We just got home! I am so happy to be back here with everyone!! He is up playing with brothers!! So, I am pretty sure he was released in good time. He had two pieces of toast with peanut butter on them this morning for breakfast and has been sipping on whatever is closest too him all day!!! I am so glad that we got him in when we did. You would never believe that he even had a mouth full of bloody sores on monday. The only few remaining are on his tongue and then the top lip is still scabby....but his gums and bottom lip look amazing.
He is having some trouble on getting re-acquainted with brothers. So, my question is...how do I help him make an easy cheesy transition back home? He is upset if they even sit by him the wrong way right now....I know being away for the past three days has been hard, I know he was more then ready to be home with everyone? How do we get him to take it one step at a time?? Without getting everyone in a bad mood?
I want to thank everyone yet again for all the prayers and support! Without any of it I would have had a tough go with it all.
I do have help lined up for next week still. My church is bring us dinner Monday, Wednesday and Friday...and then help during the day whenever I need it. I am hoping that over the weekend we can get things back to normal:)
The rest if the kids finished up the yucks Tuesday. My littlest guy was still throwing up in the morning, but has since turned the corner and is back to normal....And I love normal!! I feel like summer can begin!!!
We are going to buzz up a treat for the Nurse's at Children's tomorrow:) We are going to maybe get a few cards and some balloons! We also made the whole gang a few pictures we left on the white board. It is funny how three days with a bunch of people you dont know...and be sort of sad to say by to when everything is said and done. I cant believe how wonderful every single staff member was there though!!
I dont seem to mind the whining and fighting now that we have had it for about 15 hours...minus sleep time...I found I have missed alot since being gone!!
I'd let them work it out on their own as long as they don't start hitting each other. He's been (rightfully so) the center of attention while having many of his whims catered to. It'll take a day or two for him to fit his fit again with his siblings.
So glad he is eating, drinking and playing again. That's fantastic.
Hi M23,
I just picked up this thread. Did the Children's doctors talk to you about doing additional testing for primary immune deficiencies or autoimmune disorders on your little guy? Don't mean to scare you, but oral herpes to the extent your son had them (from the sounds of your posts) is kind of uncommon in children, depending on the type of Herpes virus he was infected with (there are several kinds).
Any idea how or where he contracted the virus? Did your son ever have Chicken Pox (Varicella zoster, which is human herpesvirus 3)? If so, reactivation is what causes of shingles (same virus), but it's REALLY rare in kids (usually occurs in adults over 65), and usually appears along a single dermatome (nerve branch) on the trunk (not that it can't appear in the mouth, it's just a lot less common). Reactivation can be caused by severe stress or immunity issues.
Could your son have been infected with Epstein-Barr virus (human herpesvirus 6)? Most of the population is infected with EBV as young children, so there's a decent probability of this, but I would think he'd have had other symptoms, too, and the docs would have tested for EBV and also CMV (yet another herpesvirus) specifically. EBV could cause severe mouth sores and pain, but again it's pretty rare for young symptoms to have overt symptoms to EBV without some other underlying other pathology. Most children have no or very mild cold-like symptoms with EBV infection. Nastier symptoms are usually seen in teens and adults (infectious mononucleosis).
Herpes simplex I (HSV-1) is a very common virus in the population, usually occurs in the mouth and on the face, but is usually mild. Again, severe cases usually occur in people who have autoimmune diseases or immune deficiencies. HSV-2 is also common, but is usually associated with sexual activity, although if you're infected, it could have been transmitted to your son during birth if the infection was active. You could be infected and never know it, and could have been having an active flare during birth and not known it either, so don't feel guilty over this one (or any of the others, for that matter).
If your kiddo is normally very healthy, then this could have been just been some really weird fluke of a response to whatever other virus was causing the nausea and vomiting symptoms, or he had a coinfection with another virus and one of the herpes viruses, which was just too overwhelming for his immune system to handle this one time. If his health history shows a propensity for viral or bacterial infections, however, you might want to talk about this with his pediatrician.
I'm glad to hear your little guy is doing much better now, and that you're all coming out of the other end of what sounds like a really horrible experience. Good for you mom, for holding it all together!
Glad to hear all is well!!!!
I'm so happy he is doing better! Just give him time... his whole system and world was turned upside down for a while, so it may take a bit of time to get it back to running smoothly.
Sure they are a bit put out. He had Mama all to himself for a few days. However if you read a book separately to one of the other boys and take another shopping with you while the other two are with Dad it'll work out.
YOU MADE IT!!!!
So happy for you and yours, Libby. I hope his health his lasting and answers have been found.
Transition is rough, but doesn't last forever. I hope you sleep well tonight in YOUR OWN BED!!!!
Big hugs.
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Good to hear! Take care of yourselves!
I just had to answer, because (anecdotally with my kids) I've noticed an interesting trend when it comes to recovering from an illness (fever especially). While they are sick they're sleepy, sweet and cuddly. When they start to feel better their activity level picks up, but their mood is volatile! Lots of crankiness and screaming. So I think it just means that your son is feeling better and you're going to have to deal with a good bit of grouchiness for the next few days before everything goes back to normal. So glad he's on the mend!
So glad that everyone is feeling better, and are home!!! Been a tough week for you but it is nearing its end. And at least the worst is behind you.
I think the boys will get reacquainted and back to normal just fine on their own :) He's probably just getting used to being home.
Take it easy and get some rest girl, you must be exhausted! Have a good night and hope things get better and better!
Hugs to all!
Thank goodness everyone is getting better! And the people at the hospital will be grateful for your kindness. If you remember the names of people who truly went "above & beyond" for your family...nurses, aides, tech's, people who brought in food trays, cleaned, etc...it's nice to send a note to the hospital's personnel dept...it sometimes goes in the file and the individual is notified, if not immediately then at the time of their annual evaluation.
So glad you're all home and getting back to normal :)
