L.M.
Hi M.,
I don't know where you are located but I would highly recommend Loma Linda's Maternal Fetal Medicine. These are GREAT doctors that specialize in this sort of thing. Loma Linda is also great for NICU. When my son was there a few months ago for some surgeries there was a one month old in the bed next to him. During the ultrasound they realized her heart was inside out. They did not expect the baby to live through delivery. After several surgeries and a great team of Dr.'s the little girl was healthy and about to be released from the hospital. Good luck.