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Down Syndrom Scare
Asked by S.W. from Dallas
on March 29, 2010
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Hi Moms.
A friend of mine is due on 3 weeks as was told by her OBGYN that it is possible that her baby has downs syndrome. She had a sonogram due to the baby's kidne...
Answers
- I was told all of the same things. My child may have downs, he may be a dwarf. I laid awake many nights crying and upset. It is hard when you are going through it t...
- S., I am a private duty nurse for a little girl with Downs. I can tell you that her mother would tell you she wouldn't have it any other way. Please let me know if ...
- First off, I will definitely be sending up prayers. Did she have an AFP done? An abnormal AFP may indicate down syndrome. Since she's so close to delivery, Down Syndro...
I'm Pregnant at 42 Years Old
Asked by P.P. from Knoxville
on December 23, 2009
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I am 42 years old and will be 43 years old when I deliver my 4th child. This child was a surprise and I am divorced. Because of my age, I had an amniocentesis test d...
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- this happened to my mom she was 42 and pregnant with my little brother and i was the baby were 13 yrs apart he was supose to have down sydrome too but hes perfectly he...
- If you had an amnio done, they should be able to tell you with 100% certainty whether or not the child you are carrying has Downs. They can determine the child's DNA,...
- We opted not to have the quad screen with either of our children (though I was in my early 30's with both). There are high levels of false positives and false negativ...
My Quad Results Came up Positvie...
Asked by J.R. from Portland
on October 12, 2010
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Last Wednesday I had my appointment for the Quad screening. A nurse called me on Monday to inform me that I had a "positive" result for my child having DS. I am only 2...
Answers
- I have a daughter with Down Syndrome. Graci is beautiful, funny, and smart. She is loved by her family and her many friends. I can understand you being scared, of ...
- the only thing that is accurate, is an Amniocentesis. They will probably have you do this too. They should also be having you see a "Genetic Counselor" which is the ...
- Some of the sweetest people on the planet have Downs.... Just start learning more about it since you may become one of those "special" mommys. 1 in 33 is 1 in 33, jus...
Developmental Delays.....
Asked by T.N. from Boston
on May 1, 2011
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My daughter was born at 35 weeks gestation. Delivered via csection for breech and preclampsia. She was only 4 pounds 3 oz because of my preeclampsia and the early bi...
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- That doesn't sound like much of a delay to me. My oldest, who was born on time, didn't walk until about 14 months old...basically, was at the same place yours is now....
- She doesn't really sound delayed from what you are saying. Did she hit all those milestones late? By the age of one she should be crawling in the traditional way but...
- Hi there, I think it's really hard to tell sometimes if there is a delay. The developmental milestones are so wide in some cases... I think it's terrific that you're ...
Ladies - I Need Some Support Advice
Asked by A.L. from Phoenix
on December 15, 2008
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My friend just delivered a sweet baby girl. It wasn't until after day 2 in this world that she was diagnosed Downs. Please, any mommies of these sweet children out th...
Answers
- See if she has seen this beautiful letter that appeared in the Dear Abby column: http://www.journeyofhearts.org/kirstimd/holland.htm It is a great reminder for all...
- I believe God gives the mommies that he deems extra special and full of tons of love these special babies. You should respond to her new little angel just like you do ...
- My baby doesn't have downs, but she does have spina bifida. God chose your friend for a reason... she must be strong! Treat her like you would any other baby or chil...
Need Advise on How to Deal with My Sisters Friend
Asked by A.M. from Phoenix
on May 30, 2008
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HELP ME I'm going to scream or get in a fight with her.. I'm not the type to start fights or get in screaming matches but this woman drives my nutts and says things th...
Answers
- Has she asked you to remove your son from the class? Even if you did, since her daughter did not test as developmentally disabled, she probably would not be in the cl...
- Dear A., It sounds like you are a great mom, doing the best for your son. I agree with you in everything, so I think you just have to learn to ignore this woman and...
- Hi there I have been an autism specific developmental preschool teacher here in albuquerque. I would recommend you look into autism specific classes for your son. They...
My Baby Is Born with down Syndrome
Asked by G.M. from Dallas
on November 24, 2008
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Our boundle of joy had come, we are so happy to have our first baby, but we never expected to have Down Syndrome. Now, we need to prepare to a whole different future f...
Answers
- Just to respond to a previous post, no, not everyone gets their fetus tested to see if it has downs. I have never done any testing other than a sonogram. Even if she ...
- The Down Syndrome Guild of Dallas was a life saver for me 21 years ago. I was the mother of 3 older children and not real happy to be 40 years old and the mother of a...
- I have two things - #1 http://www.our-kids.org/Archives/Holland.html #2 find an online support board specific to DS... there are several networks. *hugs* S.
Thanks for Your Responses
Asked by T.O. from Minneapolis
on August 24, 2011
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Thank-you, I have enough responses for now.
Answers
- I'm sorry you are in this position. It is obvious that you feel devastated. I think you need to talk to his pedi about it and start the eval process like you said. I t...
- I am so sorry you are going through this, I am not an expert, but this does not sound right. Did they do any tests? Blood work?CT/ MRI? Mold /heavy metal poisoning?Rea...
- I am sorry you are going through this. It is so hard. However, try as hard as it is to take it one step at a time. I am NOT a Dr, but my daughter had 11 ear infecti...
Pregnant and Given 1/9 Chance Baby Has down Syndrome
Asked by L.O. from San Francisco
on April 15, 2011
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Hi Moms. I'm 14-weeks pregnant and had a first trimester screening done for birth defects. Was called in to meet with a genetic counselor who informed us that there is...
Answers
- I don't know what the numbers mean but I just want to offer my support. I work with special needs children and the down syndrome children are very loving and take a p...
- WELCOME TO HOLLAND by Emily Perl Kingsley. I am often asked to describe the experience of raising a child with a disability - to try to help people who have not s...
- If you want to reach out and connect with support and other parents. Contact Parents Helping Parents, www.php.com ###-###-####. They are a wonderful, supportive orga...
Seeking Advice
Asked by L.S. from Seattle
on March 30, 2008
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I have just had an ultrasound. At this point they were looking to see if there was any fluid build up behind the neck which is a general indicator of a chrosomal abnor...
Answers
- My prayers are with you and your baby! My daughter went through a similar situation. Though the doctors prepared us for the worst we continued to have hope where the...
- I carried a baby with anencephaly (when I was 28) and decided to terminate the pregnancy, which was one of the most difficult things I've ever had to do. Several year...
- My heart goes out to you. Just over two years ago we lost our son. We were at 21 weeks at our 2nd ultrasound when we learned that he had Trisomy-13 + alobar holopr...
