Juvenile Idiopathic Arthritis

Updated on April 01, 2013
R.C. asks from Kansas City, MO
7 answers

You Mamas (and daddy's) have been so great in the past. Just thought maybe I can get some answers to my worries. My youngest daughter, 3 years old was diagnosed with Juvenile Idiopathic Arthritis in her left knee back in January. We have tried everything the doctors has requested. Naproxen for around 2 months, (did not lower the swelling), a round of steroid, (which has not helped) and now we go back to the doctor on Wednesday for her 6 wks checkup after the steriod shot. Her dr and I have discussed several treatment plans and decided to go with less advesive first and move on from here. We have tired everything he has said but the next step would be to go daily medication (can't remember the name of it) but with that medication they would need to check her blood work every 3 months. I am worried that if we put her on this new med that something else will go wrong and we would have to fix that. I am a worrier and will/have taken my concernes with her dr. Like I said, we go Weds for her followup but just need advice from some other parents that have been thru this. What has worked for your child? Any complications as they grow older? I'm just a little worried. TIA for anything you can tell me!

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So What Happened?

Thank You so much for the suggestions. @ Janetta A: That is the medicine they were referring to. I am just worried about putting heave meds into a 3yr old. @ Mareen H and Melissa K: I am going to talk with the doctor tomorrow about the Gluten Free diet and see what he suggest. @ Marda P: thanks for the kind advice and putting helping me not worry. It is good to have someone know what I am worried about and kind of understand. @ Marla H: Thank for the kind thought! You Guys are the best!

More Answers

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J.A.

answers from Denver on

Is it methotrexate? My son has JA. He takes methotrexate 1 time a week. And naprocin as needed. I do not know what they would be giving her daily, but, my struggle with this was the methotrexate and the Humira (which we are now off). The MTX can cause liver issues, that is the reason for the blood test. The Humira ( as well as other TNF blockers) raise cancer risk especially when used in children. This is a terrifying thought, but my son was miserable, arthritis will rob a child of childhood. You have to let them be able to live their life now and just pray for the best long term option. I know this isn't easy.

2 moms found this helpful
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M.K.

answers from Dallas on

Have you looked at a gluten-free diet? I recently read an article about a mom in New York (I think) that put her son on a GF diet and his arthritis cleared up after about 6 weeks.

2 moms found this helpful
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M.H.

answers from Chicago on

I like Melissa's answer.. If Migranes, behavior etc.. can be changed, I would do that first before meds.

Take out all GF foods, MSG, Dyes etc.. go to a Fruit, veggie, meat diet for a while and see if it makes a difference before meds.. (Paleo diet?) Just get as much as the processed garbage out of her diet, see if there is any change.. I would give it an honest 3 weeks to clear out of her system, and see if there are any changes..
Good luck.

1 mom found this helpful
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B.F.

answers from Dallas on

Try to find an online support group if you don't find info here
Also ask her doctors office for a support group near you.

http://www.mdjunction.com/support-groups

1 mom found this helpful
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M.P.

answers from Portland on

My grandson is on a mental health medication and has to have his blood checked every 3 months. It's not a problem. The blood work will show a problem and he would stop taking the medication. There would be no lasting affects. Talk with the pharmacist or his doctor to find out what they would be looking for in blood work and what the negative affects would be and whether or not the medication could cause a more serious thing to b corrected.

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M.S.

answers from Portland on

I was reading something a few days ago about an inflamation diet, I think it might have been mentioned on Dr. Oz...I was wondering if that might help..I don't know for sure though.

I am sorry for you that you have to go through this and so does your daughter, I'll send good thoughts your way.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

S.H.

answers from Des Moines on

I agree with Maureen and Melissa.

Arthritis is inflammation. Start researching it, and start thinking about food intolerances/allergies. It is worth a try before major medication.

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