downs syndrome
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Down Syndrome
Asked by A.J. from Washington DC
on August 14, 2009
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Our week old baby girl has been diagnosed with Down's Syndrome. Does anyone know of any good books or websites that I can go to in order to educate myself. This is v...
Answers
- Hi A., I don't have any advice or wisdom on the subject but I just wanted to tell you I'm sorry about the diagnose. I know in time you will and your husband will acc...
- Well the only advice i have for you for children with Downs is that each one is different. Don't look at books or websites and let it limit it for your child. Teach an...
- A.: I know right now this probably knocked the wind out of you. But in time when you process this I hope you will go from devastated to joyful. I had a client before I...
To Amnio or Not to Amnio?
Asked by C.A. from Boston
on February 15, 2007
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I'm 14 wks pregnant. I've just gotten results back from my ultrascreen to check for chromosomal disorders (ie. Downs syndrome). The results have put me at high risk ...
Answers
- Hi - I had an amnio with my youngest . . . I work with developmentally disabled folks and thought (still think) it was in my best interest to know so I could be pre...
- Hi C.- I would suggest, since you wouldn't terminate the pregnancy regardless of the results, not to get the amnio. I was calculated at about the same risk. I didn't ...
- Dear C., Only you can decide what you want. However,I wouldn't do it.I'm glad that you are going to keep the baby!! And remember your other boys are all healthy a...
Ultrasound for Downs Syndrome Testing
Asked by T.M. from Cleveland
on April 20, 2009
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Hello everyone. I am 25 yrs. old and 11 weeks pregnant. I just had an ultrasound measuring the thickness of the nuchal of my baby-to-be's neck. The thickness measured ...
Answers
- Hello T.! I went through this with my daughter. They called me and said that the ultrasound didn't look right and they got me so upset, well it ended up being that ...
- TRUST is the best thing right now. Just know that God's plan for you and your family is better than anything you can dream. I have a 4 1/2 year old with Down syndrom...
- Hi T., I had a very high risk pregnancy, but have a beautiful and extremely healthy and normal daughter who is almost 3. I was offered tests to find out if my daught...
Advice on down Syndrome Baby
Asked by M.T. from Chicago
on April 8, 2009
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Two weeks ago my Cousin’s wife gave birth to a baby girl. The baby has Down’s syndrome and the family took it extremely hard although it wasn’t a total shock. ...
Answers
- Why not just treat the woman like you would any woman who just gave birth to a happy, healthy baby?
- Be compassionate, patient and supportive. Send a card to say "Congratulations!", just as you would with any happy birth. If you wish to send a gift, do so! Be upbeat. ...
- They will get social services for the baby through the hospital, and I'm sure they will also put them in touch with support networks of other families of special-needs...
Depressed Nasal Bridge - Down's Syndrome or Dwarfism?
Asked by L.B. from Odessa
on February 4, 2009
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My 2 1/2 mth daughter has a depressed nasal bridge and some dysmorhpic features indicative of Down's. The doc has ordered the testing, and we will be having that done...
Answers
- I have a 6-month old daughter with "full" Down's. She has "low tone" but still seems very strong to me (when she chomps down on my knuckle it hurts!). She is an incr...
- I don't know of any other causes for the depressed nasal bridge, but just wanted to let you know that I have known and cared for some very high functioning children wh...
- Good morning L., I have a daughter that is now 9 with Down Syndrome & Type 1 Diabetes and just let me tell you that if your daughter is diagnosed with Downs--it wil...
4 1/2 Year Old Won't Sleep Thru the Night!
Asked by J.L. from Tampa
on October 21, 2008
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Hi Ladies!
Please help me!! Our 4 1/2 year old daughter will not sleep thru the night anymore. It has been about a month. She also started to have "accidents". I ...
Answers
- Hi J., I agree with you, it does sound like it could be related to the changes in her life. Having a new baby there along with a special needs aunt is two big chan...
- My daughter, at 4, would have accidents and night wakeing when her asthma acted up. Her asthma is mild and for the longest time I didn't know the night coughing was a...
- im going to be completely blunt and opinionated...hope u dont mind!i think ur daughter is lacking in the attention department...shes not getting enough constructive at...
Downs Syndrome Odds Given Stole My Peace of Mind
Asked by K.C. from Dallas
on October 23, 2008
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Ladies I need some advice here. I am 18 weeks pregnant. I've been going to my OB since the beginning and had denied some earlier testing because if my baby had a birth...
Answers
- First of all, God bless you and your little one. I don't think your doctor meant anything negative, she's looking out for your best interest, you should let her kno...
- I don't think I would switch Dr's over it if I had a good relationship and long history with the Dr....but I would let the Dr know my feelings. Sometimes when tes...
- I agree with the other poster that you should talk to your Doctor about how you are feeling. Unless your Doctor is pressuring you to take action that you are against,...
Anyone Have Info on Down's Syndrome Testing?
Asked by J.L. from Dallas
on April 26, 2007
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A friend of mine is pregnant w/ her first child and over the age of 35. She just had the Down's Syndrome genetic test done and the results show her at high risk. The d...
Answers
- False positives are common and the only sure way to test is amnio. I had a high level sonogram and the results indicated nothing on Down Syndrome. The key for your f...
- If this is the triple panel test, it's not 100% by any means. It's simply a calculation that uses your age as a factor. my ob suggested I not have it done and go str...
- Hi J., I was pregnant (after 3 years of intertility drugs....long, long story) at 39 and we had the option of an amno or blood work and we chose the b/w for both me...
Grandson and Eating
Asked by L.C. from Pittsburgh
on October 25, 2008
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My little grandson, who is 7, has Down's Syndrome. He and his Mom are staying with us temporarily
while she finds a little place of their own. She was divorced rece...
Answers
- I would also recommend occupational therapy. My son has always had issues eating. He mainly wanted just carbs, frozen waffles, pancakes, etc. He has had somes issues a...
- I have kids, not with Downs, but dont like eating in the morning, especially early mornings. They like Carnation instant breakfasts, alot of good vitamins. Also smoo...
- My kids don't like many different foods either, but why not just let him have the baby cereal if that's what he likes. It's good for him and at least he's having some...
Resources for Parents of a Baby with Down's Syndrome
Asked by J.O. from Detroit
on February 5, 2007
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Hello. A good friend has a 7 month old with Down's who is having problems eating. He was aspirating much of his milk and was getting repeat respiratory infections. ...
Answers
- Have her call St Clair County Mental Health, they have services that would probley be able to help them, or they will refer her to help! There's respite services that ...
- Usuallt hospice is for those who are dying. But early on is a great service, or a nurse. Your friend should talk to her ped to see about options. To have a healthy,...
- Call your local Community Mental Health or state one. There are a lot of services sometimes you have to dig them up to get them. I know I have two autistic children ...
