Looking for a Support Group of People with Children with Asperger's

Updated on March 10, 2008
B.B. asks from Rockwall, TX
17 answers

I have a son, 11 yrs old. that was diagnosed with Asperger's Syndrome @ 9 yrs. I am looking for a support group of people with children with the same diagnosis. He is ADHD as well -- they ususally go hand in hand. It is exhausting, to say the least, to live and deal with a child with these particular problems.

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S.B.

answers from San Antonio on

http://www.netnet.net/mums/ Give this site a try. She can match you up with other Moms that have the same syndrome. I have talked to her about 17 years ago when I found out my daughter has CP and learning delays. I have found if you live in a state capital you will find a better special education program.

1 mom found this helpful
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C.M.

answers from Dallas on

Have you tried using Google? I found several support groups by putting in Aspberger's support groups in Dallas, Tx.
C. M.

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K.H.

answers from Houston on

I too have a son who is 14 and was diagnosed with Asperger's 2 years ago. we tried the vitamins, the diet change, counseling, you name it. What we have found that works is not only is he on medication, which really stinks but he is happier to be on them, but we have also went green. We use no harsh chemicals in our home or on our body and it really has made a difference.

Feel free to email me and we can talk, or go to my website
[email protected]____.com

www.mykidsaremyeverything.com

1 mom found this helpful
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M.T.

answers from Dallas on

>From: FEAT-NT Board of Directors <[email protected]____.com>
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>Subject: FEAT-NT Events
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>Who: Parents of Children with Autism or Other Developmental Delays
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>Where: FEAT-NT Resource Center & Library
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>Costs: $350/Family (Maximum 2 persons per family) Course Materials and Refreshments
>will be provided. We apologize, no childcare provided.
>What you will learn:
>·How Behavior Analysis approaches teaching new skills
>·How to teach basic and advanced forms of Verbal Behavior/Language
>·How to develop and foster play and social skills
>·How to effectively deal with challenging behavior
>·To teach your child how to be more independent at home and in the community
>·How to make a happier more positive environment at home
>·Ways to better encourage your child
>·To help your child enjoy fulfilled activities that will result in a more meaningful
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>·How to approach mainstreaming and determining appropriate school placement.
>If you are seeking to maximize your home as a learning environment, and you're eager
>to learn and practice new skills in a light-hearted and pleasant atmosphere, then
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>Space is limited to 30 families, so call now!
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1 mom found this helpful
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N.I.

answers from Dallas on

HI,
There is a very active support group for Asperger's. It is called DANISH, Dallas Asperger's Network for Information, Support, and Help. Here is their website http://www.aspergerinfo.org/
They have a Yahoo list you can join.
http://health.groups.yahoo.com/group/DallasAspergerNetwor...
Tell them, N. told you about them. They are a wonderful group. They meet monthly and also get together for other things. The list is a great resource to get information about professionals and schools. For the past few years, they have had a Day Camp for a week in the summer.

In Christ,
N. 2 of 5,
Borg Mom Resistance is Futile in finding what works for my kids
Nick, 22, AS, ADHD, + CAPD
Ben, 19, AS + ADHD
Matt, 16, very AS, ADHD,+Complex Partial Seizures of the Temporo- Limbic region

God knew there would be children with Autism - and in honor of them He made
the planets in the solar system spin round and round, round and round.....
Author, unknown

1 mom found this helpful
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M.M.

answers from Dallas on

There are some support group links on my nephew's autism awareness site www.camsvoice.com
YES you need some support :) Especially with your husband traveling so much! I also have some friends with children with Aspergers and Autism. I will PM you their email addresses. Have you read Jenny McCarthy's new book? I just finished it. It is very informative.
Visit www.LiveTotalWellness.com/texas to request info and learn about safer alternatives that help with these conditions if you have not already converted the chemicals out of your home and personal care products. I know this is usually the first thing doctors recommend when children are diagnosed with Autism spectrum disorders and ADHD. It helps tremendously with reducing symptoms of both. :)

1 mom found this helpful
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B.N.

answers from Houston on

Hi B., I do not know too much about Asbergers. But I do know that the school has done their own diagnostics on my little girl and informed me that they believe she has Asbergers and ADHD.
My personal opinion is that it is over rated and not to be much of a fuss about. That is the childs personality.

But what I do to keep things calm and more in focus is change her diet and provide her with vitamins.
The diet change is; avoid sugars, gluten and wheat, red dye, any food with dyes and perservatives and fried foods.
And the vitamins that I give her is Attentive child and Omega 3,6 & 9. This helps alot

1 mom found this helpful
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T.O.

answers from Dallas on

Well, Rockwall is out of the LISD area but we have a Special Ed PTSA and there are groups within SEPTSA, that get together from time to time.

My son, 17, has Asperger's. I'm the high-school Aspie organizer for the SEPTSA... and I haven't had a lot of luck getting the high-schoolers together since I signed up for this in November, but I'm hoping to have better luck this Spring. There's a middle-school group too, if you go to the website you can contact that organizer.

However, these are out of your area... maybe your Council PTA has a Special Ed group too. If not they should start one. Ours is really new, but they are going growing so fast.

I have a website in progress where I'm trying to create a stepping stone for people to connect and to share on line about their Aspie lives or the Aspie in their life. Hopefully I can get that done soon too.

Feel free to PM me anytime... [email protected]____.com

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S.J.

answers from Dallas on

B., I also live in Rockwall and my 11 yr old son was diagnosed with Asperger's last year. Unfortunately, Rockwall ISD offers one of the worst special education departments when it comes to funding (extremely understaffed!!!). More recently, I have come to question my son’s original diagnosis as I have found out that he did not receive all the proper testing that should accompany an Asperger’s diagnosis. It has been worse than pulling teeth to get the school to offer him any modifications since they did not do the original testing (modifications cost money). Feel free to email me; I would love to compare stories.

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H.J.

answers from Dallas on

B.,

I also have a chid that has been diagnosed PDD/Asperger's, it is exhausting. I have tried diet changes, avoiding certain things, and sometimes they can work. But that is your families choice! Doing some research in the past I have found a group in Richardson that is a support group for children with Autism, and I think focuses on Asperger's. I have not had a chance to attend, but I found it by doing a search on Google.
Also, my son attends a school called Vanguard, I don't know if you have heard of it. It is a great place for kids like ours to help them develop social skills and helps manage behavior. The Autism Society of Dallas meets there once a month, you can call ###-###-#### to see when they meet.

H. J.

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C.G.

answers from Dallas on

Dallas Asperger's Network on Yahoo Groups is a great resource for high functioning kids.

And before anyone listens to a school district poor mouth about special ed, be sure to look up how much they are spending on special ed litigation. As one law firm's seminar worded it "Autism litigation is HOT!!!"

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S.

answers from Dallas on

Hi B.,

Have you tried contacting ASCC (Autism Society of Collin County)? They offer a wealth of information.

I hope that proves helpful. I am an SLP, and have many clients who have found ASCC to be a wonderful resource.

S.

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D.P.

answers from Houston on

Well I am not sure of what is up there, but we are near Houston and we are having a health fair this afternoon. But you can go to Oasis Website - they have a talk group on just Asperger's. My son was diagnosed at 7 and is now 9 and I can very much undertand what a workout it can be. He gets into as much stuff as a 2 yr old would sometimes. But then he does stuff that is so sweet and you forget all of the pant wetting and the fights at school etc....

D.

T.C.

answers from Austin on

I live in Austin, TX. My son is only 6. For the last 5 years, I have been going to regular playgroups through a mom's club, but that's fizzled now that all the kids are school-aged. We have just found a family counselor that specializes in austism and aspergers, and is supposed to meet with groups of kids.

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D.R.

answers from Austin on

Hi, B.!
I am a clinical social worker in Austin and so is my husband. We're also parents of two kids. :-) He actually facilitates a group for boys with this diagnosis. Many kids with this label are quite bright and sometimes have a specific area that they love to learn about. Basically, they just need some help and practice with social skills because they don't pick up on social cues as readily as some other kids. Lots of information is currently available.
Ask the professional who made this diagnosis what services are available in your area.
The counselor at your son's elementary school would probably know of services also.
Also, in my personal opinion...diagnoses are just labels that help us narrow down how to deal with and help behaviors.
Good luck!
D.

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G.D.

answers from Dallas on

I have a 14 yr old son who also was diagnosed 2 years ago. Like your son he has ADHD also. There are some great groups on yahoogroups.com for Aspergers. One is for families in Frisco/Allen/Plano. Not quite Rockwall but close. There are various meetings, ASCC especially, that you can come to.

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D.M.

answers from Dallas on

Don't know of a particular support group but I do have a wonderful Speech Pathologist that works with all types if issues. She has PT's, OT's, Eye Dr, Allergist, Audiologist, and a Nutritionist that she works with.

Sally Bober
###-###-####

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