood swings and severe headaches were unbearable, The hormones allowed me to finish the course of Lupron. You should discuss the pros and cons with your doctor. Ask if you should be concerned about taking the hormones. Will it be that dangerous for you for a short time. Perhaps you could quit smoking for a period of time before taking the Lupron (and hormone therapy) therefore decreasing the risk of serious side effects

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S.E.

answers from Miami on

Hi, I had stage 4 endo and had surgery in August which DID NOT help :( Before that I too had the Lupron shots and was horrible on it with side effects. I got to the point that my DH would say good morning and I wanted to take his head off. I do not know what to tell you but when I just went back to Dr and told him still having pain he told me about the Lupron again and I said NO WAY because that is no way to live. I am also so upset about it because to have suegery and stil be in pain is no fun and espically when i have twin girls 15 months and could not pick them up for 1 month eventhough he told me 2 weeks in the begining. Wishing you all the best and if you want to talk, e-mail me or call ANYTIME.

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C.M.

answers from Melbourne on

Hi J.!

I'm sorry, I don't know about the Lupron Depot, but I have just been to the ob/gyn for a checkup this week. Since the inception of my periods at age 14 (I'm 37 now) they have been very, very difficult as far as the bleeding, cramping, length, moodiness, etc. My ob/gyn asked if I wanted to try a procedure called "endometrial ablation." This is only if you are finished childbearing, can be done in 30 minutes in an office visit, and the recovery is estimated at 1-2 days. Many women report having no further periods at all after this procedure. (I can't wait to have it done! Hopefully, I can do it before the end of the month.) Ask your doctor about whether you are a candidate. Here is an excellent article for you to read from webmd.

http://www.webmd.com/menopause/features/surgery-you-proba...

Luck!
C.

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