Caring for Young Adults with Schizophrenia

Updated on March 04, 2011
R.M. asks from Atlanta, GA
7 answers

I am looking for a group of moms to network with on learning to deal with and to properly handle my child that has just been diagnosed with paranoid schizophrenia. It has been 1 week, and the doctors tell me that my daughter may never fully recover and that she may have to be medicated for the rest of her life. I've been reading and gathering all kinds of information about the disease, but I haven't been able to loctate much info. on how to live and care for her as a family member with this dibilitating disease. My daughter is now 20 years old and was not attending school, nor was she working. She didn't have insurance, therefore, she is controlled by the state. I also need advice on how I can get some insurance for her. Little did we know as parents what signs to look for that would have given us a sign to realize that she was truley suffering. As we collect info from her doctors, all the signs were there. We just thought she was depressed due to the break up of her boyfirend and that she'll come around and get her life back on track. Life has many surprises. But I also believe that God puts people in our lives for a reason. I am now searching for that person or people.

please help'

R.

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N.A.

answers from Savannah on

I only hope for the best for you and your daughter. My Husbands Father had been diegnosed with it as well in the early 80's and has since dissapeared from the family. My Husband (now 25) has been showing signs as well. I also got myself educated and I came to learn that some doctors believe its heridetary. My husband does not go to the doctor anymore, he has decided to let himself go unmedicated and it has been a struggle at times. My heart goes out to you, good luck in everything you do.

1 mom found this helpful
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L.F.

answers from Atlanta on

I dont know alot about this but she should qualify for SSI or disability and that automatically comes with medicaide. It can be a long process so start now . Try searching schizophrenia forums ga and see what you find . My youngest has bipolar and I found alot of info like that. I'm sure there are groups also.
I wish you all the Luck I know it's gonna be very h*** o* your heart. Write me back if you would like, Thinking of you L.

1 mom found this helpful
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K.W.

answers from Macon on

My brother was diagnosed with this about 5 years ago when he was in his early 20s. He actually graduated from UGA with a degree in Economics while he was at his worst. Since he was away from home, we didn't see the signs daily, but later found out that his friends and roommates did. I actually did some college internships with homeless schizophrenics and blamed myself for not recognizing it sooner. It is very important to remember that this disease is controllable with medication. Also, it has a tendency to happen to people of above average intelligence. The best thing to do is to watch your daughter now that you recognize the warning signs, but do not over react every time she has any kind of emotion. She is still the same person and needs to be treated as such. However, she needs to be educated about the disease and understand the importance of taking care of herself and properly taking her meds. Where you need to come into play is to watch for lingering symptoms-for example, if she is on her meds but showing increasing lethargy or sleeping way too much, or has any increasing "ticks" like a bouncing leg or twidling fingers. If things like that pop up, they may need to adjust her meds. It is so tough, though, b/c the meds themselves can cause drowsiness. Don't ingnore the disease, but don't dwell on it either. Just continue to love and support her - that is the best thing anyone can do. Although my brother is a little withdrawn socially(more out of laziness than anything), he owns a home, has a good job and takes care of our elderly grandmother(who lives with him) and he is only 28 years old. Don't you or you daughter feel helpless and don't let her ever use this as an excuse or an easy "out" for anything. Take care of yourself and her and if you would like to contact me directly at ____@____.com, feel free to.

1 mom found this helpful
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B.R.

answers from Atlanta on

Hello and God Bless! My brother-in-law is 21. He has been diagnosed as Bi-polar and mild schizophrenic since he was like 10. I can only suggest that you look to NAMI for groups and therapy in your area. That is where I would start. nami.org I believe is the website. They have chat rooms where you can talk to other family members of schizophrenics.
As far as the insurance goes...If she is severly afflicted, you could go for disability through the state, and she can collect SSI and disability for as long as you need her to. Also, check into medicaid/medicare for her. NAMI should be able to inform you of exactly what she/you need to do legally.
My church Free Chapel in Gainesville Ga has MANY programs, you can go to freechapel.org to contact someone. They offer counseling @ a sliding scale (even free) in many cases. Counselors will be able to refer you out to well rounded groups that would meet your needs if they don't have just what you guys need right now.
God does work in wonderful ways. Just hang on and be strong! God will be able to bless you and deliver you and your family!

1 mom found this helpful
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S.M.

answers from Gainesville on

Medication, inpatient treatment, education (for the individual and his or her family, significant other, or support system), therapy (including individual, family, and/or group therapy), Residential or day treatment programs and vocational training are few treatments one can do for schizophrenic.
http://www.thebrainhealth.com/what-is-schizophrenia.html

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B.O.

answers from Savannah on

Hi, sorry about hearing the news on your daughter. I am a psychology minor and am now taking an abnormal psyc class. I can see if I can get some info about taking care of her from my professor. I will be in touch. Take care.

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C.B.

answers from Savannah on

R.:

Because she has the condition , she will be able to apply for SSI , and they will provide medicaid or another insurance .
Call the Social security for an appointment and they will tell you what you need. If she has a social worker , the social worker can make a referal.

Hope that this info help !!!!

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