Juvenule Rhumetoid Arthritis

HELLO
I WAS DIAGNOSED WITH JRA WHEN WAS 15 AND IT WAS MY RIGHT KNEE TOO. I HAD ORTHOSCOPIC KNEEE SURGERY AND WAS PUT ON ALOT OF MEDS THEN WHEN I TURNED 18 FOUND OUT I HAVE LUPUS-- SO MY ADVICE I DONT KNOW WHAT KIND OF DOC YOU HAVE BUT IF ITS NOT A RHEMOTOLOGIST YOU SHOULD REALLY GET ONE. ALSO THEY HAVE SO MANY MEDS OUT TODAY ITS RIDICULOUS THEY CANT HELP HER!! MY RA I CANT IMAGINE NOT BEING ABLE TO REALLY EXPRESS MY PAIN. SO BUT HER BEING SO YOUND I DONT KNOW WHAT THEY WOULD GIVE HER DARVOCET WITH TYLENOL HELPS ME WIH PAIN AND SWELLING. I HOPE I HELPED IF YOU NEED A DOC OR TO TALK OR MORE QUESTIONS EMAIL ME ANYTIME!--A.--

Hello S.,

I feel bad for your young daughter. A few summers ago I had post strep arthritis. It lasted most of the summer. It is quite painful. I took a lot of ibuprophin for the pain. I did notice the pain was worse in the morning. Try have her do some walking, but not too much. I know it's hard to keep a 3 year old still, but try. Have you looked into some natural remidies? That was going to be my next step, but then I started to get better. I am sorry I don't have much more info. for you. Hopefully someone else can offer you better advice. I will keep your daughter in my prayers.
K.

Sharon, I don't know how you feel about alternative health care, but I have had great success, though not personally with RA, seeing a naturopath. Please, please look in your area for a registered naturopath and take you daughter to him/her. So many times medications for many ailment don't work because the particular ailment is caused by diet or some other cause. If you cannot find one in your area, email Jeff Essen at ____@____.com and tell him I (K. new) referred you to him. He may be able to help you or help you find someone. Good luck!!

My daughter was 3 when she had severe pain in her knee, hip, ankle, elbow, and toe joints. There was no swelling, though. But she did have the elevated liver enzymes that goes with JRA. She went through weeks of testing and it was decided it was a reaction to a virus instead. But, my point is, I understand how awful and helpless you feel for your poor child. We did see the JRA specialist in Omaha. He seemed pretty good, and we have a 2nd cousin who has it and he sees this doctor and loves him. They had to find the right medication before he was out of pain, but they did find it. So, keep on the doc to find something that works.

Gee, that's hard. She's so young. I just wanted to let you know I have you in my prayers. I wish I could help. God Bless you and Good luck.