Photo by: Jose Luis Mieza

For the Kids: Dealing with a Serious Illness in the Family

Photo by: Jose Luis Mieza

If I had a nickle for every time I’ve heard how well I’m keeping things together lately, I’d be able to afford that vacation I so desperately need.

But the truth is, I don’t feel held together at all. I feel like my world has crumbled at my feet and the day to day life I’m living is actually some weird Twilight Zone episode. The reality of living day to day knowing that someone whom you love is very close to you is dying is very surreal.

Some days I am so busy carrying on the regular activities of my kids and our household that I barely feel like I’ve stopped to absorb the realness of what is undoubtedly coming. Some days I feel like I am the only one holding it together and that I have to be the strong one. Some days I feel like the only one who’s knees are going weak at the mere thought of it all.

But mostly, I think I keep it all together day in and day out, at least until the sun goes down, because of my kids. I have in no way of completely sheltering them from the reality of what is going on.

When my mom began treatment 2 years ago (her third go around with cancer) we told the boys that Gramma is sick and she’s taking some strong medicine to help her get better. We talked about how the medicine made her sick sometimes and made her very tired. They knew that the reason they began to see her much less was because she was so tired.

Then when it was decided recently that she would try no further treatment, I consulted some people, got some books and sat down to talk to them. I was sick to my stomach that whole day knowing that I would be talking to them that night at bed time. But I was amazed at how easy it was to talk to them. I was surprised at how much they seemed to have gathered long before I came out and told them. And while they recognize that they will miss her and that she is far too young to be taken from us, they handled it better than I could have even asked.

They’ve been down a similar path when MY Gramma passed away from Brain Cancer, but they were much younger. But even at their young age then (2 and 3) their wisdom was amazing. One day while we were driving in the car I began to cry a little as we reminisced about my grandmother. My then 3 year old, looked at me and simply asked me why I was crying, and reminded me I would see her again.

So maybe, it’s NOT that I am holding things together FOR my kids, maybe its BECAUSE of them. If you’re dealing with a serious illness in your family, the reality is, the children probably know and understand far more than we’re even capable of trying to explain to them. Tell them what you’re able and be sure to let them know they can come to you with any questions, but then be prepared to be surprised by how well they cope!

Lisa Noel, Office Manager and mom to boys, a first grader, kindergarten and one and a half year old. A self described “Jack of all trades, master of none,” Lisa enjoys spending time with her boys, watching them play sports, watching movies, listening to music, writing and taking photos.

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34 Comments

Thank you for featuring my post. I hope that maybe it may help just one person going through hard times!!

Yes, you did help this person, thank you. :) I hope all goes well, however it ends up working out it will be for the best. My mom is terminally ill and I have been looking for some word of wisdom and I found them here. Thank you. -S

Thank you for your wise words. My husband went into total renal failure last year, and he started dialysis in February of this year. We have 3 and 6 year old boys, and I am the one holding it all together... well sort of. I came into my office to cry (it's 1 am) and then decided to check my email to distract my mind so I could sleep... and there was your message. I do worry about the kids. Daddy can't play with them the way he used to, and he's often really grumpy...

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How true, and it's amazing how much even the youngest can understand, I do know (I have three girls). What a tough journey for you all, but also I imagine that the sincerity and (I guess "acceptance" would be the word) that young children provide without even knowing it, may help you and your mom as well. (By the way, and completely at random, I do believe I've just read an article you'd written....

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Some of the most amazing people I meet now are named Lisa. A friend of mine named "Lisa" has four children and a brain tumor. She has fought long and hard for six years. She can't receive any more treatment now yet she continues to be an awesome inspiration for us all. In her I see God's love for her and all of us. Read from the book of Haggai 2:1-9 and Luke 9:18-22. Your son is right we will be together again...the Body of Christ made whole. God bless you and your family.

I have a very good friend whose husband has been fighting stage four kidney cancer for more than a year. He is now in a hospice program. She says that she doesn't seem to feel much at all, since there have been so many emergencies and things to do. I think 'surreal' is a good word for it. I appreciate your post.

I just want to tell you Lisa that I just went through this in my own life .... I honestly think that its the kids who are wiser than us as well....It was my 6 year old who said -Well Mum ,maybe its time for Delaney (my baby girl who passed away) to have Grandma.....very profound for such a young child ...it did not make me miss my Mum less but it did give me comfort to know my Mum is taking care of my baby girl till i get there.....

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Lisa, first of all, my prayers go out to you, your Mother and your family as you walk this really hard road. I lost my Mother to ovarian cancer almost 8 years ago and so I have a good understanding of what you are dealing with. My children were older when my Mother passed away but let me tell you that you should involve them in as many aspects of caring for your Mother as possible. It will be a greaet help to them as they deal with the reality that they are losing someone that they love dearly...

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I think you are so right about the kids. I was pretty young when we went through this with my father-in-law. I remember praying desperately when I first accepted that he really would die, "But God, how can I tell Jonathan that his favorite grandpa is gone?" I was completely freaked about it. In the end, I was shocked at how it went. I hardly had to tell him anything at all. He totally got it and he was okay...

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i kinda of understand this my 4 yr.old amazed me when my grandfather passed but my 9 yr.old had a hard time he also has learning disabilities. my grandfather had also been sick for over a yr. and we had to stop taking them to see him as much as it was h*** o* both them and him he had dementia and some days he didn't even remember me but they always know how much he loved them

Beautifully written. I lost my 32-year-old husband to skin cancer after a five year battle and our boys were 1, 3, and 6 at the time. It was utterly surreal, especially at the end when we sensed his time was near and yet I and the children and all of our family and friends were still living and needing to deal with day-to-day lives. I wanted the world to stop for him......

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Lisa, your piece was very poignant and moving. I'm sorry that your Mom is so ill and that soon she will pass. It is so hard for us all to deal with the death of our so-loved ones. You don't always have to be strong for your family -- sometimes just cry and let your little boys hold you. Mommies need lots of love too, especially now because she's your special, never-to-be-replaced 'Mommie'. Your boys will understand when you need to break down and let the tears fall all around.

I feel the same way. I became the sole caregiver for my mother in law for the past 2 months, though I was helping her with a majority of everyday things before I moved in with my 4 yr old. My house is 4 houses away. So I spent the last 2 months maintaining 2 households. My husband & brother in law held a "head in the sand" metality, which didn't help. So dinners were rushed at home, to get down to MIL's for medicine, etc. Or go back home for letting the dogs out, etc...

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Lisa-
I am saying prayers for you and for your kids, family, mom. I know it's got to be surreal and impossibly hard. I pray that you have strength, that your children will be as unaffected as possible and that your mom has peace.

Holding you up to our Lord
Jude

You are correct in your observations.
When my children were very young I called them (my Glue) They held me together!
I considered them gifts from God!
Yet they helped me through the hard knocks in life.
My heart goes out to you on behalf of your Mother.
Recommend you see her as often as possible.
Allow the children to also.
You appear to have your priorities in order...

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